lele

Flu season now, is flu shot safe for our kid with tics? Since my son has asthma, I may take him for the shot, is there and connection between tics and immunization shot? Anything could be helpful, thanks in advance Lele

Thanks for sharing with us those good methods, Pat, I am really appreciated. We will have another doctor appointment after we finish 3 months Singulair, and I will stop that and try some NAET, how can I find a NAET doctor around us? What are they normally doing on treatment? I heard some Chinese doctor use acupuncture to help people with asthma attacked, or Chinese cupping, I may try that. I will switch his nasal spray to the non steroid one, is that over-the counter or not? Again, thanks a lot for helping me. God bless you.

Hi cp, I hate to give my son the steroid nasal spray, I may talk with the doctor and ask the aletrnative one. Thanks for helping me. Lele

As Chemar stated, we use Quecertin for our 5 year old son who has many food and environmental allergies. We also did a spray like that over a year ago when things were very bad for him, his outdoor allergies were out of control. This is also around the time that I really opened my eyes and saw the huge correlation between allergies and tics. His allergies were much better controlled this summer on the Quecertin. Please let me know if you have any questions. And my son is allergic to pollens, dust, ragweed, and highly allergic to mold as well. Hi ameecram, I am thinking on the alternative medicine too, what brand Quecertin product did you try on your kid? Thanks for giving me such kindly help

Chemar, Thanks for helping me. Yes, that is what I am thinking about, maybe the steroid nasal spray may be what is increasing the tics. When the docotor did his nasal smear and allery skin test, he just yelled ans said he has never seen any kid has such severe allergy as my son, and his nasal smear is +++, I don't even know what is that mean! He said my son has a lot allergy cels from the nasal smear microscopic slide, and give him the steroid nasal spray alone with the Singulair. What is that for? Is this means he has sinus infection?

This is another worriedmommy here in ACN forum, my ds is 8.5 years old and has TS for a year, and suddenly has an asthma attack 2 weeks ago, we send him for skin allergy test, and he is allergic with pretty much everything we tested, from tree pollen, grass pollen, weed pollen to animal hair, dust mites, mold..........i was so shocked! He had all the tics people mentioned including blinking and grimmacing, shrugging shoulder, rolling eyee, clearing throat…….last year, I have done a complete elimination of his food allergies and many sensitivities. He has improved alot!, They're not entirely gone, but dramatically reduced and he is 90% tics free for months before he had his first time asthma attack. Now we have to fight the asthma devil, and he started Singulair and a steriod nasal spray to prevent him from more asthma attacks for 3 days, and the shrug shoulder and lift arms tics come back. Since he has a really bad environmental allergies, I am thinking about to treating w/NAET, cant let him take the antiallergy medicine forever. Could anyone please give me some suggestion on how to control it or improve it since my heart was crashed. Is there any child asthma forum like the ACN I can seek help from? Anything will be haighly appericiated. Lele

Not sure if you're referring to the NetiPot. Dd6 uses that and it is AWESOME!! This being said, it was not an adequate replacement for Zyrtec. We replaced Zyrtec this year with 2 nasal sprays (Patanase, which is an antihistamine, and Veramyst, which is a steroid), and she's been doing way better than when just on Zyrtec.

My ds has TS for year and half, this weekend he was suddenly attacked by severe asthma without any sign or cold or any noticeable trigger, mom is so sad. Any suggestion on how to prevent from next attack? Is the medication safe for TS kids? Thanks

Thank Pat for understanding me, I did spent a lot sleepless nites crying and feeling ashame of myself too, for the lack of acceptance, I blamed myself to death, I didn't take good care about my little boy, it was me made him suffering from this bad devil. The most painful part is I couldn't find a way to help him shorter the waxing period until now.

Thanks for helping me, Bonnie, I really wish we could meet some families whoes kids have TS, I really need a support group to help me out, but we don't have a chepron of TSA in Virginia. It has been a year since my son shown his first sign of TS, I still can't accept it well, shame on myself. If I am not strong, who can help my poor boy! Where in VA are you??? CSP is in VA, right down the road from my mom's house. I live in AZ so I get together with CSP when I go back to visit my mom. Small world, seriously!!! And, I understand about accepting it! My ds is waxing majorly right now and it's bugging the heck out of me! It's been well over 2 years for us, too! That is amazing! I wish I could have some neighborhood can share the deep sorrow with. I live in Chester VA, 15 mins from downtown Richmond. None of the people here even hear about TS. Sigh.

Thanks for helping me, Bonnie, I really wish we could meet some families whoes kids have TS, I really need a support group to help me out, but we don't have a chepron of TSA in Virginia. It has been a year since my son shown his first sign of TS, I still can't accept it well, shame on myself. If I am not strong, who can help my poor boy!

You are right, Cheri, the best way is let him ignore it, even though I can't really ignore it at all. Life is too tough. "but honestly, I see the kind of young man he has become and I agree with him that all these things have made him a stronger and better person." Thanks for encourage me, I know my son will be stronger too. I watched Like Eagles (Christian Music Video) with Nick Vujicic with my son and try to let him know if you are mentally strong, no one can hurt you. Can't stop crying when listen this son, It definitely says EXACTLY how I feel.

