Same s**t. Different Day

[Quinny]

Dear PANDAS Forum

 

I am a 27 year old male who has been suffering from PANDAS since I was 14. My symptoms have always been pretty bad but lately they've been out of control. It all started about 5 months ago when I underwent a course of IVIG. For about 2 month after the procedure I saw a little improvement, but then I was diagnosed with Mono. So I dealt with that for about 3 months and felt extremely tired and fatigued as you would expect. Since then I've suffered from severe depression and anxiety. I even had to quit my job. So since I quit my job I spend nearly all of my time secluded in my room watching television and movies. I sometimes go weeks without leaving the house and when I do I get very nervous and anxious. I hate living like this and feel like I'm wasting my life away. I feel like a complete loser and I hate myself and my life. I did see an alternative doctors who did a lot of test and it turns our I have Lyme's Disease. I'm going to start taking the antibiotics on Monday and I hope they will help. Yet I hear that I will probably feel worse before I get better. I feel like this disease has ruined my life.

[Malke]

Hey Quinny,

 

Hang in there! Sometimes things have to get worse before they get better, and it sounds like you're on the right path. The fact that you say you hate living as you are is GREAT because it means you have the personal conviction and energy inside of you to beat the PANDAS, the lyme, and whatever else. My daughter is almost six and when she says she hates something about what's going on it makes me feel hopeful, because I know she's still present, her 'self' is still inside, no matter what. Keep your healthy, happy self right in the center of your mind every day, and you'll be there before you know it. Also, do you keep a log or a rating for symptoms every day? Many parents here do it for their kids and it is really helpful to get perspective...I look back and see how much things have improved, or remind myself that we really did have some great days back in March, even though it's all felt really intense and unhappy. The mind is tricky, even if you are tracking PANDAS/lyme/whatever from the outside like parents are.

 

Take care, and hang on!

 

Malke

[philamom]

Quinny,

Please log on the lyme forum for support when starting your antibiotics. There are a lot of adults who post that are being treated for lyme themselves and can offer suggestions to help with symptoms.

Maybe also post this in the lyme forum as well??

 

Hang in there!!

[Wilma Jenks]

So Sorry Quinny. Please just take one day at at time. I am glad ur speakin about it. It will get better now that you learned about the Lyme thing. Please keep us posted.

[tpotter]

Try taking activated charcoal or bentonite clay to help with the herxing. Also, please post on the Lyme forum, because you will get phenomenal support and suggestions from that.

 

Are you seeing an LLMD for your Lyme?