melanie

It *is* hard to tell this from PANDAS! Do you know if Tenex (guanfacine) can do this as well, or does that not affect the serotonin? We had tried zoloft which seemed to do that, but haven't tried prozac. Might be worth a try for us. Ok guess what the psy prescribed LEXAPRO oh well he was on lexapro years ago and did ok so the md thought that would be a good place to start I dod put him on a gluten free diet this week and its not as hard as I thought its a little expensive because Im lazy and im buying pre done foods maybe if we stay on it ill learn to cook (maybe not) she prescribed 5mg should I try it? should I try something else any suggestions

He keeps talking about hitler researches the crap out of ww11 speaks only about ww11 spends every second obsessing about it psych prescribed lexapro today havent picked it up yet

what did you switch to he takes nystatin ketoconazole was used on two different treatment bouts with time off in between to kill enough yeast so the nystatin could then work. Probiotic is also used as well as other factors in the treatment plan. Every child could be different so I am not providing a model just an example. My husband has tina versicolor Its a skin fungus I wonder if it has anything to do with yeast Danny also has athletes food treated and gone but hummm

My son was acting the same way !!!he is on aztith 250 daily also buspar and tenex he seems much better He was taking depakote and abilify when things were really really REALLY bad dec jan I tried so many meds Lamictial, Trileptial hes allergic to those 2 Everyone is talking about topamax its the same kind of med (I think) but he just got worse anyway our kids do good for a while on some meds and then bam ! they seem to get symptoms bad bad symptoms again and believe me hes nowhere where I would like him to be But I did get him on Home instruction for 2 months (anxiety )he went back and things are better hes 15 (April 30th) so hes older the bus oh yea Iget it my son goes to a se private school special bus and still has crap I have to take my 13 yr old to the md at 10 shes complaining of sore throat here we go again!! Good luck

Oh well it happend again I called the neuro about dannys ocd she finally called me back it was only 2days but feels like more.Anyway she says she dosent ttreat OCD only the tics odd huh and I am doing him a diservice by not giving him a nuroleptic and that I can give him a nuroleptic along with another med to counteract the side effects She didnt even want to listen to my concerns I thought this dr was going to be good maybe shes just no saying what i want to hear

For those children who have ticed less after puberty did you do anything different before puberty or after that would make a significant change?Meds ?supps?

Side effects?

I logged on this am to post the exact same question before I call the PSY and she gives me something that he will have a reaction to PLEASE help

dannys on both Is that goood ? Why would the dr have him on both at the same time does one kindof kill the other?

Things are a little better The rages have pretty much stopped Its funny you just go day to day with ts . its hard for him I know it is and I complain about his behavior and how I feel . Im off this week so I can make some needed # to the numerous mds . Im sure the buspar is helping the rages along with the zith for the infections his ears dont hurt and ive noticed theres no wax (gross) he usually has a ton but since hes been on the zith none hummm I would love to get rid of the ocd and the cursing all together i am tring to get rid of some of the wheats I have found a bread he likes (good for school) pasta so I think i can do this do you have to do it all the way? for it to work? Hes also on sparaliacte from his dan dr any one else using it? Melanie

what did you switch to he takes nystatin

any one adding any vitamine D to help with tics?

How did it go for you? We own a half share in a chamber and use it for my son with autism. He did WONDERFUL in it until his PANDAS diagnosis. We get the chamber every 2 months. The first turn after his PANDAS diagnosis he started with bad vocal tics a week after we started the chamber so we stopped not knowing if the chamber was the problem since other changes were going on. We didn't use it for the rest of our turn. When we got it back again a few months later, same thing, and most recently at our turn in November, within a week the vocal tics and screaming went haywire after just 2 dives. Our DAN doctor has told us to put HBOT on hold indefinately as strep is an aerobic bacteria and thrives in high oxygen environments, which explains why my son had a huge flare every time we tried to start a series of 40 dives. I hate that we can't use it because he did so well with it for almost 2 years before PANDAS came in the picture we never went through with the chamber because of the pandas but the same dr who treats for pandas also rents the chamber so I kindof feel theres a conflict believe me if i knew it would help with the symptoms i would sell my house to buy one any way i couldnt find anyone who said to do it so we are putting oot on hold thats interesting about the symptoms getting worse

What abouut the OCD with the pandas do I need to look at meds?