You are right, Cheri, the best way is let him ignore it, even though I can't really ignore it at all. Life is too tough. "but honestly, I see the kind of young man he has become and I agree with him that all these things have made him a stronger and better person." Thanks for encourage me, I know my son will be stronger too. I watched Like Eagles (Christian Music Video) with Nick Vujicic with my son and try to let him know if you are mentally strong, no one can hurt you.

My son's loudly throat clearing and neck jerking plus arm lifting were flared up recently, It is so noticeable. Yesterday we had dinner in the Cici's Pizza, I noticed a man tried to let his son look at my son and laugh at him when he has uncontrolled tics, especially when he has that bad neck jerk and throat sound, they just made face on him. I was so hurt but I don't know how to face this. So how do your deal with people who notice the tics and joke on the kid. Any suggestions/insight is appreciated! Thanks!

Thanks Cheri, you always have solutions for us

Thanks all for the encouragement, feel much better now since I still have hope. Hope and Faith are the most important things we need.

Chemar, thanks a lot for helping me, once we have problem we know where to find solution. L-carnitine is the last thing I want to try on him, could you please tell me what brand and what dosage I can give it to my 8 years old, 66 lbs boy? Thanks a gain. Lele

My doctor told us if the TS kid has his motor and vocal tics at the same time, I mean once he jerking his neck, he will make clear throat at the same moment, that means his TS is very severely compare with the others. Is this true? So disperate about that since my son is one of them who has motor and vocal tics at the same time. Need encourage now. Any piece of info will be highly appreciate

Update my son's TS his TS flared up after waning for 2 weeks. He starts a very bad vocal tis as throat clearing, non stop, very loudly throat clearing , not the soft one as before. I noticed he has a bag of pop corn and some home made butter cookie which was not in his regular diet before, nothing else can ring a bell on me. If any one has any idea to reduce this bad vocal tics please let me know. It is so niosy in the class, I can't imagine how can he face this in school.

Yes, compare with the parents whose kids have cancer or other terminal diseases, we are so lucky! I think I don't want my son to be perfect and I can accept it if he has mild and infrequent tics in the future. Who knows what happens in the future, I should stop torturing myself before I gat crazy.

lele, I don't think that is true. the part about it not usually going away as the child gets older, I think tht just means when they are a 'child", but I have heard several doctors tell me it gets better as they get older as in teen years. But I know there is no way to predict the future. I understand what you mean tho. I havn't said much to my son in his younger years, I think you will know when the time is to talk about it. Of course my son knew he had some habits, but we didn't call them tics until recently. you can take it one step at at time, just talking about the individual tic, and explain tht its like a habit, and it will probably go away after a while. when things get where it is bothers him enough to need more explaining, then you can take it from there. baby steps. only you can be the judge of how mature your child is and how much he will understand or relate to. And I absolutely understand about not talking in front of him with the doctors, I always went in to talk first, I didn't want my son to worry that something was wrong with him, and also didn't want the 'power of suggestion' to come into play, like if he wasn't doing a particular tic, but I had to tell the doctor that he did this or that in the past, if he heard me, then he might be reminded of it and do it. He is almost 11 now and he knows now tht he has tics and ocd and we are working to help them get better. Take it one step at a time, you don't have to tell or talk about everything all at once. Faith Yes, you are right, Faith, there is no way to predict the future , but all we can do is try our best to help him get better

Here is the free brochure from the TSA webpage: for young children - to print and take to school - for other students to read or have the teacher read to the class http://www.tsa-usa.org/People/kids/matthew_tics.html This the the part I don't like most "He told them that a lot of doctors are studying to find out what causes Tourette Syndrome. They do know already that it always starts at a very young age. It is much more common among boys than girls. It usually doesn't go away as the child gets older, but there is medicine that can help most of the people who have Tourette Syndrome. " Another information from TSA FACTS ABOUT TOURETTE SYNDROME, Answers to Most Commonly Asked Questions http://www.tsa-usa.org/imaganw/Fact_Sheet.pdf "Is there a remission? Many people with TS get better, not worse, as they mature. In a small minority ofcases symptoms remit completely in adulthood." I know this is not true since all my doctors keeping encouraging me to think as possitive as I can.

It is just TS which I feel so bad to talk with my kid. I am worry about if I mention tics with him will make him feel more nervous and then develop to OCD in the future since my son is extremely smart and sensitive. When he was 3 and half, he was a big fish and shrimp fun, he can eat a lot of sea food at once, but one day his teacher talking about water pollution and said the sea food is not safe due to the ocean has been polluted, after that he stop eating sea food including soft water fish till now. He was just 3 and half by that time. And when we went to see a doctor in china, the doctor said don't eat sugar and candy, he just stop eating his gummy vitamin even though he ate it since he can eat the real food......... He is such a sensitive boy, can't imagine how he will react with after I say something about tics

This is what I read "For young children - to take to school - for his peers to read or have read to them by a teacher."from TSA He told them that a lot of doctors are studying to find out what causes Tourette Syndrome. They do know already that it always starts at a very young age. It is much more common among boys than girls. It usually doesn't go away as the child gets older, but there is medicine that can help most of the people who have Tourette Syndrome How can I give this to my little boy to encourage him? I wish it is not true.

Thanks Chemar, I wll learn the skill on how to talk this with my little boy.