Phasmid Posted October 13, 2010 Report Share Posted October 13, 2010 Hello all, I am over on the PANDAS forum, but thought of asking this here: Do any of you have Lyme disease and trichotillomania? This is hair pulling. My son only pulls eyebrow/lashes. He has PANDAS (tics, ocd that remit with treatment. The overall, general anxiety has improved as well, however, the pulling just won't. He briefly stopped while on 30 prednisone, and NAC, but is pulling again. I am seriously wondering about borreliosis now, since he grew up hiking and in woods here in CA in a Lyme positive area. Do many of you have children with trich? Not many on PANDAS forum, but a couple. Thanks, Mary Link to comment Share on other sites More sharing options...
PacificMama Posted October 13, 2010 Report Share Posted October 13, 2010 Yes, it can be a symptom -- just part of the whole spectrum of neuro symptoms. I think anybody here who has had definitive exposure to lyme endemic areas should most certainly test for these infections. Mary Link to comment Share on other sites More sharing options...
sf_mom Posted October 13, 2010 Report Share Posted October 13, 2010 Mary, My older 'PANDAS' son was hair pulling shortly after sudden on-set. Thankfully, that symptom has resolved with treatment.... PANDAS/Lyme protocol. As you know, I am in Northern CA and can help point you to the right Dr.s to be properly evaluated for LD/co-infections if you are interested. We have two highly respected LLMD in our area. Please p.m. if you would like their information. -Wendy Link to comment Share on other sites More sharing options...
Phasmid Posted October 13, 2010 Author Report Share Posted October 13, 2010 Thanks to both of you. My son has had repeated courses of antibiotics, which put tics/ocd in remission each time. He has had one 30 day course of pred, and one five day burst. How is treatment for Lyme Disease different than that for PANDAS? Mary Link to comment Share on other sites More sharing options...
sf_mom Posted October 13, 2010 Report Share Posted October 13, 2010 Multiple antibiotics, cyst buster antibiotics.... anti-malaria drugs if babesia is involved. -Wendy Link to comment Share on other sites More sharing options...
philamom Posted October 13, 2010 Report Share Posted October 13, 2010 (edited) y Edited April 29, 2012 by philamom Link to comment Share on other sites More sharing options...
Fixit Posted October 14, 2010 Report Share Posted October 14, 2010 Hello all, I am over on the PANDAS forum, but thought of asking this here: Do any of you have Lyme disease and trichotillomania? This is hair pulling. My son only pulls eyebrow/lashes. He has PANDAS (tics, ocd that remit with treatment. The overall, general anxiety has improved as well, however, the pulling just won't. He briefly stopped while on 30 prednisone, and NAC, but is pulling again. I am seriously wondering about borreliosis now, since he grew up hiking and in woods here in CA in a Lyme positive area. Do many of you have children with trich? Not many on PANDAS forum, but a couple. Thanks, Mary hey mary.... were you able to get the nac up to the dose you were on before??? maybe it just needs a little longer...how long did it take last time??? and i think...i didn't read the study..but should stay on it for months after or indefinitely for trich... Link to comment Share on other sites More sharing options...
JTs-Mom Posted October 14, 2010 Report Share Posted October 14, 2010 My son pulled and twirled his hair for several weeks. He actually had a little bald spot on the back of his head. His primary symptom is motor tics, but he seemed to have a little more control over the hair pulling, so I viewed it more like a compulsion than a tic. I would suggest an alternative to him (rub gently instead of pull/twirl) and he seemed to respond to this. I don't recall it lasting more than a month or so. Link to comment Share on other sites More sharing options...
Phasmid Posted October 14, 2010 Author Report Share Posted October 14, 2010 WOULD IVIG HELP THIS???? No, Fixit (btw, what are you doing over here ? didn't get up to full dose of NAC. I HATE giving meds and i quit after the lashes/brows grew in (can you say "stupid") hey mary.... were you able to get the nac up) to the dose you were on before??? maybe it just needs a little longer...how long did it take last time??? and i think...i didn't read the study..but should stay on it for months after or indefinitely for trich... Link to comment Share on other sites More sharing options...
Fixit Posted October 14, 2010 Report Share Posted October 14, 2010 WOULD IVIG HELP THIS???? No, Fixit (btw, what are you doing over here ? didn't get up to full dose of NAC. I HATE giving meds and i quit after the lashes/brows grew in (can you say "stupid") hey mary.... were you able to get the nac up) to the dose you were on before??? maybe it just needs a little longer...how long did it take last time??? and i think...i didn't read the study..but should stay on it for months after or indefinitely for trich... i saw you here...and i'm like a lamb hey and when i was typing this, it came to me secondly that your name is..."mary"..i'm not quick...it's the wine i just read jt. comment..and ds pulled too....just started nac here...but for allergy purposes...and i will continue....i think....into next summer...but only doing about 350mg....(i think my ds trich is allergy related) and ds also will rub and fiddle with hair and not pull if i keep on him...(i think more compulsion w/sensation also)...and send right to shower with solinium shampoo will ivig help this..i would like to know too Link to comment Share on other sites More sharing options...
philamom Posted October 14, 2010 Report Share Posted October 14, 2010 (edited) WOULD IVIG HELP THIS???? No, Fixit (btw, what are you doing over here ? didn't get up to full dose of NAC. I HATE giving meds and i quit after the lashes/brows grew in (can you say "stupid") hey mary.... were you able to get the nac up) to the dose you were on before??? maybe it just needs a little longer...how long did it take last time??? and i think...i didn't read the study..but should stay on it for months after or indefinitely for trich... i saw you here...and i'm like a lamb hey and when i was typing this, it came to me secondly that your name is..."mary"..i'm not quick...it's the wine i just read jt. comment..and ds pulled too....just started nac here...but for allergy purposes...and i will continue....i think....into next summer...but only doing about 350mg....(i think my ds trich is allergy related) and ds also will rub and fiddle with hair and not pull if i keep on him...(i think more compulsion w/sensation also)...and send right to shower with solinium shampoo will ivig help this..i would like to know too y Edited April 29, 2012 by philamom Link to comment Share on other sites More sharing options...
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