We do accupuncture Ill tell you as soon as she begins he falls asleep I do it to I cant sleep i think its great for stress relief I try to take him 1 to 2 x a wek insurance covers it thank god

Thank you everyone. SHe is due for blood test this month. School social worker is now seeing her due to crying and anxiety. Sounds like she needs another dose of antibiotics. Wondering if we should take her to CHOP? Hi again Dr dornifield takes bcbs Im sure he takes atena call CHOP is grear but the whole pandas dx is hard to get you need a dr who understands this dx its alot to "get" I see a huge difference with danny in 1 1/2 months on zith anyone on this thread can tell you i was at the end of my rope things are getting better slowly hes also taking nystatin tenex buspar inositol b6 taurine mag taurate and sparinalactate (sp) I would like some info on sparinalactate if any one has any good luck

hi I have a dr in middletown nj dr david dornfield hes a DO and I use him for my 14yr old pandas son Hes good sometimes alittle busy but knows pandas also I have a neoro in columbia Pres shes good with pandas but likes more evidence with titers

Hi I saw the interview your family is beautiful Thanks for informing others hopefully some mDs will see it

Im tapeing it cant wait

So if someone got tics after taking a med can it be reversed ? Should I use E? pleas respond!!

My daughter is on prophilactic abx. Lamictal is famous for keeping people up at night. I give her evening dose early in the evening for this reason. Also give melatonin and valerian at bedtime. Even so, last week she had terrible issues with night waking...resolvd by increasing CLO. Do you think the Lamictal is responsible for the nightmares or strep or something else? We got the chronic strep under control before we tried Lamictal. Sure hope the field trip goes well for your daughter. The rages can be so much worse in a public place, the "normal" ways of dealing with them aren't available in those settings. The nigtmares definitely appeared to be linked to the Lamictal. Since having split the dosage, they've decreased significantly. She's back to her normal routine of sleeping through the night. It's probably too early to know for sure that we're out of the woods with the nightmares though. Sabrina doesn't appear to have strep the way she did. In fact, it's been a long time since she's had a positive test result. So it's possible that it's all still flying under the radar in the guise of the elevated (but not as high as it used to be) ASO/Titers levels. Those never really got into the 'normal' range. We had a tough weekend - no major rages, but just a lot of defiance. Nothing we can't live with, but it gets tiresome after all the tug of war episodes. Luckily she did really great on the field trip - I'm not certain if we have the Lamictal to thank for that or not. I still haven't warmed up to the idea of having her on psychitropic meds. Sabrina has an appointment with the psychiatrist in two weeks, followed by a first time visit with an immunologist. I'm certain she'll want to take blood. I don't know about all the other parents, but I absolutely loathe subjecting her to all of these blood tests. Poor thing. It breaks my heart that she's experiencing stuff that any "normal" kid wouldn't have to experience until much later in life. ((sigh)) I'll keep ya'll posted. My son tried lamictial got a rash and threw up we were told hes probably allergic we tried trileptial same results (simular drug)related somehow I dont think its a psychitropic good luck the dr will try another one

His rash was not bumpy it was on his chest and on his hands it wasnt itchy I dont think because he wasnt itching it He was very aggitated For the life of me I can't come up with which of those ingredients gave me a bit of concern, especially since Candida Clear is not something that you really stay on long term. I do want to leave this here for others review though. I get concerned when drugs are being used that can be so touchy with variation in absorbtion. This list may not be complete. Read site for more info and disclaimer. why? http://www.mskcc.org/mskcc/html/11917.cfm 5. Do any botanicals interfere with the metabolism of drugs? To maintain the proper metabolism of certain drugs by cytochrome p450 (a liver enzyme), patients should discontinue use of the following agents. Increased metabolism of a drug reduces its concentration in the blood and may reduce its effectiveness. Decreased metabolism of a drug increases its concentration in the blood and can lead to toxicity or increased side effects. Essiac: A case of decreased clearance (removal from the blood) of an experimental chemotherapy is reported in a single patient taking Essiac. This may be due to inhibition of cytochrome p450 isoenzymes, hindering their ability to metabolize the chemotherapy agent. Garlic: May induce the cytochrome p450 3A4 isoenzyme, resulting in enhanced metabolism (and decreased effectiveness) of certain drugs. Ginkgo: Preliminary evidence suggests that ginkgo can affect the cytochrome enzymes 1A2, 2D6, and 3A4. However, data are controversial regarding whether ginkgo induces or inhibits individual enzymes. Ginseng (Siberian): Inhibits metabolism of certain medications, leading to higher medication levels in the blood, possibly by inhibition of cytochrome p450 2C19. Goldenseal: May inhibit the 3A4 isoenzyme resulting in increased blood levels of certain medications. Milk Thistle: Inhibits cytochrome P-450 3A4. Although no interactions have been reported, inhibition of drug metabolism may occur for several constituents (e.g. ketoconazole, itraconazole, erythromycin, triazolam). St. John's Wort: Induces cytochrome isoenzyme 3A4, enhancing metabolism of certain medications and reducing their concentration in the blood. Turmeric: In vitro studies indicate inhibition of cytochrome P450 1A1, which may result in increased blood levels of certain medications. His rash was not bumpy it was on his chest and on his hands it wasnt itchy I dont think because he wasnt itching it He was very aggitated it lastedabout 2 days I took him to the hyospital I wasnt sure if it was an allergic reaction