nicklemama Posted December 2, 2013 Report Share Posted December 2, 2013 Harvey Singer and company have recently published the following: http://www.ncbi.nlm.nih.gov/m/pubmed/24080310/ He just will not stop. Link to comment Share on other sites More sharing options...
qannie47 Posted December 2, 2013 Report Share Posted December 2, 2013 Maybe we need to send him a pandas kid for a week Link to comment Share on other sites More sharing options...
PowPow Posted December 2, 2013 Report Share Posted December 2, 2013 so Hopkins has been checking Cunningham's test on PANDAS kids? how did we all miss this? Link to comment Share on other sites More sharing options...
nicklemama Posted December 2, 2013 Author Report Share Posted December 2, 2013 How can we be sure he has PANDAS test subjects? Last time, it turned out he didn't. Dr Leckman admitted it and moved to the PANDAS side. If you notice, he seems to be trying to equate antistrep antibodies with antilysoganglioside. He also left out anti dopamine 1 in his testing. Link to comment Share on other sites More sharing options...
PowPow Posted December 2, 2013 Report Share Posted December 2, 2013 (edited) ... Edited December 2, 2013 by powpow Link to comment Share on other sites More sharing options...
tpotter Posted December 2, 2013 Report Share Posted December 2, 2013 Are you sure he's not the dr. behind kidnapping all the kids at BCH? nicklemama 1 Link to comment Share on other sites More sharing options...
smartyjones Posted December 2, 2013 Report Share Posted December 2, 2013 what?! granted, I am no scientist and I don't know how to read research, but how is n=44, n= 40 and n=24 showing no difference? what exactly does the n mean? and how is 12 subjects an accurate study pool? it's all fun and games to refute Singer's nonsense, but it is truly frightening to realize the strong reach of the long arm of JHMU! Link to comment Share on other sites More sharing options...
smartyjones Posted December 2, 2013 Report Share Posted December 2, 2013 reminds me of a LLMD I heard speak a number of years ago. . . "I keep hearing from all these patients that their traditional doctors keep telling them, 'it's not Lyme, it's not Lyme'. Okay, fine. Something is significantly affecting these patients health, so if you think it's not Lyme, then find out what it is and TREAT IT." Dr. Singer -- something is significantly affecting these children's health!!!! MomWithOCDSon and philamom 2 Link to comment Share on other sites More sharing options...
lfran Posted December 2, 2013 Report Share Posted December 2, 2013 n refers to the number of subjects in each group EAMom 1 Link to comment Share on other sites More sharing options...
nicklemama Posted December 2, 2013 Author Report Share Posted December 2, 2013 He's got a lot of 'helpers' signed on to this paper. I'm hoping someone that really understands the minutiae of research writes a rebuttal and rips it apart. Link to comment Share on other sites More sharing options...
MomWithOCDSon Posted December 2, 2013 Report Share Posted December 2, 2013 Amen, Smarty! If this guy spent just one HALF the energy he expends on refuting PANDAS on coming up with verifiable answers, then he'd earn some respect from me. It baffles me, the sheer waste on trying to shore up one's own dated, out-researched and poorly supported position! philamom and EAMom 2 Link to comment Share on other sites More sharing options...
smartyjones Posted December 2, 2013 Report Share Posted December 2, 2013 lfran -- that's what I first thought but how do you have an accurate study with two groups of 40 and one of 24, when you are comparing the groups? and why later does it refer to 12 pandas subjects? Link to comment Share on other sites More sharing options...
nicklemama Posted December 2, 2013 Author Report Share Posted December 2, 2013 That's what I've been trying to figure out Smarty. I'm no researcher. The numbers don't add up to me. It would be helpful if I could access the entire article but I'm not giving even a penny for anything he has written. Another mom has access and she said at the end he acknowledges the small number of test subjects but goes on to say his results say there is no justification for abx or immune therapies for PANDAS. Link to comment Share on other sites More sharing options...
ChrissyD Posted December 2, 2013 Report Share Posted December 2, 2013 Nickelmama I sent you a message Link to comment Share on other sites More sharing options...
ChrissyD Posted December 2, 2013 Report Share Posted December 2, 2013 They studied 44 'PANDAS' children. Of those 19 were in an 'exacerbation'. And from the study: "Of the 19 children with PANDAS who had a documented clinical exacerbation while participating in the longitudinal study, serial samples before and after the exacerbation point were available on 12 individuals." Link to comment Share on other sites More sharing options...
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