JenniferG

Megs Predominant Bacteria also showed Prevotell sp at 7.8 Which is in the High range. I looked this up and it is typically found in the oral/sinus cavity! I wonder....could this be the cause of her chronic sinusitis? Is it high enough to indicate this?

Tics stopped when I stopped ABX..hmmm

I posted earlier about Meg's Metamatrix results. Here are some additional things I am curious if or how you treat. Her good bacteria Lact and Bifido were OK.....on the low side but not indicated low. ... I was giving her 300 billion Culturelle a day at the time. The DO was shocked and said I was over doing it. He gave me a probiotic of 100 billion with both laco and bifo in it at one time a day. When we got MEtamatrix test results he said to continue the 100 billion. She was doing VERY well (nausea and belly upset wise) on the 300. Her Sac B was elevated at 3+. I was giving her 4-6 Florastor a day. I stopped it because i noticed an increase in her "hurting spot symptoms" and increase i anxiety when i gave it to her. With the results, he didn't recommend anything for the high Sah B. said it was beneficial. She was a6+ for H Pylori. He isn't treating that yet. She is nausea us, has a decreased appetite and heartburn. She had 3 parasites...b hominis, e nana and third wasn't able to be identified. She is allergic to Flagyl. He called in Alinia, the pharmacy needs to order, so we get it on Monday. Since she was C Diff neg. I tried to restart her Amox. I also added in her Prevacid. After a few doses I began to see a decrease in anxiety and OCD, nothing magical, but a consistent slow decrease, but she started with a throat tic....she hasn't had a tic 5 years!. She also noticed it. I am SO darn nervous about the C Diff that when she complained of severe nausea this AM and had the ill look, I didn't giver her the Amox. I gave her Azithromycin instead......GI said that was less likely to cause C Diff..so then she has a complete meltdown later on......pacing, crying..."so sad", suicidal thoughts......I ended up giving her the Amoxil. So.....did she tic because the Amoxil was working? Did she melt because the Amoxil worked aNd the Azithromycin didn't. Does it really help/not help that quickly? Should the high Sach B be treated? While we were waiting for the results the only thing she was on was the 100 billion and she was stable. Still had OCD/anxiety but no big fluctuations. I need her back. I never thought we would be this far. Oh, and her Anti Gliadin sigA was high at 7. So, we have been GF for 2 days ( with all 3 kids) and we have a noticed a LARGE decrease in the hyper behavior and the loudness level.....they always seem to be screaming, and just loud in general...for the passed 2 days it has been much more pleasant here. We went to a b day part today AND went out to eat after. Something we never ever do because of their hyperness. At 6:30 the boys were asking to go home because the were tired! Normal for GF in the beginning?

Has anyone treated Parasites with ( or heard of Alinia)? DD is allergic to Flagyl, so this was their next choice. She also has H Pylori. What would you treat first? I would think H Pylori. I don't know why... Anyway, I guess the usuall treatment is 3 days and the MD wants 14 days. Insurance with cover 3 days. Then it's $125/3day treatment after. I (without MD advice)....I know shame on me...started her back on her Amoxicillin (since I had proof no C Diff) and also added in her Prevacid from her reflux days. This is the H Pylori treatment. I see a diminish (albeit slight....it's been 2 days) in OCD and anxiety. I was hoping to get a jump start on treatment...now they are treating Parasites first!! I don't want to tell him for fear of cutting me off. And I def don't want to stop any progression.. Any suggestions???? I tried calling Dr. T, but he is having a difficult time right now..

My dd tested positive for C Diff. She didn't get better after several treatments. We did a compressive stool analysis and she showed H Pylori and 3 parasites. Her anxiety and OCD are through the roof. She has not been in school this year, at all. May I ask what lab she tested positive for c-diff with? thx She tested positive with Clinical Lab Partners. Here in CT.

My dd tested positive for C Diff. She didn't get better after several treatments. We did a compressive stool analysis and she showed H Pylori and 3 parasites. Her anxiety and OCD are through the roof. She has not been in school this year, at all.

She did have her tonsils out. We have increased probiotics and are waiting for treatment plan. Thanks!

