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Ozimum last won the day on June 11 2013

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  1. Just a thought...This might be totally out there but as well as checking out PANS, it might be worth investigating MCAS (Mast Cell Activation Syndrome) Look up the list of symptoms and see if they sound like you. No harm done if it's not. Good luck!
  2. Hi Tiger, I'm posting a link to a 2012 conversation about practitioners in the UK, just in case you haven't seen it. Wombat has been active again recently on this forum. http://latitudes.org/forums/index.php?showtopic=18047&hl=wombat#entry143554 I suspect you will have to do some ringing around until you find someone who sounds like they may be able to help. I think your best bet will be those medical practitioners who have recently trained in the DAN (Defeat Autism Now!) protocols - it's called something else now (MAPS) - see: http://www.medmaps.org/ They have a list of practitio
  3. Hi Jane, My message to you comes up as unread and that you have a block on receiving private messages. Hopefully if you unblock messages, it will come through...if not, send me a message to let me know and I'll resend.
  4. Jane - I've sent you a private message - see the top right hand corner of this screen
  5. Hi Jane, I'm in Australia (Melb) too and have found that Biomed trained doctors and medical practitioners know about PANDAS. There are two parent run organisations in Australia who bring doctors mostly from the USA to do regular training in Biomedical protocols with doctors/medical practitioners in Australia - they are MINDD Foundation and Biobalance/Walsh Institute. Check out their websites for more info - don't be too concerned if you don't find PANDAS/PANS mentioned, the more recently trained drs will certainly know about it. Both websites have lists of practitioners by state. Our Biomed d
  6. Found a previous thread on red ears - http://latitudes.org/forums/index.php?showtopic=16025&hl=fenol#entry129051
  7. Just a thought - I believe phenols can cause bright red ears, along with other symptoms. I'm thinking sweet potato may be high in phenols...?
  8. Omega 3 assists in reducing inflammation and helps Th1 lymphocytes defend against infection and viruses. We used an EPA/DHA combo along with other supplements. Fish oil also helps my elderly dog - we're all on it!
  9. Hi Mummadee, So sorry you have had to find yourself here but glad you found us. There is hope! I will send you a private message with some recommendations - I am protective of our doctors because they stick their necks out to help our kids and I don't like to use their names on-line. However, I suggest you have a look at the following Australian websites, which have practitioner lists by state. These are two not-for-profit organisations established by Australian mums who bring experts in from overseas (mostly the USA) to train our medical practitioners in Biomedical protocols, which ha
  10. This article has just been published in FASEB Journal - It made heaps of sense to me and explains why Vitamin D and Omega 3 helped DS. "Vitamin D hormone regulates serotonin synthesis. Part 1: relevance for autism" Full article can be found here: http://www.foundmyfitness.com/wp-content/uploads/2014/02/Ames-paper.pdf
  11. We did a gluten free, dairy free, low grains, low sugar, little potato diet to help heal the gut...to reduce inflammation. DS had overgrowths of strep and staph and was VERY low on E coli which should be there. As a result of these overgrowths his gut wasn't absorbing the food he ate and he was skinny. The gut is fundamental for neurotransmitter production. DS did not test as having a sensitivity to gluten, only to dairy products. We changed our diet to support gut healing as one aspect of the treatment we undertook, in order to give DS the best possible outcome. It took several months before
  12. Hi Rowingmom, I agree with LLM. Walsh's book is a slim volume which is a reasonably easy read and an intro to a fairly broad topic. While he doesn't mention PANDAS/PANS, he covers a number of different conditions from Autism to Bipolar to Alzheimers and talks about Epigenetics. After a couple of years on this forum I felt I'd read most of what it covered (thanks to wonderful posters like LLM!) and I'd hoped for more. But at least he published something which can help to work against those closed off minds in the medical world who prescribe all sorts of stuff to our kids but consider sugges
  13. Yes, my DS now 19 has done really well with nutrient therapy as a major part of his treatment - along with abx. The way I see it, targetted nutrient therapy got his system working at an optimum level, so he had a greater resistance to colds - and no colds meant less chance of bacteria getting a hold to wreak havoc. Improvement didn't happen over night but slowly and steadily over about 18 months to two years. He's doing great! Medical researcher Dr Bill Walsh has written a book called "Nutrient Power" and has links with the drs at Mensah Medical. They and others come to Australia regularly
  14. Hi Shelds, So sorry you've had to deal with this for so long but I do think there's some hope. I'm in Melbourne and found Biomedical practitioners here in Australia are the most likely to have heard of PANS/PANDAS and will treat it, along with other conditions, including OCD. (A biomed dr helped my 19 year old son and he's now my number 1 hero!) I suggest you check out the websites for the following organisations who train health professionals here in biomedical protocols - Biobalance/Walsh Institute and MINDD Foundation. These biomedical protocols came out of the DAN! (Defeat Autism Now!) mo
  15. Yes...Dr C is on both the website practitioner lists - search for WA practitioners and you'll find her. Try biobalance.org.au
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