vermontmoms Posted August 11, 2011 Report Posted August 11, 2011 Ok, I am getting pretty hot and need to vent and to get some help... My sons are being treated by Dr. L, we are on abx zithro but it is NOT working anymore!!! I called Dr. L's office 3 times now and have still not heard from Dr. L about my sons treatment/meds. My one child has gotten drastically worse over the last week and tonight he was almost seizure like. His arms were shaking like someone with Parkinsons his tic were so bad. I don't know how else to contact her and have made it very clear to the staff the issues we are seeing. Can anyone help? Is she always like this in returning calls? Do you know of another way for me to contact her? Thanks, Jen
JAG10 Posted August 11, 2011 Report Posted August 11, 2011 Jen- my girls have never seen Dr L, so I have no practical advice, sorry. I have felt your frustration and helplessness before and just wanted to send a little support your way. I hope you definitely get through to her before the weekend. Maybe someone has an email address for her out there? Hang on...
NMom Posted August 11, 2011 Report Posted August 11, 2011 Jen...we are patients of dr. L as well and have had similar issues reaching her. I've never gotten a phone call returned. Sometimes she will answer an email but I haven't had much luck. We had an exacerbation this summer and I was only able to get an answer to one email. Keep it short and to the point and you have a better chance, We actually have an appt to see her tomorrow and I will ask her how prefers to be reached. Sorry I'm not more help!
dcmom Posted August 11, 2011 Report Posted August 11, 2011 I think specifec Dr complaints need to be kept private. Dr L is one of the best, yet she is extremely busy. I suggest being persistent, and making an appt, also getting on her cancellations list.
MMC Posted August 11, 2011 Report Posted August 11, 2011 Jen, our son experiences his worse tics at night as well. Do you have anything to help him relax at night? We have found clonidine to be helpful, and we also dose with benadryl on occasion with no side effects noted. He takes the meds around 7:00 or 7:30pm, and it helps him to relax and fall asleep by 9:30. He can still have some rough nights, but this routine does help. Try some benadryl tonight, if nothing else. From what I have read on benadryl, it can be given consistently with no harmful side effects. We used to see Dr L as well, and she prescribed the clonidine.
vermontmoms Posted August 11, 2011 Author Report Posted August 11, 2011 I am not trying to talk badly about Dr. L, I just needed to know how to contact her. Thanks for all the replies!!! Jen
vermontmoms Posted August 11, 2011 Author Report Posted August 11, 2011 Also, dcmom...As much as I would love to get on her cancellation list my father was dx with stage 4 pancreatic and liver cancer and we are in Colorado taking care of him. Getting to her isn't as easy as it was when she was right down the road.
eljomom Posted August 11, 2011 Report Posted August 11, 2011 NMom--please keep us posted on what she says about contact with her between appointments. I get myself in a knot days leading up to our apts with her because I know if something happens between them, I am on my own. When I leave an apt., I always think of one or two things I wished I'd spoken about (even though I go in with a list, sometimes things come up in the appt. that I don't digest until we hit the parking lot!) We LOVE dr. L, but when you are putting all your eggs in one basket with a doctor, and they are your ONLY help, it is super frustrating to not be able to get replies...busy or not. So please let us know if you get the courage to ask her about this situation (not returning calls, etc...).
tpotter Posted August 11, 2011 Report Posted August 11, 2011 I agree...keep the email as short and sweet and to the point, and try to send it while she is in the office working. Also, do you think your pediatrician could try to call her for "direction?" Make sure he calls while she is in the office working (that's what I've been told by her office staff in the past), and lets the staff know that it's an emergency, and he needs to speak directly to her (preferably not a return call.) Dr. L. likes to know that there's someone "directing" things back home, so having the pediatrician call does help. She is very busy, and I think these suggestions will help you. But, she is truly excellent.
Bill Posted August 11, 2011 Report Posted August 11, 2011 Well - I will be blunt. She or her office almost never returns e-mails or phone calls. I found a new doctor. Good does not excuse bad behavior. Sorry - but it's the way I feel. bill
PhillyPA Posted August 12, 2011 Report Posted August 12, 2011 Dr. L is our doctor. I must politely disagree. I don't think it has anything to do with bad behavior. She is extraordinarily busy. The best way to reach her is to make an appointment with her. I know how really difficult that is when you live half way across the country. It seems nearly impossible to schedule follow up appointments every two or three months. However, that is what needs to be done. If your child is in an acute pandas episode or not yet back to baseline, the child needs to be seen by a specialist often. If you don't see the doctor often, it is uncomfortable for a doctor to change up meds over the phone. I sympathize with you and your situation. Having a very ill family member and then having to deal with pandas - UGH...
Chemar Posted August 12, 2011 Report Posted August 12, 2011 Hi just a reminder that it is preferred that members PM each other when it comes to critique of physicians. I'll be locking this thread now
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