Claire Posted October 23, 2006 Report Share Posted October 23, 2006 Hi all, I have noticed since I joined this group 3 years ago, that several posters tried non-biochemical methods to help their children. I know some really said it helped. Can those who have tried it, whether it succeeded or failed, please post their experience. Again, I will try to compile and update the responses into this initial post. **Please post: what you tried, did it help? Explanatory comments** 1. Patty. Yes. Accupuncture. Yes. My son had an acute sudden onset of head nodding. Three weeks later, he had acupunture 2X/week, and within days his symptoms gradually declined. 2 weeks later, we added chiropractic adjustment to alleviate his neck pain & headache. Unfortunately, my son developed a fear for needle, so we had to stop after 7 treatments. Patty. No. Craniosacral therapy. At about the same time, we also started craniosacral therapy. We have done about 10 craniosacal therapy and didn't notice any difference. Patty. Yes. Chiropractic. In the beginning, I didn't notice any benefit from the chiropractic adjustments. However, the last 2 times after chiropractic adjustments, i noticed a decrease in tics. 2. Chemar Yes. Accupuncture. My son says that acupuncture is by far the most helpful treatment for his tics. Chemar. Yes. Simultaneous reflexology, resonance biofeedback (NOT neurofeedback), detox cupping and massage. Chiropracty is also an essential part of our son's treatment therapy. Chemar No. Homeopathy and traditional Chinese medicine. Although we have much respect for homeopathy and also traditional Chinese medicine, neither were a good fit for my son with respect to the TS. 3. Carolyn. Yes. Acupuncture since January of 2005. Acupuncture helps and it's relaxing for me. We no longer discuss tics at my appt. unless I bring it up. My acupuncturist treats my current symptoms by observation and we discuss things like sleep, tightness, etc. before doing the acupuncture. It's not just tic based, but also includes other things I'm experiencing such as detox, etc. Acupuncture is mostly done on my front and we've only done it on my back once when I was having wheezing symptoms. Carolyn- Yes. Chinese Cupping/Massage Since about my 2nd or 3rd acupuncture session. Cupping has become part of the routine because I love it so much. This is by far my most favorite treatment I use. We usually do it before acupuncture. I crave the deep pressure and love the cupping because of this. It's very relaxing for me and keeps jerking and other tics away. I react mostly on the left side of my body when the cupping is done. The left side is always the tightest/most tense side. Carolyn- No. Osteopathic Manipulation of my back, neck, and shoulders for about 6-8 months. I hated it. I never tried a different doctor for this. I didn't like the light touching when the doctor did the adjusting. As I said before I like deep pressure that's used with the cupping above in my positive experiences, but light touch drives me nuts. Osteopathic manipulation made my tics worse. 4. Claire No. Neurofeedback. They placed electrodes on his scalp and he viewed a screen that 'rewarded' him with game play movement for putting his brain into a certain state of active relaxation. It didn't help the photosensitivity, and it seemed to worsen his concentration. We did it for 6-8 weeks, and spent about $4K (advance purchase of multiple sessions), which wasn't refunded when we had to stop due to the concentration issue. DDR (Dance Dance Revolution) seemed to help restore his concentration at the time. Claire. No. Energy meridian tapping and voice therapy. (Same doctor.) No results. Worse than this, they would keep making him do it over and over and over until he finally said he was better. Eventually he would just say he was better because he was so sick of doing it, and they would claim success. [i should note that our neighbor --no tics-- has had good success with energy meridians, and I believe that accupuncture deals with meridians. This doctor just didn't work out for us. Link to comment Share on other sites More sharing options...
patty Posted October 24, 2006 Report Share Posted October 24, 2006 2. Patty - tried acupuncture, chirpractic and craniosacral therapy. My son had an acute sudden onset of head nodding. Three weeks later, he had acupunture 2X/week, and within days his symptoms gradually declined. 2 weeks later, we added chiropractic adjustment to alleviate his neck pain & headache. At about the same time, we also started craniosacral therapy. Unfortunately, my son developed a fear for needle, so we had to stop after 7 treatments. In the beginning, I didn't notice any benefit from the chiropractic adjustments. However, the last 2 times after chiropractic adjustments, i noticed a decrease in tics. We have done about 10 craniosacal therapy and didn't notice any difference. Link to comment Share on other sites More sharing options...
