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Posted

DS is now in week 5 of KPU treatment. So far, very positive results. A few mood issues and intense feelings, but overall no major OMG moments. Even DH feels it's helping and when he's on board, you know it's an obvious improvement. We've been warned that between weeks 3-6, things can get dicey, either as the body dumps metals (which I don't think have been a major issue for us) or as the immune system wakes up and starts fighting things it hasn't been able to fight before. So I was perversely happy when earlier this week DS felt flu-like and didn't want to go to school. (Mean mom made him go).

 

For the past few days, he's been complaining of "bee stings" in his legs and feet (sharp, stabbing pain in a specific part, not a tingling) and at bedtime and in the morning, his ankles and feet hurt to stand on. I know these can be symptoms of a co-infection (or maybe virus?) but can't recall which one. Does anyone have thoughts?

 

Won't change what we're doing for now, just curious.

Posted (edited)

My guess is Bartonella. The soles of the feet, pains bouncing from different parts of the legs.

 

Just my .02 cents.

 

xxoo

S

 

P.S.

Maybe supplement with some extra magnesium?

Edited by S & S
Posted (edited)

DS is now in week 5 of KPU treatment. So far, very positive results. A few mood issues and intense feelings, but overall no major OMG moments. Even DH feels it's helping and when he's on board, you know it's an obvious improvement. We've been warned that between weeks 3-6, things can get dicey, either as the body dumps metals (which I don't think have been a major issue for us) or as the immune system wakes up and starts fighting things it hasn't been able to fight before. So I was perversely happy when earlier this week DS felt flu-like and didn't want to go to school. (Mean mom made him go).

 

For the past few days, he's been complaining of "bee stings" in his legs and feet (sharp, stabbing pain in a specific part, not a tingling) and at bedtime and in the morning, his ankles and feet hurt to stand on. I know these can be symptoms of a co-infection (or maybe virus?) but can't recall which one. Does anyone have thoughts?

 

Won't change what we're doing for now, just curious.

 

Dysaesthesias are part of lyme and co.

If its the growth plate regions of foot hurting its Babesia bothering the bone marrow.

The ankle can be circulatory pains and KPU related.

Stay alert for swelling around ankle or foot.

push drainage

do some lymphatic massage

stretching will help too.

bee venom ointment really helps.

Stabbing pains can also be metals being mobilized and being dumped at unwanted sites. But u don't think its that so you know. But otherwise during KPU therapy using a metal binder like microsilica or chlorella high dose is highly recommended.

Edited by sptcmom
Posted

My guess is Bartonella. The soles of the feet, pains bouncing from different parts of the legs.

 

Just my .02 cents.

 

xxoo

S

 

P.S.

Maybe supplement with some extra magnesium?

I agree-bartonella sounds like that.

Posted

S&S - Core has magnesium, in a specific proportion to the other minerals in the capsule. So don't want to mess with that. But thanks for the xo's

 

Jodie,

I think it's more circulatory or muscular than bone, but will check rather than assume. The stabbing pains are in the inner thigh and groin muscles - soft tissue - and the top of the foot. It's a new complaint, just this week.

 

We're doing 30 chlorella/day from Mercola, which comes out to 10 grams/day. This is partly why I'm not thinking metals and I also haven't seen much in terms of intensity of behaviors, moods, or cognition - other than positive trends upward. His brain is working better than it has in years. (also giving ALA and milk thistle)

 

How do I do lymphatic massage in that area? Ankle massage, ball of foot massage?

 

The one thing I didn't mention is that in addition to Core, we were doing 2mg/day copper supplement. He tested low for copper prior to starting KPU treatment and I know Core can lower copper even further. So the LLMD added the copper for one week before starting Core. We saw improvements from that as well. But about 2 weeks ago, DS started getting nauseous when he took the copper. Threw up on 2 occasions. So I've backed off and now only give 2mg every other or every 3rd day. No more nausea when he takes it. But wanted to toss that in just in case it meant something.

 

As I said, he's complained of odd, "icky" feelings this week. Assumed it was due to his immune system starting to fight things. But I really appreciate your thoughts.

Posted

I'm interested in the bee venom ointment - how does it help?

Can only give you our experience with bee venom. Son had sore knee so we tried it on there but the burning was too intense (should have read the directions better because when it starts to burn it is time to massage the area which helps). He only would try it once.

 

I have a knuckle on my right hand that swells up if I use it too much (i.e., gardening) and it gets red and swollen. Put that bee venom on there one night and woke up to a knuckle that looked almost normal. All the redness was gone and most of the swelling. It says on the tube we bought ($50!) that to get good results you can use up to 14 days. Have used it several times since then on my hand and it works really well.

 

Interesting and varied uses for it too.

Posted

I'm interested in the bee venom ointment - how does it help?

