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About Malke

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  1. I'm not sure an all-in-one vitamin would be enough. Do you have anyone to help sort that out for your specific situation? Our DAN suggested, based on dd's results (similar to your son's), the supernuthera multi which has added B vitamins, a seperate calcium chew and a magnesium powder, all from Kirkman's (dd does not swallow pills). I give dd two adult scoops of the Custom Probiotics daily, for a total of about 400billion CFUS daily. DD was on abx for two month when we thought it really was PANDAS and she had no yeast issues thanks to the high doses. We essentially fought her gut yeast
  2. Hi Suzanne-- Do you have a DAN to talk to about this? I found this link to be helpful in reading both our OAT test results: http://www.greatplainslaboratory.com/home/eng/Clinical%20Significance%20of%20the%20OAT.pdf Also, I think you can call Great Plains and go over the results with someone. Aribinose is a marker for yeast. You'll need to start or increase probiotics. We get ours (all their stuff is strep strain free, I believe) from Custom Probiotics. It's a fabulous product. Low Vit C indicates a stress response in the body, and that the body needs more. DD is 41 lbs and
  3. Oh, one more thing. I, too, had the question about boosting an already overactive immune system and our integrative doc says you have to be very careful about supplements like echinacea, that the body can come to rely on them. He says that it's possible to use them periodically, but not on a regular basis.
  4. Our new integrative D.O. speaks to non-typical allergies (which can cause an autoimmune reaction in the body in various organs, depending on genetics) in this way (different analogy, but essentially the same thing). For us allergies are presenting neurologically, very similar to PANDAS, and not like the typical sneezy/wheezy/life threatening ones. As I work to remove and/or rotate allergy foods (identified from a combined IgE/IgG4 food panel) and take into account 'total allergen load' (chemical, pollen, viral, food, life stress, etc.) I have to make sure the 'bucket' doesn't overflow becaus
  5. Hey Quinny, Hang in there! Sometimes things have to get worse before they get better, and it sounds like you're on the right path. The fact that you say you hate living as you are is GREAT because it means you have the personal conviction and energy inside of you to beat the PANDAS, the lyme, and whatever else. My daughter is almost six and when she says she hates something about what's going on it makes me feel hopeful, because I know she's still present, her 'self' is still inside, no matter what. Keep your healthy, happy self right in the center of your mind every day, and you'll be
  6. How long did your daughter's rash last? Did the same type of rash come and go over a certain period of time? Thanks.
  7. If you read Dr. Doris Rapp's book "Is this Your Child?" she helps make sense of non-typical allergy reactions to both food and environmental triggers, like chemicals in the pool. Sometimes these non-typical allergy reactions can present as a neuropathy, similar to PANDAS symptoms. Our daughter had really intense reactions this summer after swimming in an outdoor pool, sometimes hour-long rages, but things improved when we rinsed her off before hand and soaped her down in the showers right after. I kept thinking that it wasn't so much the chlorine but all the other things in the water -- no o
  8. That's such great news!!! (love the dancing banana!
  9. absolutely yes! Do you suspect Lyme? we do now have a dedicated Lyme forum here http://www.latitudes.org/forums/index.php?showforum=19 I think a LLMD is our next stop. Considering we have neighborhood deer numbering in the 20's, who also hang out in our yard, I think it would be worth checking out, even though when we started abx she only got better, no herxing. Hmmm...I think it'd be a good thing to rule out, though. She's two days off garlic and one off mustard (newly documented IgG allergy for mustard) and I think I've seen some improvements. It seems to go good day/ba
  10. If it's food related, I think it's something I haven't found yet, but I'm still looking/experimenting. We are free of artificial additives. Pretty much 100% whole and lightly processed foods. There is some family history of tics, but limited. I originally thought all this was PANDAS, but we have no clear infetious trigger, no known strep event except for me getting sick last Jan (2010) and using an probiotic for 6 months with a strep strain in it. Her titers showed no evidence of recent or past infection for Strep, but I know this doesn't always mean that strep is not involved. Her
  11. How much is too much? She doesn't use computer or play video games. The only time she has is during her Quiet Time when she watches videos, but usually she's drawing or making something at the same time or dancing along.
  12. Thanks Chris, Actually, casein is the milk protein, so it's in milk and cheese and also even in things that don't seem like dairy -- it was in her soy cheese, for example (go figure). I'm thinking I'll just try to be patient and if things don't change in the next two weeks I'll dig into it again. It's hard to be patient.... ;-) Malke
  13. Hi, DD5 has been suffering from a host of neuropsych symptoms since November and things are improving with attention to inflammation (Enhansa, Ibuprophen). We're still not clear about the trigger. Unfortunately, the only thing that has not improved and that has actually worsened are her facial tics. I have been documenting food/behaviors/tics for over two weeks now and see no correlation to when the tics calm down or when they flare. DD has been off gluten, casein, soy, corn and yeast for 13 months. She never had a tic before this last November. She's been off eggs for two w
  14. My daughter's biggest issue is around emotional outbursts and really rude language, not just potty mouth. I often tell her that I can tell which are her hard days and which are not, and that there are days when I *know* she can use her big kid voice to ask for things, or talk to me politely, or phrase things as a request, etc. I tell her that there are some days I just *know* the 'flamey-wameys' (her term) are taking over and that I let things slide on those days. BUT, on the days that she's clear but still behaving like she's not, I remind her that she's fine today and remind her of my exp
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