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Posted

Hi, I am really new here. I joined this forum a couple months ago, during a time when I was also actively working with a naturopathic doctor to achieve an unmedicated pregnancy. I was on Haldol at the time and had been on 2 mg/day since I was 18 to control Tourette's.

 

The Tourette's started when I was 9, and it was a moderate case until I went on the Haldol at 18. When I was regularly taking my medicine, it pretty much disappeared, except for times of extreme stress.

 

I had a medicated pregnancy with my first child. For anyone who is wondering, the Haldol is a maybe-safe drug during pregnancy. There has been anecdotal evidence that it may cause limb deformities and/or heart defects, but no formal studies have been conducted, and the incidence of these problems is small. Nevertheless, I didn't want to take it during pregnancy #2 if at all possible.

 

My naturopathic doctor first tried cranio-sacral therapy, which didn't help at all. Next, she started me on NAET testing & treatments. I tested allergic to B Vitamins, dairy, sugars, mold, food preservatives, coffee, and chocolate. I had the first NAET treatment for B Vitamins, dairy & sugars, and saw little to no improvement.

 

A month and a half later, I had my second NAET treatment, this time for mold. I quit taking my Haldol the day before the treatment so I could gauge its success. The difference the mold treatment made was remarkable. I haven't had to take the Haldol since I had that treatment a month ago. In the past, tics would get bad after 4-5 days off the Haldol, and I would have to take meds again. I have never, since I was 18, been able to go a month without the meds. Since the mold treatment, the Tourette's has consistently been a 1-2 on a 1 to 10 scale, with 10 being my worst day.

 

It's worth noting that around the same time as my mold treatment, I started taking a Calc/Mag/Zinc supplement once a day. I doubt it was solely the supplement, though, as that would be just amazing, and it would mean that one supplement a day would function the same as the Haldol. However, it may be helping.

 

The Tourette's does still flare up if I eat too many food preservatives or if I am in a house that uses a lot of chemicals. It takes about a half a day to a day to get the junk out of my system again.

 

Oh, and shortly after my mold treatment, I got pregnant again, so I'm very hopeful that this will be an unmedicated pregnancy, and I am much less stressed knowing that I have resources and a doctor who can help me in the event one of my children develops Tourette's.

 

-Julie

Posted

I tested allergic to B Vitamins, dairy, sugars, mold, food preservatives, coffee, and chocolate. I had the first NAET treatment for B Vitamins, dairy & sugars, and saw little to no improvement.

 

-Julie

 

I don't think an allergy to b vitamins is possible. Some types can have a reaction to some b vitamins, niacin (nicotinic acid) and folic acid mainly, which raises histamine levels. Histamine is responsible for allergic reactions and some people have too much histamine in their bloodstream. So, taking either nicotinic acid or folic acid is not recommended and the nicotinic acid especially will cause the flushing which some people may think is an allergic reaction. That flushing is normal but not something that a high histamine type wants to experience.

 

But the niacin flush is not an allergic reaction although it may feel like one.

 

It may be possible that your naturapath does not understand about histamine levels and how the right nutritional supplements can be used to balance histamine levels in the body. This approach of balancing histmaine levels using nutrition is used by orthomolecular trained specialists.

 

http://www.diagnose-me.com/glossary/G610.html

 

And as to the supplements if they may have helped.... If you are a high histamine type than those supplements could have a very positive effect. Calcium and magnesium are needed by histadelics (high histamine types) to help lower histamine. So those supplements should not be ruled out as being helpful to you and possibly causing this improvement. (You might want to test this again with just the supplements.) Nutritional supplements can help to balance your histamine levels, but your naturopath may not know how to do this. You may want to try researching this yourself if your naturopath is unfamiliar with this concept.

 

I think the Naet treatment worked only the second time for mold because the supplements lowered your histamine levels. It may be possible that the combo of the two, Naet treatment and nutritional supplements might do the trick better than just the supplements. But those supplements can improve your allergic reactions because ther lower your histamine levels in your bloodstream.

