chodnett

We did PANDAS treatment in conneticut with Dr.Bouboulis. I then went to lyme doctor Lyme was underlying cause. Found healing and relief with lyme treatment but it is tricky. All DD14 symptoms were gone over a year ago antibiotic treatment. Now off antibiotic about a year and have slipped backwards a little. Going back into lyme treatment. I know Dr. Infante was just getting started when we begun.

Hi, I also live near San Antonio and have a DS8 that was dx with PANDAS. We see Dr. infante and Dr. Russell. Which doctors do you see and do you feel they have helped?

Dr.Crist in Columbia MO. We think he is great and will be able to help. Good Luck. We go to him and we are from TEXAS.

who is dr. J and do you see a LLMD and where. I feel pretty lost in this discovry. I live in TEXAS and there are no LLMDs. My daughter suffers from what we thought was PANDAS but now rethinking treatment to LYME. ANY knowledge is helpful. Thank you

DID YOU FIND LYME? DID YOU DO IGENIX. OUR STORY SAOUNDS THE SAME EXCEPT I HAVE A DAUGHTER. ANY INFO IS HELPFUL AS YOU KNOW. THANKS

i have a daughter with pandas. I think we have spoken via forum before. still not 100% with pandas treatment. looking into LYME. have you had any luck with find help. Im in Texas too. We travel to Connecticut for Dr.B. Dont want to travel for LYME too if we can help it. I have seen some of the people we had IVIG's with get LYME testing positive. Have not done IGENIX on family.

why did you say dr b had to sit down and not say anything?

This is wonderful news. I am calling to schedule appt tomorrow. Do you know if he supports IVIG as a treatment? Thank you for your help I have passed along to another mother in SA who needs some answers for her child.

Yes, Dr. MC is Madeline Cunningham. Dr. Infante holds his PhD and is an Immunologist and Hematologist!

Ok Great., Is Dr. M.C. (Madeline Cunningham) And I thought you said He was Immunologist and it says he is hemetologist? Thank you for your help!

It's Dr. Anthony Infante with Christus Santa Rosa. Gosh, I have been MIA for a while...trying to get my feet wet again on the board!

TC who are the San Antonio guys???? I live in Ft worth and my daughter is being treated by Dr.B. HE IS SO FAR AWAY.

Yes Sadie I am not savy on this site but feel connected to great information for my daughter who has PANDAS. We are being treated by Dr. Bouboulis in Connecticut and it is quite a journey for IVIG. My family lives in SA and that would be much closer. I also have a friend who needs to see doctor for her daughter, she actually lives in SA. Can you give me the name of your doctor?

Hi, I am not savy on this site but like to read all posts. Are you the one who says there is doctor in Dallas that treats with IVIG same as Dr.K? If so then can I get his name from you. That is so much closer than Connecticut!!! Thanks