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Everything posted by guy123

  1. Are they Botoxing the affected muscles in that study? What happens if you still get the sensation that you need to tic but you are unable to move the muscle because it is paralyzed from the Botulism?
  2. I've only been taking it for 10 days. I've taken zinc and vitamin C in the past and never taken copper before so maybe my levels were a little low and that contributed to me getting tendonitis twice in the last year (after never having it in my life despite lifting weights for the last 12 years). Who knows. I don't think I have that "copper personality," though. I think I will keep taking it until my shoulder tendonitis is gone and then only occasionally supplement with it.
  3. I am on Clonidine. I have personally found that the Actavis brand has significantly less side effects than the Mylan brand. This forum focuses mainly on non-prescription treatments but if you are interested in seeing a list of known prescription treatments along with side-effects and some results, please visit this site: http://www.tourettestreatment.com/list-of-treatments.php
  4. What's the proper ratio to take zinc/copper in? I heard 10/1. So for example if you take 50mg of zinc you should take 5mg of copper. That's just an example. I know 50mg is a common dose of Zinc pills but 5mg of copper sounds like a lot to me. I've been taking a single 2mg pill each day.
  5. I heard nausea can be a sign of copper toxicity. How much is he taking and how much does he weigh? I take it after lunch. Zinc on an empty stomach can make you sick. It's all over the first page of Google results, too: edit - We can't post images here? Ok, click this instead: http://i.imgur.com/nHvsH.gif
  6. I have recently begun taking copper supplements (2mg day) to help treat shoulder tendonitis which I've had for 8 months now and is about 95% healed. Has anyone here had any experience with copper supplements regarding tics? I read a few things online suggesting that it might make OCD worse so I'm keeping an eye out for that so to speak.
  7. That was what I thought of, too. I thought the overall consensus is that those weren't very effective. Didn't some members say they got the mouthpieces and they didn't do anything? Maybe I am thinking of something else.
  8. What sort of effects were you noticing while he was on it?
  9. I have a tic. I had an examination by an eye doctor and she said I have slight photophobia and possibly slightly dry eyes, but my blinking is not because of any eye issues. She gave me some eye drops which didn't make any difference one way or the other. My tic decreases significantly in the doctor's office so I had to bring in a video of me blinking to show her. It's a common occurrence for tics to disappear at the doctor, although no one seems to know why. I take 0.025mg of Clonidine (1/4 of a 0.1mg pill) nightly and it has reduced my blinking tic. I started the website http://www.tourettestreatment.com to share my treatment research, since there seems to be only a few medications that actually work. It can be hard to find reports of drug trials so I wanted to put everything together in one place where people can easily find it.
  10. My tics began when I was 17 shortly after using Flonase. I don't know if that's the cause, and there were other things I was exposed to (such as black mold at my high school which later closed down as a result), but Flonase is a corticosteroid and steroids are known to exacerbate tics, so maybe I was genetically on the borderline and Flonase pushed me over? I don't know.
  11. Fish oil had no effect on my tics. I have to ramp up the dosage slowly, though. The first few days I take fish oil (after a break), I get upset intestines and sometimes diarrhea a few hours after I take it. This goes away after a day or two. Can you post the ingredients of the one you're taking?
  12. Preparation H is a corticosteroid. Does it make tics worse?
  13. Dr. Eugene Yen at NorthShore University Health System. Dr. Ira Hanan at University of Chicago. Both are gastroenterologists and both were super cool, patient, and understanding when I saw them. I think there was a waiting list of a few months. They are specialists who are some of the best in the field.
  14. I would agree with this. Tics can be caused by more than one thing, and medical science does not yet have the ability to isolate and treat every possible cause.
  15. Exchanged the magnesium malate for KAL brand magnesium glycinate. Ingredients: Serving Size: 2 tablets Calories: 10 Total Carbohydrate: 1g Magnesium (as Magnesium Glycinate): 400mg (100%) So they're 200mg each. I don't like this labeling and I don't know if that means 400mg of elemental magnesium or 400 mg of magnesium glycinate.
  16. Magnesium notes: Magnesium malate "the only cost effective form where the other ingredient is actually doing some good and not potentially causing harm (magnesium taurinate also looks interesting as you get the taurine which I also take as a bonus)." Magnesium aspartate "potentially neurotoxic" Magnesium citrate "laxative" "appears to augment gastrointestinal aluminum absorption markedly..." Magnesium oxide "laxative, poor absorption" Magnesium glycinate "Glycine has some odd effects in large doses" (not sure what these "odd effects" are, but this guy was taking another supplement called "TMG plus glycine" and I guess didn't want to get too much) Magnesium orate (likely a typo of "orotate") "Probably good just extremely expensive" (KAL brand is like $10, other brands are like $60 per bottle) May cause cancer? Magnesium taurate "both magnesium and taurine have sedative effects, and are neuroprotective." Some other people say "don't bother with magnesium glycinate unless it's an Albion" which includes Carlson, Bluebonnet, Douglas Labs, Solgar.
  17. The magnesium taurate never gave me any weird effects. The only reason I got another kind was because the taurine was making me relaxed and while it worked well at night, I wanted to try something different during the day. I may try another brand of magnesium malate, or I may try another kind. I have a list of types of magnesium with comments I've seen about them on various forums. I'll post it in the reply after this one. I drink a lot of milk, do I get enough calcium with that? What kind of calcium is best? Are there different types like with magnesium? 2 parts calcium to 1 part magnesium, cool.
  18. So weird. I stopped the Mag Malate and the heart palpitations stopped. Started taking it again and they started up again. It's just a brief "fluttering" feeling in my chest that lasts for a few seconds that I feel once or twice a day, but still, that's weird, and probably not a good thing.
  19. Was "observation" in the doctors office? Tics are notorious for disappearing in the doctor's office. No one knows why although it's almost assuredly neurological in nature.
  20. Yeah, and make note of anything noteworthy. What I did for a while was assign each day (or you can break it into smaller time periods if you want) a number between 1-10 based on tic intensity. Have 1 be almost no tics at all, and 10 be constant ticcing.
  21. Keep a record of what you eat at what times every day. Also keep a record of how you are feeling and how intense your tics were on that day. Some things you may notice an immediate change, other things may take longer. For example, you may notice that when you eat a certain food, your tic gets worse for 3 hours afterward. You may notice that when you haven't eaten something for a few days, your tic improves. You can look for trends over time, like "every time I eat (something) my tic gets worse" or "my tic was better during these days and it looks like I didn't eat (another food) at all during that time," etc. If you have Microsoft Excel, you can make a log with days across the top and times down the side, like this: http://i.imgur.com/At8dc.gif And then you can put comments in each time slot about how you're feeling, etc. You don't have to fill out each one, just if you notice something different that you think is noteworthy. You can use the tabs at the bottom for each month.
  22. Now that you mention it, my neurologist also gave me reflex tests, but I think those were unrelated to the tics and are standard procedure for a first visit to the neurologist.
  23. For what it's worth, I was 27 or 28 when I went to the doctor for my tic and I didn't get any tests. I saw my PCP and also a neurologist. They both agreed I had tics and asked me what I wanted to do about it. I said let's try Clonidine (I had done a lot of research on my own beforehand). They said ok. edit - I forgot, I also went to an immunologist and asked for a strep blood test, which came back negative.
  24. Fencelatitidue, that was nicely presented information. 1tiredmama, glad Abilify is working for you. Just be aware that it can cause Tardive Dyskinesia.
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