 

Besides calcium and magnesium, vitamin c is also supposed to help lower histamine levels. (And high histamine types also need zinc but I don't think it effects histamine levels directly.) Amylase, a digestive enzyme for carbs, lowers histamine levels too. There are other supplements you should take but this is not something I just tell you. You need to research this and do this under medical supervision.

 

If you do have high histamine levels, then you should take your b vitamins separately, avoiding folic acid altogether. You should supplement other forms of niacin but the flushing kind (nicotinic acid), niacinamide is probably the most cost effective form for you. And that means you would have to avoid taking a multi vitamin too.

  • 1 month later...
Posted

Hi, I am really new here. I joined this forum a couple months ago, during a time when I was also actively working with a naturopathic doctor to achieve an unmedicated pregnancy. I was on Haldol at the time and had been on 2 mg/day since I was 18 to control Tourette's.

 

The Tourette's started when I was 9, and it was a moderate case until I went on the Haldol at 18. When I was regularly taking my medicine, it pretty much disappeared, except for times of extreme stress.

 

I had a medicated pregnancy with my first child. For anyone who is wondering, the Haldol is a maybe-safe drug during pregnancy. There has been anecdotal evidence that it may cause limb deformities and/or heart defects, but no formal studies have been conducted, and the incidence of these problems is small. Nevertheless, I didn't want to take it during pregnancy #2 if at all possible.

 

My naturopathic doctor first tried cranio-sacral therapy, which didn't help at all. Next, she started me on NAET testing & treatments. I tested allergic to B Vitamins, dairy, sugars, mold, food preservatives, coffee, and chocolate. I had the first NAET treatment for B Vitamins, dairy & sugars, and saw little to no improvement.

 

A month and a half later, I had my second NAET treatment, this time for mold. I quit taking my Haldol the day before the treatment so I could gauge its success. The difference the mold treatment made was remarkable. I haven't had to take the Haldol since I had that treatment a month ago. In the past, tics would get bad after 4-5 days off the Haldol, and I would have to take meds again. I have never, since I was 18, been able to go a month without the meds. Since the mold treatment, the Tourette's has consistently been a 1-2 on a 1 to 10 scale, with 10 being my worst day.

 

It's worth noting that around the same time as my mold treatment, I started taking a Calc/Mag/Zinc supplement once a day. I doubt it was solely the supplement, though, as that would be just amazing, and it would mean that one supplement a day would function the same as the Haldol. However, it may be helping.

 

The Tourette's does still flare up if I eat too many food preservatives or if I am in a house that uses a lot of chemicals. It takes about a half a day to a day to get the junk out of my system again.

 

Oh, and shortly after my mold treatment, I got pregnant again, so I'm very hopeful that this will be an unmedicated pregnancy, and I am much less stressed knowing that I have resources and a doctor who can help me in the event one of my children develops Tourette's.

 

-Julie

 

Julie,

 

I am so happy that NAET and/or the supplement is helping you. And congrad on the baby.

 

My son started NAET treatment this summer. We treated egg, chicken, white rice, brown rice, wheat, gluten, oat, oatbran, milk, cheeze, yogurt and butter. Each week, we treated 1 or 2 items at a time, with myself and my daughter present in the SAME office.

 

Questions:

 

1. Did you have a blood test done on your food sensitivities to use as baseline? or just the use of muscle tesing?

 

2. Did you treat more than 2 items at a time? I was told 2 is maxium per week.

 

3. I read the book "Say Goodbye to Illness", the author as well as the NAET founder stressed that while having NAET treatment, there shouldn't be anyone else present because it may interfere with the energy treatment. But our NAET dr. says otherwise. She said everything is about "intention", so other people's present do not interfere with treatment. Does your NAET dr. say the same thing?

 

4. How many MG of calcium, magnesium and zinc are you taking daily? I am considering giving my son calcium and magnesium.

