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Update, Part 3 ( Are You Kidding Me)


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Merry Christmas to all of the parents on this forum! Thank you as always for all of your support. Great news......I finally found a doctor here in NC that will treat PANDAS. I read about him thru finding another mom online. On facebook actually. So get this:

1. The doctor is only 25 minutes from my house

2. The got me in the next day......now I had to cry to make that happen, but it worked and we were actually squeezed in the next day.

3. The doctor read over dd 7's history w/ strep, her diagnoses of OCD summary from Duke, and her recent bloodwork, and looked at me is disbelief that it had taken us so long to find a doctor that understood. He actually shook the paper with her bloodwork results on it, and said very loudly "This is elevated!!!!" "This is PANDAS" He couldn't believe how many doctors that we've been through trying to find one to help.

4. He put her on a 1250mg Kelflex/day and told us to come back in one month and evaluate how the meds are working.

*****IT was the BEST Christmas present in the world! Hopefully she can now work on getting better and feeling better......I'll keep you posted on the changes that we see with Kelflex.

MERRY CHRISTMAS EVERYONE!!!!!!!!!!!!!!!!!!!!!!

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Yay!

 

are you doing the Kelfex 2x a day?

Yep, twice a day.....for a total of 1250mg/day.

The office is ABC pediatrics in Dunn, NC. It's dr. Deckert.

**** So far, dd7 has slept in her bed all night the past 3 nights in a row.....which is a big deal, and she hasn't told me that she doesn't feel good in 3 days......also a big deal. Counting our blessings right now, first the medicine, then Christmas, then a foot of snow! What a way to end this year huh? Thanks everyone! :wub:

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That is such great news! Can I ask who you are seeing in NC? We're trying to get in to see Dr. Corbier in Charlotte, but we won't be able to see him until April 4th. We live in the Greensboro area. My son is having a very difficult time right now and the thought of waiting 3 months seems almost unbearable, so we'd love it if we could find another doctor if we could arrange an earlier appointment.

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That is such great news! Can I ask who you are seeing in NC? We're trying to get in to see Dr. Corbier in Charlotte, but we won't be able to see him until April 4th. We live in the Greensboro area. My son is having a very difficult time right now and the thought of waiting 3 months seems almost unbearable, so we'd love it if we could find another doctor if we could arrange an earlier appointment.

 

Oh, sorry I just noticed the reply above contained the information. Thanks for sharing and best wishes!

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