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Everything posted by rowingmom

  1. http://vaccinepapers.org/al-adjuvant-causes-brain-inflammation-behavioral-disorders/ "...the study found that the lowest dose (200 mcg/Kg) was the most toxic! For many outcomes, the 400 and 800 mcg/Kg dosages had no observable adverse effects, but the 200 mcg/Kg dose did. Crepeaux (paper): Non-linear dose-response of aluminium hydroxide adjuvant particles: Selective low dose neurotoxicity The low toxicity of the higher dosages appears to be a consequence of dosage-dependent inflammation at the injection site. The high dosages caused intense inflammation at the injection site, form
  2. I am suggesting you follow up on bartonella specifically.
  3. Yes, remission is possible. DD15 has now been asymptomatic for 2 years, but we had to treat the proper infections to get there. Partial treatment was ineffective.
  4. I would also suggest that you follow up on your lyme diagnosis. Because of lyme's tendance to suppress immune function, coinfections (bartonella, babesia etc.) are very, very frequently involved. Bartonella especially will produce neuropsychiatric symptoms: Psychoimmunology of Tick borne Diseases and its Association with Neuropsychiatric Symptoms https://www.youtube.com/watch?v=7kG7BHlByeQ
  5. Very interesting reading from AoA Contributing Editor Teresa Conrick: http://www.ageofautism.com/2016/12/cdc-denying-harmful-human-vaccine-consequences.html "A particularly notable finding in our study is the 900% increase in noninvasive pediatric vaccine-related isolates that was associated with serotypes 19A...serotype 19A frequently recovered from middle ear fluid specimens. ● It is noteworthy that serotype 19A—the original multidrug-resistant serotype reported from South Africa in 1978 [41]—emerged in the United States after the introduction of PCV7 in 2000, and many of these isol
  6. Stephen Buhner recommends both Japanese knotweed and kudzu for brain inflammation. I have found that both work very well.
  7. LLM is very experienced and will give you important information. Please take the time to search her archives to see what she has accomplished with her children. MTHFR deletions were an important factor in DD15's illness. Inability to detoxify will result in metal and toxin (from infections, but also from pesticides in food/water and vaccinations) overload which compromises immune function. In our case, bartonella was responsible for DD's PANS reactions. And very much like you, her symptoms increased with antibiotic treatment that addressed that infection. If you have been diagn
  8. Yes, the video is a good one. I feel better about our choices to eat organically and exempt from vaccinations every time I see it.
  9. DD14 was negative for lyme through Igenex, but she did have an IND result on one of the lyme-specific bands. She was positive for bartonella and negative for babesia microti. We treated bartonella with abx but didn't get to full remission. Her lyme WB (Igenex) started reacting more fully (more lyme bands popping up) as her immune response improved with bartonella treatment. It wasn't until we moved to herbal treatment with Buhner's full bartonella protocol plus the addition of some antimicrobial protozoan/babesia herbs that she became asymptomatic.
  10. Although in this article they mention improved socialization, even DD herself noticed a decrease in ticcing and other PANS symptoms during a fever. http://www.ageofautism.com/2016/07/immune-system-autism.html#more The researchers found that without interferon gamma, signals in a brain region called the prefrontal cortex run rampant, and mice tend to be asocial. The prefrontal cortex is involved in social behavior, and is thought to be overactive in some people with autism. “We show that an immune molecule directly controls brain circuits through neurons,” Kipnis says. ...This suggest
  11. DD14 was ANA positive (speckled type) indicating connective tissue involvement. No other indicators of lupus though. She tested positively for bartonella and lyme, and was later clinically diagnosed with babesia although testing negatively for it (all through Igenex). As her infections were treated, her ANA returned to normal. It wasn't a reach to assume that lyme was likely responsible for the observed connective tissue destruction. She remains in remission.
  12. Why folic acid supplementation/food fortification (energy bars, cereal etc.) can be problematic if we have MTHFR deletions. /www.youtube.com/watch?v=cWFPRI6X7P4&inf_contact_key=30aab23c6df2132c1a540c189895646f33499b9de8e26120377f0d2028093332 DD has an MTHFR deletion, and I was supplemented with high prescribed doses of folic acid when I was carrying her. She was born with a bruise at the base of her spine which has only faded in the last couple of years. I think we are lucky that she didn't acquire spina bifida from my supplementation; which was prescribed to decrease just that r
  13. Our LLMD originally used biaxin/rifampin to treat DD's bartonella infection. It produced herxing (die-off) symptoms which included increased fatigue, shin pain, emotional lability and headache. We were on vacation during the herx and we ended up having to get a wheel chair to get her from place to place (or around museums etc.). Be aware of the possibility of an increase in symptoms or the development of new ones, which might be an indication of other underlying infections.