 

5. Have you tried stopping the Cal & Mag supplement and see what happens with the tic? As I understand it, mold has a neurological effect which can cause tics.

 

I am looking forward to your respond. You are one of the few that actually used NAET, so your input is very important to me as I am trying to figure out if I should continue with the NAET treatment.

 

Thx!

 

Patty

Posted

Patty,

 

I wanted to address your questions & share an update:

 

1. Did you have a blood test done on your food sensitivities to use as baseline? or just the use of muscle tesing?

 

No, I did not have a blood test done on my food sensitivities, I just had the muscle testing. I did take note that almost everything she tested that came back positive I had already figured out was a trigger & I did not tell her what was a trigger before the session with two exceptions: coffee & MSG.

 

2. Did you treat more than 2 items at a time? I was told 2 is maxium per week.

 

I think the first treatment, we treated 3. B Vitamins, dairy, & sugars. She did muscle testing to be sure we could do all three together. The second treatment, we did only mold. She did muscle testing that time & decided we couldn't do anything else with mold. The 3rd treatment, we did food additives. The TS improved so much after that, I haven't had any more treatments. HOWEVER, I still can't eat a bunch of food additives, just like I can't be in a house full of mold. It seemed to have helped with small, "normal" amounts of these items, but not an overload.

 

3. I read the book "Say Goodbye to Illness", the author as well as the NAET founder stressed that while having NAET treatment, there shouldn't be anyone else present because it may interfere with the energy treatment. But our NAET dr. says otherwise. She said everything is about "intention", so other people's present do not interfere with treatment. Does your NAET dr. say the same thing?

 

I'm not sure what you mean here. The Dr. was in the room during the muscle testing & the actual acupressure part of the treatment. Then, she left the room for 15 minutes while I was to hold the offending substance. My 3 y.o. daughter was always in the room, though.

 

4. How many MG of calcium, magnesium and zinc are you taking daily? I am considering giving my son calcium and magnesium.

 

I was taking 1000 calcium, 500 magnesium. I don't remember the zinc formula. I quit taking near the beginning of this pregnancy, though, because I was on three separate supplements (one for adrenal fatigue, a prenatal vitamin, & the calc/mag), and my TS was worsening. I cut all supplements & had a good 5 weeks as if I were disease-free. Just this week, something has triggered again, but that's for a different post.

 

5. Have you tried stopping the Cal & Mag supplement and see what happens with the tic? As I understand it, mold has a neurological effect which can cause tics.

 

See previous answer about the calc/mag. I don't know about the mold & what specific element of it causes the tics. I am very interested in natural medicine, and I think I've had a lot of success with it in general, but I tend to look at things more practically. Such as, I recognized that if I spent too much time in my moldy basement, my TS would get worse for the day, so I bleach spray & mostly avoid my moldy basement, and we are going to sell the house soon & move to a newer home. Same with chemical cleaners & pesticides. I have never actually taken the time to research the mechanism behind the mold & chemicals.

 

I'm sure others here have, though, so if you're interested in the mold specifically, I would post a new thread.

 

I hope you have some success with the NAET treatments, too. They certainly weren't a cure-all for me, but I did see a major turnaround after the treatments, where I went from being entirely dependent on meds to having stretches of time where I didn't need meds & didn't even notice the TS at all. Of course, I can't credit the NAET for sure, but something happened around that time, and it's my best guess.

 

Many people think it's hokey, not based on actual science, etc. It definitely FEELS hokey when you're there. But IMO, it's not that expensive, and it doesn't hurt to try.

 

-Julie

Posted

Patty,

 

I wanted to address your questions & share an update:

 

1. Did you have a blood test done on your food sensitivities to use as baseline? or just the use of muscle tesing?

 

No, I did not have a blood test done on my food sensitivities, I just had the muscle testing. I did take note that almost everything she tested that came back positive I had already figured out was a trigger & I did not tell her what was a trigger before the session with two exceptions: coffee & MSG.

