Bad doc appt and Jaw Pain

[Suzan]

Bad experience with my hopeful new doctor. She is not a lyme doc but an integrative medicine doc so I thought she would be open minded. But she's in the CDC camp so it was a bust. I was not hoping for lyme treatment from her but for local support with the whole thing and willingness to work with the llmd's. She will work to prove I don't have lyme I think. I guess someone trying to prove that might uncover some other things but I don't really need the fight right now. Her explination to the improvement on abx was that I probably had something else that responded to the abx but that I should go off everything now and see how I'm doing. Time to get serious about finding a new LLMD.

 

 

I have unexpected jaw pain tonight. It came about after I did my exercising and sauna. It feels like it's almost popped out of joint and hurts when I chew (I actually can't chew). I hear this can be a herx or lyme symptom but I've never experienced it before. Other than that, I'm feeling really good today. It's the first day in years that I actually felt better after exercising. I'm up to 10 min on the treadmill and 2 min on the mini-tramp. My LLMD wanted me to ramp it up and start building up to more so I'm trying.

 

I guess I just wanted to talk to my lyme family tonight after my bad experience today of having to try to defend my position to that doc.

 

s

[smartyjones]

but an integrative medicine doc so I thought she would be open minded. But she's in the CDC camp so it was a bust. s

 

 

integrative dr. . . . CDC camp -- seems like an oxymoron!

 

sorry to hear. go to bed. . . . tomorrow is a new day!

[NancyD]

Oh Susan, I am so bummed. I had so hoped this doctor would work out for you and your girls. Now what...are you thinking of going to MD? Don't waste your energy on a naysayer who is looking to prove you wrong. Who needs that!

 

I'm so sorry you're having pain in your jaw. I have had TMJ so I know how painful it can be. I don't see why it couldn't be tied to LD. after all, it's a joint. I suggest ibuprofen or Aleve and if you can get your hands on any Valium (that works great!). Also, try some jaw exercises. Tighten your jaw as tight as you can, then slowly let all of the muscles go. Also, try pressing on your jaw muscles just under your ear lobes. Sometimes pressing there can alleviate some of the pain.

 

Smartyjones, I laughed outloud at your comment...integrative doctor and CDC camp do indeed seem like an oxymoron.

 

Nancy

Edited January 26, 2011 by NancyD

[sf_mom]

What a bummer.... I've been to those types of Dr. with regards to PANDAS. I was always thankful when I moved on. Dr. B is farther but still a good choice.

 

-Wendy

[lyme_mom]

Bad experience with my hopeful new doctor. She is not a lyme doc but an integrative medicine doc so I thought she would be open minded. But she's in the CDC camp so it was a bust. I was not hoping for lyme treatment from her but for local support with the whole thing and willingness to work with the llmd's. She will work to prove I don't have lyme I think. I guess someone trying to prove that might uncover some other things but I don't really need the fight right now. Her explination to the improvement on abx was that I probably had something else that responded to the abx but that I should go off everything now and see how I'm doing. Time to get serious about finding a new LLMD.

 

 

I have unexpected jaw pain tonight. It came about after I did my exercising and sauna. It feels like it's almost popped out of joint and hurts when I chew (I actually can't chew). I hear this can be a herx or lyme symptom but I've never experienced it before. Other than that, I'm feeling really good today. It's the first day in years that I actually felt better after exercising. I'm up to 10 min on the treadmill and 2 min on the mini-tramp. My LLMD wanted me to ramp it up and start building up to more so I'm trying.

 

I guess I just wanted to talk to my lyme family tonight after my bad experience today of having to try to defend my position to that doc.

 

s

I laughed when you called us your lyme family :-). I don't understand how integrative doctors can just avoid treating lyme b/c a large number of their patients are going to have it. I know your appt with Dr. Beals will be a whole different experience :-).

[kmom]

I have discussed my inner ear pain w/ Dr. B in MD. It's always in my right ear upon waking if I sleep on that side. I have a high pain tolerance but this pain is BAD and piercing. Dr. B told me that it's most likely related to jaw issues and he sees it a lot in Lyme patients.

[Stephanie2]

This is what makes us warriors. The battle everywhere we turn.

 

On a separate note, I have not been tested yet, I highly suspect myself, my boys and my mom have lyme. We ALL have TMJ (well, except for maybe my 2yo who can't talk yet...).

[MichaelTampa]

Yes, TMJ issues is a symptom for some with lyme. Delicious joint tissue there.

[pixiesmommy]

My chiro adjusts my jaw each time we go and does cranial work too- that seems to help for awhile.

 

Have you ever had teeth removed? I just found out I have "residual cysts" which is infection in my tissue now from teeth removed 10 and 20+ years ago!!! So I have been walking around with this infection all this time and had no idea. I have been diagnosed with sinus infections when it was really tooth-related. I wake up with terrible ear pain too and my ears are clear.

 

Anyway, just some other things to think about.