update on igenex

[Tamistwins]

For those of you who have been following my desperate posts from time to time and decline in my children's behaviors even after 2 IVIG's and a handful of different antibiotics well... to my disbelief my daughter has tested positive on igenex iGM results. A positive result suggests exposure to B burgdorferi.

**31kDa +

**41 kDa +

**83-93 kDa +

 

Igenex IGG negative

30 kDa +

**39 kDa IND

**41 kDa ++

 

Can anyone explain these numbers?

 

co-infections negative

 

 

My sons results were all negative but he will be treated for bartonella he will be taking azithromycin, omnicef, rimfampin, and 8 days tindanax I hope I got those right. My daughter will be put on same meds but hasn't seen Dr. J we will have to wait till MAY. only + is for 41 and 58 ++

 

Thanks for any input,

Tami

Edited February 24, 2011 by Tamistwins

[LNN]

These links might help you with the results

Explaining Western Blot tests: http://flash.lymenet...TML/022767.html

 

WB for Lyme: http://www.anapsid.org/lyme/wb.html

 

Understanding the WB: http://www.lymenet.d...sts/brenner.htm

 

This link talks about both lyme and bartonella

http://www.benbrew.com/lb/lb.html

(the author - not a doctor- is pro antiobiotics and not supportive of "naturals" - I mean no disrespect to anyone who feels otherwise. I only post the link because, unlike many blogs, this one has a lot of citations and a good "recommended reading" list at the end.

 

It took me a long time to make room in my head for lyme, even tho we live in CT (where 90% of the deer tics carry lyme). We had such a strong correlation of symptoms to strep that I thought no way could it be anything but Pandas. I have no idea if I'm right, but what I've come to believe is that the tick bite came first, then a few months later, the first strep infection came and put my son's immune system over the edge. I think it might've been a 1-2 punch that made things so bad and also so hard to unravel.

 

When we first got the lyme/bartonella dx, I was crushed. It was just too much. But after starting a different abx combo and a few supplements to support his body, he's doing so much better - not perfect (yet) but this was the breakthrough we'd been praying for. So try to look at it as a positive. It's a good next step...

Best of luck!

 

Laura

[Tamistwins]

Thank you for the links as I haven't researched lyme. Dr. J does not feel its lyme and not pandas for us. Its both. My children have many documented strep after strep infections that have wreaked havoc on their immune system. Then a bad infection strep that wouldn't go away after10 days antibiotics and my son began banging his head on hard objects. He doesnt show a pos itive lyme but we are treating as such.

[Ozimum]

Hi Tami,

Very best wishes for this next stage - I'm hoping it involves a whole lot of healing - for your twins and you! Big hugs!

[adkmom]

For those of you who have been following my desperate posts from time to time and decline in my children's behaviors even after 2 IVIG's and a handful of different antibiotics well... to my disbelief my daughter has tested positive on igenex iGM results. A positive result suggests exposure to B burgdorferi.

**31kDa +

**41 kDa +

**83-93 kDa +

 

Igenex IGG negative

30 kDa +

**39 kDa IND

**41 kDa ++

 

Can anyone explain these numbers?

 

co-infections negative

 

 

My sons results were all negative but he will be treated for bartonella he will be taking azithromycin, omnicef, rimfampin, and 8 days tindanax I hope I got those right. My daughter will be put on same meds but hasn't seen Dr. J we will have to wait till MAY. only + is for 41 and 58 ++

 

Thanks for any input,

Tami

 

Tami,

 

I'm over on the Lyme board mostly now. But my ds4 diagnosed Pandas initially then to my surprise and Dr. B's he tested positive at Igenex for Lyme. Basically, if you have positive 31 that's Lyme specific, so he definetly has it AND he's had it for at least one year. 41 is another band that indicates a definete LD. You may want to post on the Lyme board and you'll get a lot more experienced mom's giving you advice.

 

darlene

[philamom]

For those of you who have been following my desperate posts from time to time and decline in my children's behaviors even after 2 IVIG's and a handful of different antibiotics well... to my disbelief my daughter has tested positive on igenex iGM results. A positive result suggests exposure to B burgdorferi.

**31kDa +

**41 kDa +

**83-93 kDa +

 

Igenex IGG negative

30 kDa +

**39 kDa IND

**41 kDa ++

 

Can anyone explain these numbers?

 

co-infections negative

 

 

My sons results were all negative but he will be treated for bartonella he will be taking azithromycin, omnicef, rimfampin, and 8 days tindanax I hope I got those right. My daughter will be put on same meds but hasn't seen Dr. J we will have to wait till MAY. only + is for 41 and 58 ++

 

Thanks for any input,

Tami

 

Tami,

 

I'm over on the Lyme board mostly now. But my ds4 diagnosed Pandas initially then to my surprise and Dr. B's he tested positive at Igenex for Lyme. Basically, if you have positive 31 that's Lyme specific, so he definetly has it AND he's had it for at least one year. 41 is another band that indicates a definete LD. You may want to post on the Lyme board and you'll get a lot more experienced mom's giving you advice.

 

darlene

Band 41 is usually the first band to appear with lyme, but it's not lyme (Bb) specific. That's my understanding. I also was told band 31 means it's been at least 6 months, more likely a year or longer.

Edited February 27, 2011 by philamom

[eljomom]

Band 41 is NOT Lyme specific, from what I have been told. A huge portion of the normal (uninfected) population will test positive for it.

Also, unless you do the Band 31 confirmation test on Igenex, I would not make Band 31 be the ONLY reason to believe Lyme. My daughter's Band 31 was ++ and ended up being negative on confirmation test.

[Wilma Jenks]

When I told Dr. K, that my child had a possitive band 41,on a blood test, he said it was unlikely that it was Lymes. We just did the Igenex test yesterday. Can't wait 2 c what it says.