Ebersolk

Can you pm me this doctor's name to? Thanks. Kerry

I am also looking for a Lyme doctor in PA, NJ, DC or MD. My daughter just received blood test results which showed several ind bands, a couple +s and positive for co-infections of bartonella and ehrlichiosis. We also treat with Dr. B for PANDAS. I just called Ann Corson but office was closed. I will call back on Monday and try to get in but saw the wait list appears to be 9 months. Kerry

My daughter has been diagnosed with PANDAS. She treats with Dr. B and he has written her a note to state that she should not get any more immunizations. She got the varicella vaccine on 12/1/09 and had tics within 2 weeks and then full blown OCD in January. She did have high strep antibodies when checked. Right now we are not doing IVIG but I do know he does it out of one of his offices.

Does anyone know of a DAN doctor near Philadelphia PA? Thanks. Kerry

We did hotwire. We put in 3 1/2 stars (www.hotwire.com) and requested pool and ended up staying at Holiday Inn Select (you don't know what hotel you get) but it was $70 with taxes. You can put in whatever # stars you want and read reviews before booking.

There are dye free ones. I saw some at CVS the other day.

1-200 normal for ASO less 85 value for titers (antidnaseb)

We just had some titers checked in the family. Here they are: 22 yr old daughter 38.5 (ASO), 1:680 (antidnase Husband 232.9 (ASO), 1:340 (antidnase me: 87.3 (ASO), 1:240 (antidnase I am going to send to Dr. B who is daughter's treating dr. Any information you can give me on importance of treating everyone in house and testing everyone would be appreciated or any thoughts on #s. Thanks!

Has anyone ever treated with Dr. Pasquariello or Dr. Magnusson at Chop in Philly, PA? Are they PANDAS friendly? Thanks!

Within last 6 months since we started antibiotic and culturelle (probiotic) my daughter has needed pulpectomy and has had 3 cavaties. I am wondering if it is probiotic?

My daughter has been dx w/Pandas 1 year after her sudden onset. It did begin approximately 1 month after she had varicella booster so I do think that set things in motion and then she was exposed to strep.

Poster name: Kerry Location: West Chester, PA Childs year of birth/present age/gender and weight: 1999/10/F/60 lbs Brief history of symptoms/when they started 1/09 Any previous diagnosis, i.e. autism, asbergers, pdd None PANDAS symptoms; and order of prominence, (OCD?, tics?, etc.) Tics then OCD Results of any testing done: i.e. Aso & dnase, strep results (always positve? always negative swab, but Positive culture?, immunology results, etc. ASO 248 dnase greater than 1360, strep negative after onset. ASO and dnase taken 1/10 Camk number (if done) Awaiting kit Antibiotic use history: RSV, double ear infection, double pneumonia at 4 months, recurrent ear infections through first 3 years including use of prednisone and albuterol for recurrent bronchitis. Bronchitis induced asthma about 1 time a year Doctor and what protocol they suggested: **(names of docs optional, type of doctor is however, helpful) Dr. Trifiletti pediatric neurologist steroid burst and zpak. Other doctors that were helpful and why: (again, name optional, just name type of doc or initials.) None yet Steroid trials and detailed experience: Steroid burst stopped on 3rd day (dose pack) Helped OCD thoughts but bad for anxiety/anger/jittery Special section on those persuing IVIG or PEX and what the details were, updates could be added here too. Additional therapies sought: Supplements used: Omega 3's and Culturelle Meds used: 75 mg Zoloft (sertraline) Any 'other' pertinent info: Varicella vaccine 12/1/08 (anything else anyone would like to add or have info on.) Prior history of allergies and sensory issues I know having this info at my fingertips on each member would help me alot. no discussion on this thread, direct questions elsewhere. Just fill out your own post and any info you have should be there and you can come back and edit any time with updated info. anything you feel you want to share with others. Thanks so much. please feel free to add whatever you like.

My daughter had chix pox vaccine and then tics started and OCD/Pandas.