This news story had me remembering and wondering.

[P_Mom]

Well, for me, I find it hard to believe that 12ish girls all contracted Lyme around the same time and then all developed sudden onset tourette like symptoms from it at the same time also. Just not plausible in my mind......but,that is me....no surprises there. (and I, personally, will leave the subject on Lyme and this situation rest at that.)

 

Anway...thanks to some info. via the Pepsi Refresh site...I found the link. He talked about it at the end of a segment he was doing about eating processed meats.

 

http://video.foxnews.com/v/1389322627001/processed-meat-linked-to-pancreatic-cancer

[EAMom]

Well, for me, I find it hard to believe that 12ish girls all contracted Lyme around the same time and then all developed sudden onset tourette like symptoms from it at the same time also. Just not plausible in my mind

 

 

Yes, I agree with that.

[oivay]

It's possible that they are all going to the same neurologist because he may be the only one in town. Upstate NY is pretty rural in a lot of places.

 

As far as the conversion disorder, we got that diagnosis too originally (at Morristown hospital). The neuros there told me flat out that they didn't believe Pandas existed.

[EAMom]

Anway...thanks to some info. via the Pepsi Refresh site...I found the link. He talked about it at the end of a segment he was doing about eating processed meats.

 

http://video.foxnews.com/v/1389322627001/processed-meat-linked-to-pancreatic-cancer

 

Dr. Seigel had a good point...how can this not be considered a public health risk?

[tpotter]

Can someone get to Swedo or Cunningham or Leckman--he's a tic guy. Would they be able to get to the parents or school officials. Anybody have a hotline to them? Dawn

 

 

They already know. And, at least one of the top PANDAS specialists tried to tell the NY State Dept of Health, and was brushed off!

[P_Mom]

Dr. Seigel had a good point...how can this not be considered a public health risk?

/quote]

 

 

 

That is right! This is so crazy. I really liked how he also said it was "very common." Finally!

 

 

 

What about...Gardasil vaccine (all girls of that age...and hence the big cover-up) resulting in a compromised/over stimulated immune system meets strep??

Edited January 13, 2012 by P.Mom

[MichaelTampa]

What about...Gardasil vaccine (all girls of that age...and hence the big cover-up) resulting in a compromised/over stimulated immune system meets strep??

 

 

That's certainly my guess.

[EAMom]

What about...Gardasil vaccine (all girls of that age...and hence the big cover-up) resulting in a compromised/over stimulated immune system meets strep??

 

 

That's certainly my guess.

 

I see the website for Gardasil is pushing it for both sexes. Does anyone know if boys are actually getting this vaccine, or is it just the girls?

 

Here's the website:

http://www.gardasil.com/what-is-gardasil/index.html?WT.mc_id=GL0ES&MTD=2

[EAMom]

It's possible that they are all going to the same neurologist because he may be the only one in town. Upstate NY is pretty rural in a lot of places.

 

As far as the conversion disorder, we got that diagnosis too originally (at Morristown hospital). The neuros there told me flat out that they didn't believe Pandas existed.

 

This is the problem. Le Roy is a hop and a skip away from Rochester, NY. Guess who is a neurologist at the Univ. of Rochester? Jonathan Mink...he's bud-buds with Kurlan and Singer. He wrote the CANS paper with them.

 

Jonathan W. Mink, MD, PhD

Affiliations University of Rochester School of Medicine, Rochester, NY

[ajcire]

It sounds like it's more than tics for these kids. If the one parent said he knows his daughter mannerisms... sounds like he's seeing some other differences in her.

[oivay]

Oh dear..........I didn't realize they were so closely aligned.

 

I'm desperately hoping that saying that 12 17 year-old girls who suddenly develop movement disorders have "conversion hysteria" is going to cause serious questions about their diagnostic skills to arise.

 

What is this? the middle ages?

Even my elderly mother (who lives fairly close by and is watching the news stories) and was a psychiatric nurse, questioned how it was possible for 12 people to suddenly develop "conversion hysteria".

[P_Mom]

Wow...maybe it was meant to happen there to slap those guys upside the head!

[EAMom]

Oh dear..........I didn't realize they were so closely aligned.

 

I'm desperately hoping that saying that 12 17 year-old girls who suddenly develop movement disorders have "conversion hysteria" is going to cause serious questions about their diagnostic skills to arise.

 

What is this? the middle ages?

Even my elderly mother (who lives fairly close by and is watching the news stories) and was a psychiatric nurse, questioned how it was possible for 12 people to suddenly develop "conversion hysteria".

 

So I'm reading about conversion disorder (still don't get why this diagnosis is accepted by the medical community but PANDAS is controversial ) and I came across this:

 

 

" Conversion disorders occur more commonly in rural areas, among individuals with fewer years of education and of lower socioeconomic status."

 

Kind of sounds like the opposite of Dr. K.'s typical PANDAS mom, huh? So of you are persistent and educated, you can eventually figure out that your child actually has PANDAS (or lyme, or some other real disease). If you have less education and less money or resources, your kid gets stuck with a conversion disorder diagnosis by the local pandas naysayer neurologist.

[SSS]

EAMom, you hit the nails on the head.

[EAMom]

Wow...maybe it was meant to happen there to slap those guys upside the head!

 

Yup, soon the $hit on Toast will hit the fan.