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  1. You can email me atkerry.ebersole@yahoo.com
  2. Are the numbers borderline or not? How long have they been off ?
  3. It is all of them basophils esoniphils and the other one or two
  4. Has anyone had low white blood count after years of antibiotic treatment? My daughters are in the 2 range after treating Lyme for 3 years and pandas for 4
  5. How do you get the code to order from Klaire labs? Thanks.
  6. My daughter originally was dx with Bart and Ehrlicia. Most recent tests have not shown either but the Lyme is still there and we recently saw an increase in strep titers (from a low of 60 back up to over 400). She is allergic to penicillin so it is hard to find stuff that works. Thanks for the help!
  7. My daughter is currently on 100 Bactrim, 300 omnicef, 250 azith daily and then tindamax twice (once daily) on the weekends. She takes 1 theralac probiotic daily and two on the weekends (30 billion units) We are changing out the omnicef for rifampin either 300 mg daily or 600 (i have to check rx). What kind and dosage of probiotics do you recommend with this dose of medicine? To date she has not had any issues with what we are on but it seems like rifampin is stronger. Thanks!
  8. What can anyone tell me about the use of Rifampin? Our treating doctor wants to change from omnicef to this. She is also on numerous other meds so I am a little concerned.
  9. We have actually seen Dr. T (first)), then Dr. L and now see Dr. B along w/Dr. Jones due to Lyme and co-infections. I had called Dr. Elia when my daughter's symptoms first started over 3 years ago and they never called back. I had thought that Dupont was not Pandas friendly and was just wondering in case I have an issue. Also, it would be nice to have someone close by to add in to our treatment. Do you think it is worth my adding her in? I also know someone who had an appointment with her upcoming and wanted to make sure that she did not just dx only and not treat.
  10. Can someone advise what type of treatment Dr. Elia provides and if DuPont has now become PANDAS friendly?
  11. You may want to try to get in with Dr. Bouboulis in CT or if you can't get in for a while with him, one of his staff. He is an immunologist and does take insurance. We have Cigna. Just be prepared if you get him to wait for awhile- a morning appointment would be better. We have been seeing him for Pans as well as Dr. Jones in CT for Lyme.
  12. Can you get an appointment with a Pandas doctor? I do think your daughter may need longer antibiotics and she may need different types. She could have PANS and not have it only be treated by strep but by viruses or lyme etc.
  13. It could be because of the Lyme that the strep won't clear.
  14. Does anyone have any recommendations from switching from Azith?
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