 

2. Did you treat more than 2 items at a time? I was told 2 is maxium per week.

 

I think the first treatment, we treated 3. B Vitamins, dairy, & sugars. She did muscle testing to be sure we could do all three together. The second treatment, we did only mold. She did muscle testing that time & decided we couldn't do anything else with mold. The 3rd treatment, we did food additives. The TS improved so much after that, I haven't had any more treatments. HOWEVER, I still can't eat a bunch of food additives, just like I can't be in a house full of mold. It seemed to have helped with small, "normal" amounts of these items, but not an overload.

 

3. I read the book "Say Goodbye to Illness", the author as well as the NAET founder stressed that while having NAET treatment, there shouldn't be anyone else present because it may interfere with the energy treatment. But our NAET dr. says otherwise. She said everything is about "intention", so other people's present do not interfere with treatment. Does your NAET dr. say the same thing?

 

I'm not sure what you mean here. The Dr. was in the room during the muscle testing & the actual acupressure part of the treatment. Then, she left the room for 15 minutes while I was to hold the offending substance. My 3 y.o. daughter was always in the room, though.

 

4. How many MG of calcium, magnesium and zinc are you taking daily? I am considering giving my son calcium and magnesium.

 

I was taking 1000 calcium, 500 magnesium. I don't remember the zinc formula. I quit taking near the beginning of this pregnancy, though, because I was on three separate supplements (one for adrenal fatigue, a prenatal vitamin, & the calc/mag), and my TS was worsening. I cut all supplements & had a good 5 weeks as if I were disease-free. Just this week, something has triggered again, but that's for a different post.

 

5. Have you tried stopping the Cal & Mag supplement and see what happens with the tic? As I understand it, mold has a neurological effect which can cause tics.

 

See previous answer about the calc/mag. I don't know about the mold & what specific element of it causes the tics. I am very interested in natural medicine, and I think I've had a lot of success with it in general, but I tend to look at things more practically. Such as, I recognized that if I spent too much time in my moldy basement, my TS would get worse for the day, so I bleach spray & mostly avoid my moldy basement, and we are going to sell the house soon & move to a newer home. Same with chemical cleaners & pesticides. I have never actually taken the time to research the mechanism behind the mold & chemicals.

 

I'm sure others here have, though, so if you're interested in the mold specifically, I would post a new thread.

 

I hope you have some success with the NAET treatments, too. They certainly weren't a cure-all for me, but I did see a major turnaround after the treatments, where I went from being entirely dependent on meds to having stretches of time where I didn't need meds & didn't even notice the TS at all. Of course, I can't credit the NAET for sure, but something happened around that time, and it's my best guess.

 

Many people think it's hokey, not based on actual science, etc. It definitely FEELS hokey when you're there. But IMO, it's not that expensive, and it doesn't hurt to try.

 

-Julie

 

Thx Julie for your quick response.

 

It is interesting that you were able to do 3 offending allergents at one time. For us, when my son treated dairy. Our NAET dr., treated the "dairy mix" first. Then my son return the following week and check for specific dairy items that he did not pass using the muscle test. My son did not pass "milk, yogurt, butter and casine". To speed up the process, we treated 2 items per week.

 

According to Dr. Devi Nambudripad's book, "Say Goodbye to illness", while having NAET treatment, a 3rd party in the room may steal the treament from the patient. I was always there with my daughter while my son is getting his NAET treatment. Our NAET dr. massages my son at the pressure points while he is holding the offending agent in one hand. When she is done massaging him. He continues to hold the offending agent in his hand for another 10/15 minutes. Then she retest him for the offending agent using the muscle test to make sure he pass. Then we avoid the offending agent for the next 25 hours. After the 25 hour avoidance period, we then slowly reintroduce the offending agent 2/3X a day for the next 2/3 days back into my son's diet. Then we return the following week for retest. Then we start the whole process again. Our NAET dr. does not do any acupuncture or acupressure on my son after the NAET treatment.

