melanie
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Can we talk more about cellcept Anyone?? were 250 x times daily right now
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Where to find Clerodendrum Inerme extract?
melanie replied to tic2talk's topic in Tourette Syndrome and Tics
Is this available to buy anywhere? I cant find it -
Noticing a lot of this lately Anyone else .(We use IVIG every 21 days )
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Recently dx with TMJ Any one know a dr in NJ area who treats under DR Stack?
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I've been reading about vayarin. Seems pretty good. Any one use it ? Good or bad. Thanks. Melanie
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its been a while since ive posted things are ok still having behavioral issues dannys going to be 21 soon and that is a whole new world Hes on depakote and gabapentin and namenda till doing ivig every21 days im feeling defeated somedays ,and hopeful others. Anyone have any cure yet??? melanie
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Just gave danny his first B12 injection. Anyone else doing this? Melanie
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Dan had a positive lyme test (I think) It says positive :5 of the following Borrelia -specific bands:18,23,28,30,39,41,45,58,66,and 93 Then it says under that Negative No bands or banding patterns which do not meet the criteria What does this mean???
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Does anyone know if Ivig interferes with blood work??
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Dan gets ivig every 21 days for 3+ yrs. blood work came back and lots of concerns. How much of the blood work infections are due to ivig is it reliable due yo the infusions
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Please ,please listen to me. Get a very,very good behaviorist to work with you and your family. I spent thousands and years on this. Been to every dr ,clinic etc. I don't know if any parent has been though what we did. You can absolute pm me if you have any questions. Melanie
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Do you think eye rubbing is always allergy related ?
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melanie reacted to a post in a topic:
Going to see dr T tomorrow
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melanie reacted to a post in a topic:
Going to see dr T tomorrow
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melanie reacted to a post in a topic:
Going to see dr T tomorrow
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GL. Can you please send me that link. Please. Thank you Melanie
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We've been at this PANDAS thing for 8 years. I have known dr T for most of these years. We have several doctors and Danny receives Ivig every 21 days and has for almost 4 years. He's 20 and is doing way way way better than 1 yr ago. I'm going to see him ( dr t) to see if he can help move Danny along. I know there's so much info I don't understand. I know we're missing stuff. I want like all of us to be" cured". If you can give me advice of tests or questions to ask him I would really really appreciate it. Thank you Melanie
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What can I use safely to increase histamine. He has used Benadryl in the past. Thanks