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About trademein

  • Birthday 10/12/1975

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    Ocean County NJ
  • Interests
    PANDAS and Post Reactive Streptoccal Reactive Arthritis

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  1. So, I picked up a copy of my DD10, medical records and saw she had a upper respiratory culture that came back as" Scant growth Beta hemolytic strep group B. What the heck is that? She tests + for A but B? I didnt know you can have that in the throat. Has anyone heard of this? Her doctor said it was + and to finish the Amoxil. Never mentioned Group B. Any input would be great. Sincerely, Kari
  2. Hi, I haven't posted in a while. Its been 14 months since PANDAS invaded our lives. I can say my DD9 is about 50% back. We are having major issues with behavior. She doesn't listen and fights with us all the time. She is on Zoloft 50 mg but I don't see that helping anything but her anxiety. She is also on Strattera 40 mg which is also not doing much good and Pen V K 250 mg. BID. She was good for a few weeks but she seems to be going backward with her symptoms. So anyway her ID doctor said have her Adenoids checked. She said they can hide strep. Has anyone heard this? And is it worth it to get a tonsillectomy if she doesn't get strep often? And anyone who did a tonsillectomy has the PANDAS symptoms decreased? Thanks so much, Kari.
  3. HI, My DD12 dx with Lyme 3/09. she did the 30 day round of Amoxil and has been fine. A little fatigue but thats it. She had Strep 1/4/11. was put on Amoxil 875 BID. She felt awful for 2 weeks. Do you think she could of had a Herx. reaction to the Amoxil? Her pedi has now put her on Pen V K 500 TID. for 10 days. She started that 1/15/11 and is feeling better. Any thoughts would be great. Thanks!
  4. Is it common for the school grades to drop in PANDAS kids? My DD9 has been an A student all along till now. She is struggling with all subjects. Simple things she could do last year she can't this year. She gets so upset now when its time for homework. Has anyone else gone throught this and if so what can I do?
  5. my DD9 has been a PCN 250 mg twice a day since June to prevent strep. That order came from the Infectious doctor. She hasn't had strep or any other illness since the start. It took awhile to work on the PANDAS part but she is doing very well now. We saw a major change in October. She is also on Zoloft and Tanex.
  6. I'm with you on this. Good question. We have no infection so why not back to normal? My DD9 has tics and some seperation anxiety still.
  7. Hi, I am usually on the PANDAS site but I have a question for this site. My DD9 has PANDAS. She was just diagnosed with ADHD also. Her Neuro put her on Guanfacine. I think that is the generic for Intuiv. HAs anyone used this before? She is taking 1/2 pill for 5 days then she is to up it to 1/2 pill twice a day. So I am looking for any information I can get. Opinions on it, side effects anything. Thanks for your help.
  8. How do I quickly and simply tell the Aunt that we see once a year about PANDAS? Holidays are here and people will be asking what has happened to DD9 since last year. Oh love the long distant family.....Since this is my first Holiday with this I don't know what to tell them in a quick way. Any ideas?
  9. Wow, you need a hug,pat on the back and yes a glass of wine I am on Welbutrin and Xanax. That works for me. I can stay focused and have a ton of energy! My DD9 has been doing well untill tonight. Her cheeks bright red and all her symptoms in full force. I can't figure out what set her off. UGH..All can do is laugh at the mess and hug the kids. Kari
  10. So I need letters from her doctors to support the PANDAS to show to the board? I have no idea what I am in for with this. From the research I did here, it seems like a hard battle.Ugh,why can't 1 thing be easy for us?
  11. I was able to get our Neuro to give us the note for a 504 plan. But she put on it for ADHD which was diagnosed today. So do I need another one for the PANDAS? She wasn't willing to put it on there.
  12. Can you have Lyme and not have any physical symptoms? If on PCN for PANDAS can that interfere with the lab results when testing for Lyme? My mom swears that my DD9 has Lyme. But she has no symptoms of it. I had Lyme as a child and remember feeling very sick from it. My DD can run laps around the house.
  13. No we haven't used one. What do you suggest? Toda she only has pain. No loose stool or vomiting.
  14. thats what i am wishing for... but she is on Pen V K since June so I hope its not C Diff. I don't know much about that but it is a worry.
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