 

According to my son's acupunctist, who just got NAET certification last summer, but was not trained by Dr. Nambudripad says she would do acupuncture after NAET treament. We decided not to use my son's acupuncturist because she took this summer off for maternity leave and also our NAET dr. has 3 years of experience and was trained by Dr. Nambudripad. And she is also a ND.

 

Did you experience more tics the day of and after NAET treatment? And when the offending food was reintroduced into your diet?

 

Sometimes, my son would have more or new tics for a few days, mostly facial.

 

My son also has 2/3 slight vocal tics that come and go. In your experience, did the NAET treatment benefit mostly motor and/or vocal tics?

 

I agree, when we 1st learnd about NAET about 2 years ago before my son's tics happen. After oure 1st NAET treatment, referred by our current acupuncturist, I thought it was to hokey. Since there is a connection with tics and allergy, I am revisiting NAET again. Like you said, the treatment is not cheap but not unreasonable (we are paying $75 per treatment), and it is noninvasion. If the energy treatment works, it is worth it.

 

I do have one concern. Can NAET backfire? Can it casue the patient to have increase sensitivity to the offending allergent (more allergic than before the NAET treatment)? According to our NAET dr., the worst case scenario is that it does not work.

 

Starting today, I am giving my son 250mg calcuim carbonate and 125 mg magnesium a day. We also bought an air purifier for my son's room. Hopefully that helps.

 

Thx again! How is your pregnacy coming along? Since you have environmental allergy, do you use an air purifier? If so, please give me info. on it.

 

Patty

Posted

>>Then we start the whole process again. Our NAET dr. does not do any acupuncture or acupressure on my son after the NAET treatment.>>

 

I think what your Dr. calls "massage" my Dr. calls "acupressure." It's probably the same thing. The process you described is exactly like our process. We don't do the acupressure afterwards, it's while I'm holding the offending substance.

 

>>Did you experience more tics the day of and after NAET treatment? And when the offending food was reintroduced into your diet?>>

 

No, with the exception of one--I think it was mold. I experienced more the day of and the next day.

 

>>My son also has 2/3 slight vocal tics that come and go. In your experience, did the NAET treatment benefit mostly motor and/or vocal tics? >>

 

I can't say on that one, as mine are primarily vocal, mostly like a click or grunt inside my throat. I started out at 8 y.o. with a throat-clearing, moved on to an eye-scrunching for a very, very short time, and then moved to the click/grunt in my throat which has been about the only one since then. Well, except during my last pregnancy, there was a breathing one that developed--VERY annoying. I basically had to take this certain deep breath all the time that reached a certain part of my lungs. Hard to explain, but I walked around light-headed from hyperventilation all the time, and that's what pushed me back to the meds.

 

>>I do have one concern. Can NAET backfire? Can it casue the patient to have increase sensitivity to the offending allergent (more allergic than before the NAET treatment)? According to our NAET dr., the worst case scenario is that it does not work. >>

 

I've heard worst case scenario, it doesn't work, too. I've never had one backfire. I suppose it's not outside the realm of possibility, but I know one other person who's had it done for TS, & two other people for severe food allergies, and it didn't make it worse with any of them. All anecdotal evidence, I know, so if you're really concerned, I would do a Google search on "NAET backfire" or "NAET increase allergies" and see if anything comes up.

 

>>Starting today, I am giving my son 250mg calcuim carbonate and 125 mg magnesium a day. We also bought an air purifier for my son's room. Hopefully that helps.

 

Thx again! How is your pregnacy coming along? Since you have environmental allergy, do you use an air purifier? >>

 

I don't use an air purifier. They're pretty expensive, and I don't know if they really work to improve TS. If they do, I'd love to hear about it.

 

The pregnancy is coming along fine. I'm almost 11 weeks now. Thanks for asking!

 

-Julie

Posted

Do you know if these people with TS and allergies have decreased in symptoms after NAET?

