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citygirl
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Need advice about CBS (sulphur) diet/supps
citygirl replied to Wombat140's topic in PANS / PANDAS (Lyme included)
Just got my report. I'm confused about one thing: When I am COMT -- on all genetic genie COMT, which is what heartfixer.com seems to be going off of but I have ++ COMT RS165722 on Nutrahacker report, am I to consider myself COMT + or -? It seems to make a difference on protocol for CBS +-, when you're COMT + or - on heartfixer. So I'm confused on which I should consider myself. -
Decision to be made on possible pandas DD
citygirl replied to citygirl's topic in PANS / PANDAS (Lyme included)
Ped prescribed the abx based on a positive strep test. I guess I'm looking at it from more wanting to prevent this turning into a full-on PANDAS. Right now, I don't know what the sighing is related to. She's finally physically recovered from the viruses/cold/no other symptom of strep now. So without knowing if the constant deep sighing is an autoimmune response to the strep infection (PANDAS) or not, I don't know if I should start abx with her or just do natural support for her system to get better quicker(i.e. vit c, gse, or silver colloidal, garlic, acv, etc...). Sorry - just stressed at the thought of her having tourettes/tics like I did/do. Am i jumping the gun here about pandas and lyme/babesia? I would love to avoid abx but not if it means i may be exacerbating any underlying snowballing of pandas down the road by not doing it. what is the best course of action at a very early onset/cusp of these conditions? -
My dd who is 5 was starting to show some babesia like symptoms - deep sighs/breathing every 1/2 min. She had been complaining of tummy aches for weeks on and off before it started. Since then with the winter bugs, she's had a string of virus/stomach bugs for the last 3 weeks as well. Now she's getting better from the viruses/cold/etc... but her breathing/sighing still remains. Brought her to the ped for the breathing - and she said she's probably taxed from the viruses and will resolve on her own. Asked her to do a strep and it was positive. Does that mean I should treat with abx (possible pandas) or wait to see if the breathing resolves on it's own? Or go with the homeopathic route? Since I have tourettes, I'm a little hyper-sensitive as to how i should handle any symptoms that may crop up in my kids. Coby gurl - what kinds of supplements/herbal/homeopathics did you do with yours?
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Questions re. PANDAS symptoms/antibiotics
citygirl replied to Lydiasmum's topic in PANS / PANDAS (Lyme included)
What bloodwork is done to see if there is co-infection? Is there one that covers a big chunk of diff co-infections out there? I too am trying to figure out if my dd age 5 has an oncoming pandas or not. She's got sighing she started a month ago and then a string of viruses and stomach bugs. Just did a strep test that came out positive as well. Wanted to test her for babesia too with her breathing symptoms. Could she have both? -
I've had tourettes since I was about 5. I've managed it on my own mostly, briefly on haldol when i was in high school with no result, and went on to have a good career and family of my own. But I have been holding my breath (literally due to tics and metaphorically) for my two daughters, wondering if they would have tics like I did. My oldest dd, now almost 7, had at age 5 brief episodes of eye blinking that I wondered if strep was involved. Only got a rapid test which came back negative with our naturopath. We gave her Yin Chao for the viruses/cold. We mostly cut out wheat/dairy and upped her magnesium through dietary means (more chickpeas, bananas, nuts, seeds, etc...) We already eat clean organic diet due to my tourettes, so the family has been on a healthy diet since before the kids. We may have done epsom salt, garlic, acv, or gse briefly. But whatever we did or not, it passed and no more eye blinking, to my huge sigh of relief. My youngest dd, who is now 5 (what is it with the age 5?!?)about a month ago started to exhibit these deep sighs, saying she can't get a full breath in. She does it every 1/2 min when we read. She also had a string of viruses and stomach bugs in the last 3 weeks, which has been going around in the whole town this winter. And her sighing has been getting worse. She had been complaining of stomach pains on and off before the sighing started. We had taken her to the ped and he thought we should start first to see if she was constipated. Her tummy is a bit distended even though she is regular. This week, I took her to the ped again for the breathing, and asked for a strep test. I also wanted to get the western blot for babesia, but she wanted to do one at a time. And after doing a 48hr strep test, she is positive. and ped has prescribed abx. My big question is, at this stage when she's better physically from the viruses/bugs, and only having this sighing and periodic stomachaches, is abx the answer? Or am I better off trying to amp her system to ride it out and treat strep naturally w a naturopath? Older dd seems to have ridden it out (although I'm cautious to say it, since my tics turned into tourettes when i was 11/12 with much lifestyle change/stress) I was put on abx when i was young, and it didn't stop my tics from coming back. Strep is all around us. We will always be in contact with it. At an early stage, is abx the answer? At this young age, if they are healthy otherwise, should I try to help her own system to fight it off with natural means? Wondering if abx robs the opportunity for the body to fight it off, if the body is otherwise healthy? Or is there a crucial window of opportunity to use abx with strep before it snowballs? Really not knowing what to do. Would love to know people's experiences and thoughts. Since I've lived my whole life with tourettes, I would love to spare my dd's.