Meg's result was High at 7. It says it is a screening marker for gluten sensitivity. My question is this... If she was on say a 85-90% gluten free diet at the time of the test, does that mean she is REALLY gluten sensitive because she was consuming so little OR does it mean that regardless of what the consumption is she is sensitive? It also labeled it as high but then said reference range was <=21.4 mg/dl

H Pylori was adiagnosis Meg has gotten I am waiting for the treatment plan. Anyone have a natural additions to what they might prescribe?

We received our Metamatrix Stool analysis results today. A. No c diff!! Maybe that's why she's not responding to treatment. B. 3 different parasites. C. Low on bifo bacterium and D. H Pylori. Also her Anti gliadin sig A was high at 7. We are waiting for the MDs treatment plan. But would anyone like to chime in? Treatment, questions to ask him? Thanks.

Is this the ame as the Courtagen test?

I am new to this forum. The more I learn about treating my children for PANDAS, the closer it gets to gut healing and Austism healing. I would like to know if anyone can recommend a DAN MD in CT. Thanks

Just wondering how these issues were (if) resolved? We did the same Metamatrix test for dd and are awaiting results. My ds5 complains of a bellyache EVERYDAY several times a day. He is on acyclovir for HSV1 and it is working great. Stopped wetting the bed, regression improving. But I am wondering if he has other belly issues. All 3 of my kids have chronic sinusitis.

Does activated charcoal work the same way?

Shipped a stool specimen to Metamatrix Wednesday. How long is the typical wait for results? I am in CT. They got it around 4pm today. Thanks!!!

We saw our LLMD this week and changed a few things. He added 5-MTHF. DD has the 1298C mutation. What should I expect? And is it immediate?

Double post

It is a prebiotic. It feeds the bacteria. It helps it multiply more in the gut. ......is my understanding.

The same thing just happened to me....they have 2 different adult versions. One has inulin and one doesn't. I believe the one labeled "Digestive Health" is the one that does.

May I ask which MD you saw that did such thorough testing?

Thank you so much for all the helpful posts. To answer a few questions... She had IVIG Nov 27th we saw a huge improvement the next day that lasted for a day. Then small improvements until she got a sinus infection and C Diff...then regression. We saw GI today... She said to stop Vanco. That some of Meg's symptoms could be side effects of Vanco. And call her if she gets diarrhea...she said she doesn't have C Diff w/o diarrhea. I was so frustrated needless to say. Dr. B. recommended against steroid because he said it will help the C Diff flourish. I don't why, but just today I remembered about Motrin. I will try it tomorrow. we tried Enhansa (it was way to much for her), ABio ( the same....really bad die off with 1 drop), She seems to handle Oil of Oregano well......any info on how much and how often? The GI recommended Culturelle because of the gaurantee of the viability of live cultures. I gave her 1/2 a Zithromax tonight and because it stays in your system for a day, I will ramp up probiotics tomorrow and skip Zithromax until Wed. And continue to see if that helps. She also is dairy free, mostly gluten free and we do Epsom Salt baths....which are very helpful. I am waiting for the Pyschologist office to call with an appointment, Of all the reading about C Diff, I haven't heard to do GSE...I will read abut that tonight!!! Thank you so much for thoughts and prayers.

My 9 yo dd was diagnosed with C Diff in Sept. we are on our 4th round of abx. Tonight she started crying and said she wishes she could lay a mattress on herself to stop breathing, or just hold her breath until she dies. I was floored. She has been out of school since Sept. she REALLY needs her abx, but can't becasuse of C Diff. I already have a call in to a Psychologist, for anxiety,..... She said her brain is taking over and she can't control what it thinks and she is scared it is going to make her do something. I calmly told her we loved her, she was safe, the infection was making her think that way and that it wasn't her, that she will always be in control, to ALWAYS tell me when those thoughts enter her head...even if its over and over again. I will call the Psychogist again fist thing in the AM..any other advice? This scares the day lights out of me... We have a suicide on each of my husband and my side if the family. Also, Was wondering if someone had some insight on C Diff..... She was Vanco again for 2 weeks every 12 hours. Stopped Thurs...down hill from there..we see GI tomorrow. When I add in the probiotics at high does....100-150 billion a day and 2-4 Florastor..it seems to make things worse...and she gets an itchy scalp..

Why melatonin?

How are you treating the gene mutation?

I'm so happy to read this. My dd had IVIG 12 days ago and has had a screwy sleep pattern since, usually asleep between 8-8:30. Now it's 10-10:30. Saying she isn't tired.