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Char

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Everything posted by Char

  1. Hi, has anyone tried the patches? Would love to hear anyone's experienc es with them. Thanks
  2. Hi, I have not been on here for a long time. My son has been doing pretty good with an gfcf , no eggs., no artificial diet and supplements. He still had minor motor tics, but not really an issues. My son has had a coughing tic now for a few weeks. I was hoping it would go away but it's not. Just wondering what others have tried to help the coughing tic-supplements? Should I try l-carntine? If so how much? My son is doing the coughing tic, every two mins. I don't know how he can go back to school like this. I am very stressed. My son has never had this before. Please Any suggestions?
  3. Dut, I posted my sons Genetic Genie results on my other post..still waiting on my sons relative finder to come in. There are some raw data my son has, that pertain to me. Need to look further into though..
  4. Hi all, I finally got my sons results back for 23and me. I'm pretty sure my son has PANS more than PANDAS. On his genetics he was at high risk for auto-immune diseases. PANS-PANDAS is considered a auto-immune disease. My sons genetics showed no genes for Tourettes and yes they test for that..His genes were more in auto-immune. Which I always thought because my oldest daughter has type 1 diabetes and more auto-immune runs on my side of the family. My sons genes also showed add, adhd genes high for him..I already knew that! I put his raw data in Genetic Genie. It will show mutations in genes, like Doctor AMY Yasko uses for her Autism program. Your mutations in your genetics takes out the guessing games and it will help you choose what supplements to use and not use, to support your m-system. I am going to put my sons mutations on here. I would love to compare with other parents who got 23and me done on their PANS+PANDAS children and got there gene mutations. I would like to see if there are any simarlities in mutations and see if PANS-PANDAS kids shared any simarlities. It would be interesting to know. Here are my sons mutations=+/+BHMT-08; MAO R297R +/-VDR Taq; VDR Bsm; MtHFR A1298C; MTRR A66G; MTRR R415; BHMT-02; BHMT-04; CBS C699T; SHMT1 C1420T +/+ means you got double muations(from both parents) and +/- means 0ne mutation from one parent. Amy Yasko has lots of information on it. Lots to learn... Anyways, hope to compare with some of you. Thanks..
  5. Thanks, I am going to try to get a consult with Dr.T right away. I just hope I can get one. I just hope there is a doctor here in Canada willing to work with Dr.T.. I am so depressed right now. My oldest daughter has type 1 Diabetes and has had it for 15 years. It has been hard but going through this with my son is so much harder for me. I guess I just have to have hope and faith that things will get better. But having to deal with this and having two other children that still need my attention is hard:(
  6. Hi All, I really need some suggestions right now. My son had strep throat confirmed by positive swab. The doctor gave him 10 days antibiotic. I asked for more but he wouldn't give it. I told him I know my son has been doing well on natural supplements but I just don't think thats enough antibiotics.My son did the Cunningham test 2 years ago. He was having mild Pandas sypmtoms at the time. He was 137 putting him in Pandas range. Anyways now 2 weeks later. He has a cold I think, now he is not doing well at all. He is snorting every 5 mins and has started a new vocal throat noise. Loud!!! He has never had this vocal before. He had the snorting with a strep a few years ago. It took him nearly a month to stop snorting. I am so very stressed right now. I know it's Pandas but no doctors here in Canada will take me serious. He can't really concentrate at all right now and he can't go back to school like this... I just don't know what to do.. I am so depressed and mentally exhausted. Does Dr.T do phone consults right away, if your childs Pandas sypmtoms are getting worse?? My child usually gets better with supplements and antibotics. Well in the past he got to 75% better.Please any suggestions?? Thanks..Char
  7. Hi all, I have not been on here for sometime. My son who is 11 has been doing pretty well until now. I hope you remember me. My son has had Pandas for sometime now. I have been trying to control his symptoms with natural supplements. I did do antibiotics for a month and a half. I could only get that much from my sons doctor here in Canada.He seemed 75% better after that. It was a few years ago. Then I have been doing natural supplements until now. My son has strep and a positive throat swab confirmed it. He has a new neck tic with it. His poor neck is so sore. He says he is so lightheaded again. He does have a lump on side of his neck. I am so worried right now...He was doing so well. He's on amoxicillan 500 3xper day for 10 days. He's been on it for 4 days now. He still has a lump in his neck and his tics seem to be getting worse. Doing homework is very hard on him right now. He just can't seem to concentrate.I am so nervous right now. His tics have not been this bad in 5 years. And when they were this bad it only lasted for a few weeks then got better. I am scared I won't get him back to baseline again. Any thoughts?? Much appericated..
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