Can only give you our experience with bee venom. Son had sore knee so we tried it on there but the burning was too intense (should have read the directions better because when it starts to burn it is time to massage the area which helps). He only would try it once.

 

I have a knuckle on my right hand that swells up if I use it too much (i.e., gardening) and it gets red and swollen. Put that bee venom on there one night and woke up to a knuckle that looked almost normal. All the redness was gone and most of the swelling. It says on the tube we bought ($50!) that to get good results you can use up to 14 days. Have used it several times since then on my hand and it works really well.

 

Interesting and varied uses for it too.

That's right - I do recall asking about it before. So, it may not be best for arm & leg tingles since I would need to apply it all over?? Unless I used it right before a cool bath ;) .

Posted

S&S - Core has magnesium, in a specific proportion to the other minerals in the capsule. So don't want to mess with that. But thanks for the xo's

 

Jodie,

I think it's more circulatory or muscular than bone, but will check rather than assume. The stabbing pains are in the inner thigh and groin muscles - soft tissue - and the top of the foot. It's a new complaint, just this week

 

We're doing 30 chlorella/day from Mercola, which comes out to 10 grams/day. This is partly why I'm not thinking metals and I also haven't seen much in terms of intensity of behaviors, moods, or cognition - other than positive trends upward. His brain is working better than it has in years. (also giving ALA and milk thistle)

 

How do I do lymphatic massage in that area? Ankle massage, ball of foot massage?

 

The one thing I didn't mention is that in addition to Core, we were doing 2mg/day copper supplement. He tested low for copper prior to starting KPU treatment and I know Core can lower copper even further. So the LLMD added the copper for one week before starting Core. We saw improvements from that as well. But about 2 weeks ago, DS started getting nauseous when he took the copper. Threw up on 2 occasions. So I've backed off and now only give 2mg every other or every 3rd day. No more nausea when he takes it. But wanted to toss that in just in case it meant something.

 

As I said, he's complained of odd, "icky" feelings this week. Assumed it was due to his immune system starting to fight things. But I really appreciate your thoughts.

 

Bone pain has no specific manifestations. You are describing muscle insertion points meaning where the major muscles attach to the bone. That is a very painful high blood supply area and very often can be due to bone marrow inflammation because the growth plates are right there as well. Sometimes labelled as growing pains which is actually a diagnosis of exclusion. That too is fast being replaced by Chronic relapsing osteomyelitis, an autoimmune condition associated more in girls than boys with lyme and co.

Copper in trace amts is excellent for most of our kids. Copper is used as "bullets" by the immune system so if depleted it can lead to ramifications. ART or any other ebergetic method is best to determine dosage etc.I would stop copper if nausea occurs whihc means too much copper. Sometimes copper in a multivitamin buffers it (Physician's multi) but not if you're on a KPU protocol and doing the Core already. More like maintenance.

Bee venom oint is great when used with SyCircue lotion for inflammation related aches, pain, swelling, edema. Do test for allergic reactions with a patch test first.

Posted

I don't know the answer to your question, but I have the exact same symptoms. I get sharp little stabbing pains in random places. When it first started happening I used to slap at them, assuming it was a mosquito, or other biting bug. But I never saw a bug. Then it kept on happening in the winter when those bugs are not around. I looked closely and there is absolutely nothing there. This has continued to happen off and on for the past 15 years. Now DS7 (PANDAS, lyme) is complaining of the same thing. It does feel like a sting, but it only lasts half a second and then it's gone. We're diagnosed with lyme, bartonella, and probably babesia. I don't know which of those would cause this, or if it's something else. I also had ankle and foot pain in the past, where it hurts to stand on them. It felt like my ankles were very weak for no apparent reason. That symptom has gone away. If you figure out what it is I would love to know!

Posted

I don't know the answer to your question, but I have the exact same symptoms. I get sharp little stabbing pains in random places. When it first started happening I used to slap at them, assuming it was a mosquito, or other biting bug. But I never saw a bug. Then it kept on happening in the winter when those bugs are not around. I looked closely and there is absolutely nothing there. This has continued to happen off and on for the past 15 years. Now DS7 (PANDAS, lyme) is complaining of the same thing. It does feel like a sting, but it only lasts half a second and then it's gone. We're diagnosed with lyme, bartonella, and probably babesia. I don't know which of those would cause this, or if it's something else. I also had ankle and foot pain in the past, where it hurts to stand on them. It felt like my ankles were very weak for no apparent reason. That symptom has gone away. If you figure out what it is I would love to know!

The easiest way to understand is its a kind of neuropathy symtom. The nerves misfire and misinterpret due to information being scrambled at the myoneural junction (where the muscle meets the nerve ending)by the microbes.Can cause a myriad of sensations mostly unpleasant and can mimic neuropathy, myopathy etc.

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