tpotter Posted October 19, 2013 Report Share Posted October 19, 2013 I read an article recently about the fact that Alzheimer's patients had been found to have high CamKinase II protein activity in their brains. When I read this, I was intrigued, because as you all know, Dr. C's research, and recently released blood test tests for CamKinase II activity. So, I recently called the Alzheimer's Association, and asked if they knew anything about the possible correlation between Alzheimer's and infection, and they said that there is some research being funded to study that! Just thought I'd pass that information along. Link to comment Share on other sites More sharing options...
mama2alex Posted October 20, 2013 Report Share Posted October 20, 2013 That's amazing and so interesting! My dad had Alzheimer's when he died and struggled with anxiety much of his adult life (don't know about childhood). Link to comment Share on other sites More sharing options...
tpotter Posted October 20, 2013 Author Report Share Posted October 20, 2013 My FIL died from Alzheimer's and my DH's aunt also just recently died from it. Also, my dad had Parkinson's, and although I can't find any research showing a correlation between infection and Parkinson's (and I called them, too, but they didn't respond), he was EXACTLY like my DS in so many ways. Even had terrible OCD (hoarding), anxiety, and several other symtpoms. His came on suddenly in his late teensBefore he died, I told him that I suspected he had the same thing my children have. Personally, I just think that so many neurological and psychological illnesses are related. rowingmom 1 Link to comment Share on other sites More sharing options...
rowingmom Posted October 20, 2013 Report Share Posted October 20, 2013 Personally, I just think that so many neurological and psychological illnesses are related. (Just my thoughts): And infection based. Link to comment Share on other sites More sharing options...
socalmom Posted October 21, 2013 Report Share Posted October 21, 2013 Since many Alzheimer patients have Lyme and many PANS kids have Lyme I am not surprised to see someone trying to link the 2. SSS and EAMom 2 Link to comment Share on other sites More sharing options...
tpotter Posted October 21, 2013 Author Report Share Posted October 21, 2013 But, what is particularly interesting is the camkinase II link. That indicates infection. Link to comment Share on other sites More sharing options...
T_Anna Posted October 21, 2013 Report Share Posted October 21, 2013 In the last radio pandas they discuss a study where Alzheimer's patients are given IVIG. T.Anna Link to comment Share on other sites More sharing options...
rowingmom Posted October 21, 2013 Report Share Posted October 21, 2013 Lyme (or other spirochetes) infection, alzheimer's disease, and inflammation: http://canlyme.com/2013/01/28/lyme-disease-alzheimers-disease-and-inflamation-the-relationship/ Link to comment Share on other sites More sharing options...
airial95 Posted October 21, 2013 Report Share Posted October 21, 2013 (edited) I have always found it interesting that the most common advice for family members of older folks is that if thy have any change in personality or behavior - to get them into their doctor for a full medical work up, but in our children, it's get them to the psychiatrist/pharmacy! Oh, and by "interesting", I really mean infuriating... Edited October 21, 2013 by airial95 momcap, mama2alex, cobbiemommy and 2 others 5 Link to comment Share on other sites More sharing options...
3bmom Posted November 3, 2013 Report Share Posted November 3, 2013 LOL advanced member. My DS Dr says it is all related. A neuro immune response creating inflammation in the brain. Last year at 89 my father-in-law started having Alzheimer's symptoms with OCD. The big university hospital said it was depression and spent 6 months addressing his change in mood. I asked his old fashion primary to run blood work. Sure enough he matched my DS! The highest titer was HHV-6. We did valcyclovir but slowly. We saw confusion at first and than clarity. Maybe it was hard detoxing. Than we got him mentally back to find out he had cancer. Wonder what would of happen if infection was addressed sooner. Veterinarians first look at infections if pets behavior changes... Why not children? cobbiemommy and rowingmom 2 Link to comment Share on other sites More sharing options...
T_Anna Posted November 3, 2013 Report Share Posted November 3, 2013 Sure enough he matched my DS! The highest titer was HHV-6. We did valcyclovir but slowly. We saw confusion at first and than clarity. Maybe it was hard detoxing. Than we got him mentally back to find out he had cancer. Wonder what would of happen if infection was addressed sooner. Veterinarians first look at infections if pets behavior changes... Why not children? Sad, but true : ( I guess mainly because pet psychologists aren't given as much respect as child psychiatrist : / T.Anna Link to comment Share on other sites More sharing options...
tpotter Posted November 3, 2013 Author Report Share Posted November 3, 2013 LOL advanced member. My DS Dr says it is all related. A neuro immune response creating inflammation in the brain. Last year at 89 my father-in-law started having Alzheimer's symptoms with OCD. The big university hospital said it was depression and spent 6 months addressing his change in mood. I asked his old fashion primary to run blood work. Sure enough he matched my DS! The highest titer was HHV-6. We did valcyclovir but slowly. We saw confusion at first and than clarity. Maybe it was hard detoxing. Than we got him mentally back to find out he had cancer. Wonder what would of happen if infection was addressed sooner. Veterinarians first look at infections if pets behavior changes... Why not children? Yes, 3bMom. Vets do first look at infection. In fact, when my DS20 needed emergency open heart surgery this summer, and I knew that bartonella could cause the kind of damage he had to his aortic valve (problem started with congenital defect we didn't know about, though), I called our vet to find out what lab to use to test him for bartonella. Surgeon thought I was out of my mind to insist on testing (I told him I was paying, so what did it matter?) Vet didn't think that was strange at all. And, test was very complete, accurate, and DS came back positive! If docs would just stop denying it, and trying to thwart attempts to check for and treat infection, we'd have a lot less sick people in the world, save a ton of money to be used for other things, and I guess the medical industry might think they would go broke? nicklemama and philamom 2 Link to comment Share on other sites More sharing options...
searching_for_help Posted November 3, 2013 Report Share Posted November 3, 2013 Do the vets test for Bartonella differently than a doctor would? This is all very interesting. Also, concerning Alzheimer's, in addition to infection/inflammation, I wonder about statins possibly being a cause. Cholesterol is very important in the brain, and many docs are realizing the whole statin thing is a sham. I just wonder if the statin drugs might also be contributing to the number of Alzheimer's patients. http://vimeo.com/77730824 Part 1 Part 2 Link to comment Share on other sites More sharing options...
nicklemama Posted November 4, 2013 Report Share Posted November 4, 2013 The problem with testing for infections is it would force doctors to start prescribing more antibiotics, which are harder to come by than crack and that might send them over the edge with their current mindset towards less antibiotics. EAMom 1 Link to comment Share on other sites More sharing options...
Hopeny Posted November 4, 2013 Report Share Posted November 4, 2013 (edited) Since many Alzheimer patients have Lyme and many PANS kids have Lyme I am not surprised to see someone trying to link the 2. Agree, Alan MacDonald did a study on Alzheimer's pts (deceased ) brains and a large percentage had Spirochetes in their brains. http://alzheimerborreliosis.net/research/ If this link doesn't show up its Alzheimer borreliosis.net (one word no space) Edited November 4, 2013 by Hopeny Link to comment Share on other sites More sharing options...
Recommended Posts
Create an account or sign in to comment
You need to be a member in order to leave a comment
Create an account
Sign up for a new account in our community. It's easy!
Register a new accountSign in
Already have an account? Sign in here.
Sign In Now