  14. I was going to ask about coinfections as well. DD14's PANS symptoms were caused by bartonella infection which is notorious for causing psychiatric issues. For DD is caused motor/vocal ticcing, ADHD, the gamet of PANS symptoms.
  15. Thank you! I'm glad this information is making it to the mainstream - everyone needs to be aware.
  16. In my opinion you need to do better than non-GMO. Pesticides, especially glyphosate, act as antibiotics destroying beneficial gut bacteria which are essential for proper immune response. Pathogenic gut bacteria = improper immune response. GMOs which are made to be resistant to glyphosate (RoundUp) will be sprayed before planting and during growth, so will contain a large amount of the chemical. However, many non GM plants, especially grains (gluten and non-gluten containing) and legumes are actually desiccated (dried down) with glyphosate or other chemicals, allowing farmers mor
  17. Depending on which bands are IND on your WB, you will be diagnosed by many LLMDs as having lyme. An IND result is an indication of weak reactivity, not non-presence of antibodies. Here is a site with a chart listing which kDa bands are lyme-specific. Just because a test gives you an overall negative result according to Igenex or the CDC, doesn't mean that you aren't infected. http://www.anapsid.org/lyme/wb.html Because of the immune suppressive nature of lyme and the common coinfections bartonella and babesia, a strong antibody response would not be expected if you have a high i
  18. 1. Lyme follow up- saw a LLMD in NY area- he was not very open to mold (forgot to put mold exposure in signature line ) or herbals and Im not sure how much he is considering bartonella. Considering the number of vectors that can and do transmit these veterinary diseases, I would not dismiss either bartonella or babesia infections in yourself or your children. http://www.ncbi.nlm.nih.gov/pubmed/24936029 http://ilarjournal.oxfordjournals.org/content/55/1/46.full https://parasitesandvectors.biomedcentral.com/articles/10.1186/1756-3305-3-36 Our experience has been that both
  19. Could you PM me the name of the doctor on Ontario too please? There was no one 5 years ago. Thanks.
  20. Unfortunately, I think you are out of luck on Ontario. Before investigating Lyme/coinfections, our pediatric psychologist told me that IVIG for PANDAS was not available to anyone unless they were incapacitated. DD14 didn't qualify. The psych told me she would refer me to the Tourette's clinic at Sick Kids in TO, but we never went. The LLMD we saw in Buffalo told me that DD14's PANS was caused by a bartonella infection (DD was negative on the Canadian ELISA test so she couldn't be treated here. Our GP didn't test for coinfections). We treated for 2 years with abx and then weane
  21. @ MyLighthouse and @ Johnsmom. I totally agree with LLM and momma2alex. I would investigate bartonella infection if psychiatric issues are involved.
  22. In DD14's case bartonella/babesia were the cause of her PANS symptoms. All have resolved. Keep investigating infections; you have seen her symptoms resolve with treatment. You will find the answer.
  23. These were many of DD14's symptoms exactly. Every single one of them resolved with treatment for the lyme coinfections bartonella (with antibiotics) and babesia (with herbs only), speech therapy, OT and PT. Her long term memory remains exceptional. In our case each of these symptoms were medical issues associated with her infections. None were "psychiatric" or related to "autism", although she did have a diagnosis of Asperger's at one point. DD's anxiety and panic attacks were caused by bartonella, and resolved pretty much immediately with antibiotics specific for that infectio
  24. You can't allow your children to eat pesticide laden crap and expect their gut microbiome (and thus immune response) to function. Environmental toxins (and that includes vaccinations) are slowly killing our children and producing improper immune response. We all need to WAKE UP to this fact. http://people.csail.mit.edu/seneff/ We need to detoxify them (see Gerson in the video) and support proper immune response using nutritionally dense diet (see Terry Wahls). The problem is not the infections. Thanks for the video sf_mom. I have been contemplating prophylactic Sota for a
  25. For that reason it would be best to figure out which infections you are dealing with. As you say, viruses will not respond to abx, nor will every bacterial infection respond to the abx regularly given for strep-induced PANDAS. If you feel that viral infection is the trigger, treat the virus. I would try finding something other than an antibiotic to function as an anti-inflammatory. It's just not worth destroying your gut microbiome when there are other options.
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