Chemar Posted October 24, 2006 Report Share Posted October 24, 2006 Hi Claire as I have mentioned before my son says that acupuncture is by far the most helpful treatment for his tics Our therapist also performs reflexology, resonance biofeedback (NOT neurofeedback)detox cupping and massage simultaneously Chiropracty is also an essential part of our son's treatment therapy Although we have much respect for homeopathy and also traditional Chinese medicine, neither were a good fit for my son with respect to the TS BTW Claire, I noticed you said "neurotherapy" in your negatives....I am assuming you mean neurofeedback? Neurotherapy is a much broader term and even here at Latitudes, it is commended, hence the name Association for Comprehensive NEUROTHERAPY I just wanted to mention that as I would hate for folks to be confused. Neurotherapy basically refers to all forms of treatments for neurological issues whereas neuroFEEDBACK is the specific treatment whereby electrodes are placed on the scalp and brainwaves measured to attempt to produce more alpha etc rythms by a reward method etc etc etc etc I also am no fan of neurofeedback! Link to comment Share on other sites More sharing options...
Guest Posted October 24, 2006 Report Share Posted October 24, 2006 I'm going to start with the positive treatments. Carolyn-Acupuncture since January of 2005. Acupuncture helps and it's relaxing for me. We no longer discuss tics at my appt. unless I bring it up. My acupuncturist treats my current symptoms by observation and we discuss things like sleep, tightness, etc. before doing the acupuncture. It's not just tic based, but also includes other things I'm experiencing such as detox, etc. Acupuncture is mostly done on my front and we've only done it on my back once when I was having wheezing symptoms. Carolyn-Chinese Cupping/Massage Since about my 2nd or 3rd acupuncture session. Cupping has become part of the routine because I love it so much. This is by far my most favorite treatment I use. We usually do it before acupuncture. I crave the deep pressure and love the cupping because of this. It's very relaxing for me and keeps jerking and other tics away. I react mostly on the left side of my body when the cupping is done. The left side is always the tightest/most tense side. Here's my negative treatment experience. Carolyn-Osteopathic Manipulation of my back, neck, and shoulders for about 6-8 months. I hated it. I never tried a different doctor for this. I didn't like the light toughing when the doctor did the adjusting. As I said before I like deep pressure that's used with the cupping above in my positive experiences, but light touch drives me nuts. Osteopathic manipulation did make my tics worse. I have a question for Chemar regarding her son and cupping. If any others have had cupping done, feel free to respond also. When your son has Chinese cupping done, do more hickey/bruise type marks form on one side of his back? If so which side? Link to comment Share on other sites More sharing options...
quan_daniel Posted October 24, 2006 Report Share Posted October 24, 2006 Carolyn, I have cuppings and accupunture done on me for many years only last 3 years I have stopped since I too started taking mag/cal for last 2 1/2 years. The most tense area usually results in dark bruises. The day that I am relax my bruises are very light. I do get skin rashes from cupping and accupuncture. So beware.. cupping relaxation usually last 2 days for me than I am out of wack again. However with mag/cal it seems to build on my body. I neglect to take sometimes for weeks and I am still relax as long as I don't deplete it. My child with negligible tics has not done it. I do not have tics. Link to comment Share on other sites More sharing options...
Claire Posted October 25, 2006 Author Report Share Posted October 25, 2006 Thanks all! Thanks for reiterating yours Chemar, I had forgotten exactly which ones you did. I edited my post to say 'neurofeedback'... Claire Link to comment Share on other sites More sharing options...
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