justinekno

What were your symptoms that convinced the LLMD to treat you for Babesia. Our LLMD tested for it (Babesia DNA) and our insurance company denied the claim. He said he's never had an insurance co not pay for the test. Guess I'm the lucky one.

Does anyone have any experience/knowledge with the different types of Babesia testing - primarily Babesia DNA? I'm wondering how accurate it is and what the difference is between the DNA versus the average Babesia testing.

Thank you for the information. I called our insurance co and they are resubmitting. I should know tomorrow how it turned out. Wish me luck!

Our insurance company will only pay for the IgM portion of the test and not the IgG because they say it is a duplication of services. I know the IGenex invoice stated for the insurance company to use a modifier code when this happens but the ins rep just kept repeating, "we will only pay for one diagnostic code of 86617 per date of service". So I guess if the lab had looked at the IgG antibodies the next day, maybe they would have paid?! lol. Does anyone have any experience with appealing and getting their insurance company to pay for both IgM and IgG? They also treated it as out of network so they really didn't pay much.

Interesting. My dr (breast surgeon) said that it is amazing but for some women it really works. Maybe the kelp capsules would be easier to take than straight oral iodine? Just thinking out loud. I wonder how many mcg's a small dot would be.

What is a good resource to find info about muscle testing?

Has anyone heard of women taking Iodine for breast pain? I read in the book, Insights to Lyme Treatments" that many female Lyme patients are low in Iodine. My dr suggested taking Iodine (kelp) for breast pain although she had not heard of the Lyme connection (she is not my LLMD). I'm wondering if there is a blood test to check for Iodine levels? My dr did say you have to be really careful and not take more than 500 mcg because it can disrupt thryoid function.

We have a local dentist doing that. I'm curious to see how many kids take him up on the offer. I think it's $5 for a max of 10 lbs of candy for each kid.

My kids have never been big candy eaters but for the last two years I have traded my younger son's trick or treat candy for a present. This year he wants the new Diary of a Wimpy Kid so I'll give him a "coupon" for the book when it comes out later in the week. He gets to have fun collecting candy with his friends and also is excited to know he has a better treat waiting at home! I also took charge of the Halloween party at school and thankfully the teacher sent out a note saying "no sugar" since it was a morning party. Phew, got that one down for another year

We got 20% back. My insurance company sent me back 60% of the cost of the tests. I felt very fortunate to get that! Susan

this is the IgG powder we use. I am anxious to see if it helps my son. We have been on the new antibiotic/supplement protocal for about 2 weeks. We have very red cheeks but that's about it for any type of "reaction" plus the increase of his already existing rash on the arms.

Our LLMD was telling a story of a child he is treataing who was diagnosed with ASD, non-verbal, and now that he is being treated for Lyme, he is making some progress. He said hard to know if it's all Lyme but there's definitely reason to feel optimistic. Interesting stuff.

Has anyone done metals testing on their kids? Our LLMD has recommended it for my son.

I'm glad to hear you had a positive visit. We have just started doing the IgG powder. Do you feel it's been helpful?

I didn't know this about taking magnesium away from antibiotics...

My son's levels were 54 a year ago and now they are 38. I'm sure our LLMD will up the dosage but I just thought it was odd that the numbers are going down instead of up.

Did I read somewhere that a vitamin D deficiency is common with Lyme? I just got my son's bloodwork and his vit D levels aren't as high as they used to be and he is constantly outside playing and we also supplement. I was somewhat surprised.

I got the small pills the first time and they didn't really help much but then when I went to pick up my refill I spoke with the pharmacist who said that the pink ones are more for skin issues and they would have to be special ordered (he just didn't have any at that moment) so I went with the blue ones. I have had more herxing like symptoms since I started them a couple of weeks ago. Hmmm, maybe people react differently to each type of Doxy. I couldn't take the pink doxy and lay down but the blue ones don't seem to bother me. Weird.

We just started using this probiotic and I agree, it has helped my son immensely. We buy from the LLMD but this is go to know about buying by the case. I think we paid $40 for 30 pills. We give one capsule a day too. We also use a natural fiber product to help with the colon.

Maybe this was mentioned somewhere else on the board, but for those that watched the Friday presentations, what would you recommend to buy? I looked at the list on the ILADS site and it is kind of overwhelming. If I had the money I would just buy everything and just sort through it at home but since I don't....

Interestingly enough, our reg ped felt that polio titers are not a reliable source of proof of immunity and therefore did not think re-vaccination was necessary. He said he has never revaccinated a child. I thought this was ironic that a mainstream dr would say this (he is not treating us for PANDAS or Lyme).

As part of the approval process to get IVIG. The insurance co wanted tetanus checked and I think that polio is part of the blood "package" so they were checked too although not used as part of approval. So, why were the polio titers even checked?

I thought Dr. Leckman didn't see patients? I thought I read that on the board here one time.

We were able to get IVIG approval after a peer to peer review and several additional blood tests were done. It took about a month to get the approval.

Met with our pediatrician yesterday who said that Polio titers are notoriously not a good judge of Polio immunity. He recommended not re-vaccinating (and this coming from a mainstream dr!).