 

My son also has environmental allergy, since we treated wheat & dairy, his nasal allergy seem to improve but not completely gone. But at the same time, we also eat less wheat & dairy, started to eat organic food as much as we possible. So I am not so sure if NAET treatment is the major contributing factor.

Posted

Do you know if these people with TS and allergies have decreased in symptoms after NAET?

 

My son also has environmental allergy, since we treated wheat & dairy, his nasal allergy seem to improve but not completely gone. But at the same time, we also eat less wheat & dairy, started to eat organic food as much as we possible. So I am not so sure if NAET treatment is the major contributing factor.

 

Yes & with dramatic results (way more dramatic than mine). Both of the food allergy cases were completely eliminated. The TS case saw immediate, dramatic improvement.

 

The daughter of my naturopath had TS & food allergies as a young girl. From what my Dr. says, it was a moderate to severe case. This, in addition to birth injuries with her son, is what started her on the path to become a naturopath. Anyway, she tried diet changes & supplements with her daughter first, and saw very little improvement. She said they had a complete turning point after the NAET treatments, where the TS went from moderate to severe to very mild. After that, they continued examining & cleaning up the diet & fine-tuned the supplements, and today, she doesn't noticeably have it at all. (She's about 14 now.) Her food allergies also disappeared, from where she was getting hives from touching eggs, to being able to eat eggs after the egg treatment.

 

Actually, this is why I chose my particular naturopath. It's hard to find anyone who has *direct* experience with treating TS. She told me in our first TS session that there are 7 main underlying factors/treatment programs for TS, and we would address them one by one until we found my individual culprit(s). I also liked the fact that she didn't assume every TS patient would respond like her daughter. But, I sure do wish I had written down every single of the 7 factors she mentioned!

 

From what I have heard (from other online stories, just like the one I posted above), and from what numbers I could find in my research, it seems the NAET treatments have *some* success with 60%-70% of people & dramatic success with like 30%. Which, of course, means *no* success with 30%-40% of people.

 

Have you treated the environmental ones yet? I'm just now realizing what a big trigger those are for me. I wouldn't give up on the NAET treatments unless I did at least one of the environmental ones.

 

-Julie

Posted

Julie,

 

Thx for sharing the NAET treatment info. It is so encouraging to know other people have benefited from it.

 

I have not given up on NAET yet. Is just that with my son in school now, it is so much harder to do NAET treatments. Food is everywhere!

 

As you said, I would like to treat his environmental allergies before I move on to other treatment plan.

 

Will you talk to your NAET dr. anytime soon? I would love to know the 7 underlying trigger for TS or tics. Or can I have your NAET dr.'s name and phone number. I would love to consult her on a few things before going forward with our NAET treatments. It is so hard to find a dr. who has direct experience in this area.

 

patty

Posted

>>Will you talk to your NAET dr. anytime soon? I would love to know the 7 underlying trigger for TS or tics. Or can I have your NAET dr.'s name and phone number. I would love to consult her on a few things before going forward with our NAET treatments. It is so hard to find a dr. who has direct experience in this area.>>

 

I actually have two doctors: the ND, or naturopathic doctor, and the NAET doctor. The ND is the one who recommended the NAET treatment (after we tried cranio-sacral & some supplements). She is also the one who has direct experience with treating TS in one of her own children. Oh, and she (the ND) is the one who was telling me about the 7 underlying reasons for developing TS & their associated treatment plans. The NAET doctor is part of a chiropractic office, and she just does NAET testing & treatments.

 

I'd be happy to give you my naturopathic doctor's name & number, but I don't think I should post it here on the board without her permission. I'm not sure how to email specific members. If you know how to email me, please do, and I'll send along her name & number.

Posted

I am a newbie on this board, still trying to find my way around here. I am not sure how to find your email address without having you post it on the board.

 

Do you know how to find my email address? If not, i will try to find out soon.

 

Thx for sharing so much info with me. I feel like everyday i am getting closer to figuring out how to treat my son's tics.

 

patty

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