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how is h. pylori treated? My mother was recently diagnosed and has had chronic ulcer for as long as i can remember. She was put on abx for it recently, but gave her horrible unbearable pains.
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2 year old son wih tics - NAET - does it assist?
citygirl replied to sarahp's topic in Tourette Syndrome and Tics
I was doing a search and came across this topic. What you said about swim pool struck me, because when I was on the swim team, that's about when my tics started shortly after. I've read chlorine can wipe out the ions in your gut, causing all sorts of domino effect of isses, some of them being hindering body's ability detox and sulfate. How are things going now? -
But the fact it was shown in the stool test raises the question, since I wasn't even at the doctors to be tested for strep/nor did I show any strep symptoms at the time, is the stool test one that maybe should be considered for strep diagnosis?
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Ok - I'm fairly intelligent (or I'd like to think so ), but having a hard time reading through the scientific lingo/terminologies. So I'm gathering that the recent HFMD is not an isolated coincidence. It looks like there may be some mercury and/or nutritional def at play? Re: connection to strep - it looks like the quote excerpt is saying that the antibodies for strep should neutralize HFMD (I couldn't open the link). Is that right? Or am I not reading it right? If so, since she got the HFMD, does that mean strep was not in play in her system? Sorry now it's getting a bit overwhelming for me to decipher.
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Can Foot and mouth disease trigger PANDAS or OCD? Both my dd's got foot & mouth apparently (sort of diagnosed over the phone from nurse on call). My almost 3 yr old dd1 has been doing this hopping in her seat before starting her one TV show and sort of eye blinking thing, not sure if her eyes are itchy and bothering her from the virus (mine and husband's have been itchy these days too). She just got over a cold a few weeks ago, and shortly after shed showed above symptoms. Now she possibly has foot & mouth thing. She's so miserable - sores all over her mouth! I feel like her body's a wreck right now...
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Spring time is interesting - my dd gets these similar wheezing cold symptoms oct/nov and again april.
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I find it interesting about the timing. Was thinking we should do a poll of how many people saw first symptoms in Oct/Nov. On my separate post, I wrote that my 2 yr old started blinking and sort of readjusting in her seat repeatedly (when here one TV show comes on). This all started this month. She was getting over a cold when it started as well, so I don't know if the bug season plays into it - i.e. cold/ flu/ allergies/ mold/ strep. Another newbie mom just posted that her 3 yr old is showing eye blinking for the first time this week too. So it got me thinking...
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When I looked in Wiki - it said Strep A is Beta Group A, not Alpha Hemolytic. Am I wrong on this? My naturopath at the time didn't comment on this result - she was more addressing the milk/gluten intolerance finding and crypto, as we were trying to figure out why I was doubled over in pain. Don't know if she even knows about the PANDAS connection - even though she is my dr for TS/mercury issues.
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Right after I got pregnant w/ my 2nd, I had a horrible doubling over pain - diarrhea/nausea that was persistent for a few weeks. My naturopath did a stool test, and she said I was intolerant to milk & gluten, along with having crypotosporidium. Recently I looked over the test and saw it also said pathogens/bacterial overgrowth detected for alpha hemolytic streptococcus and gamma hemolytic streptococcus. I have tics - had it since 11. Would these strains affect tics?
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Natural Treatments, supps, diet, etc.
citygirl replied to faith's topic in PANS / PANDAS (Lyme included)
Looked into Boiron products - Gelsemium doesn't seem like they indicate it for anything to do with cough - but for Stage fright, apprehension and fever. Would you recommend all the ones mentioned below for preventing strep related symptoms? My 2.5 yr old daughter has almost wheezing cough and sore throat cold that comes and goes around sep/oct and again mar/april. Would love to have homeopathic remedy to curb these rather than antibiotics. thanks.