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Observation of why son has had recent burst of tics
MARYANN replied to CarolynN's topic in Tourette Syndrome and Tics
Hi carolyn, My son had jaundice. My daughter is the one with the tics. My son was also very jaundice. I don't know did you hear that from any one? I also wanted to tell you why do alot of nerologists think that it can't be the food that there eating. I don't get it when so many parents are saying the same thing. It seems like you did a great job figuring out what makes your son increase in tics. I wish doctors would listen to the parents instead of looking at us like we have two heads. Thanks for the info Carolyn -
Hi Faith and CSP, Thanks for the info on the vinager I will try that. Now im not sure what I think it is. The doctor did say she has poor absortion. She can not have any kind of grease with out getting nausea. Right now she can't any way it was going good for awhile. I have to get her back on track.Well I hope it burns when she takes the vinager. I only have Distilled white vinegar in refrig. Is that alright? Thanks for the info
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Hi, Does any body no a natural way to get rid of heartburn. My daughter was doing good. Sheis on the digestive enzymes, intestinal support and prescribiton Aciphex for heartburn. The doctor gave me a 30 day supply the second week in Nov. I should be out of the pills but have 10 days left. He told me to make sure she takes it 30 days straight. Between her sleep over at her friends house and telling me she took it and guess she did'nt. I want to get her back on track. Is there anything else I should do? I'm going to call the doctor and ask for another prescribition and after the full thirty days if it does not go away im going to take her to a gastrologist. Does this have anything to do with tics? It seems my daughter can not have anything greasy with out getting heartburn. Any advice, Thanks for your help Maryann
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I was never diagnoised with ocd. Going back to my child-hood. I remember don't step on the line on the sidewalk. When I was in the car I always made games up and counted all the red or blue car. Same with houses , I would say a numberand count and that house would be mine. Silly stuff. Was that ocd I don't know. It was not until I was 21 that I kept peroixideand alcholol in my desk. I was constantyly washing my hands. When they started selling antibacterial lotion that was great. Still I never thought of myself as having ocd. I always check the whole house to see if everything is off. When I am stressed I can check it 3 - 4 times. I actually missed the bus because I had to check it one more time. It was not until my daughter was watching tv , I think it was Oprah as a matter of fact and said mom that's you. It was about a mom, She had OCD she was over protective. My daughter school is around the corner. She is in eighth grade, it makes me feel better to look out the window to watch her go in. Other things I did when they where little. The fork had to be on the napkin , if it hit the table I would give them a new fork. I did that about 2 years. Silly stuff. My daughter did not have any spike in tics. Still ticing the same. Only I notice it. My daughter does not show any signs of ocd. My son just wrote a report on college for ocd. It is something we don't talk about I just happen to come across one of his assignments and I saw a list. I asked him about it and wanted to know what topiced he picked and he said ocd. I asked to read it and he said no, he told me it was about me. I really would like to read that report! Does your son have to go back and do things over? Im sure there is different signs for kids im not sure of what they are. That does not sound like OCD to me alot of kids have thereown way of doing things. Im no expert im sure you will be getting better advice from people who know. Just like tics you can control ocd too. I feel when i am stressed I do crazy things. Thanks for the advice on the antiabiotics. Yes the nurse is a nurse practioner and she can prescribe medicine. I hope you find all the ansers your looking for sorry I was of no help. Maryann
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Hi Again, My daughter does have a virus. No Antibiotic needed, but does antibiotic makes the tics worse? Thanks
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Hi everyone, Im taken my daughter to the school nurse in about hour and a half. I just thought what if she tells me she needs a antibiotic, is there anyone she should not have? I hate the thought of telling the nurse she can't have a certain antibiotic,because so far everyone looks at me like im crazy. My daughter has a cold, and her throat and ear hurts. No fever. She has these red spots on her tongue. What do you think that is, could be a virus, right? Like always thank for all your help Maryann
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Hi, Anna My daughter does not wear braces. She had a high level of nickel and very high level of silver. I don't understand how this happens. Did you have your child tested for medal? He said my daughter had very poor absortion. Hope you find some answers! Maryann
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I also want to add I told the nero I felt my daughter tics started because she had her shots. She had TDAP 12/12/06 and then Menactra 11/27/06. Her tics starting first week in January 07. Eye twiching, facial tic , throat clearing.
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I went to a new neorologist yesterday because my first nero asked my daughter if she wanted to be on medication. The reason why I was so upset about that is he looked at her and asked her without consulting me first and I felt that was wrong. My daughter has been doing well and since I had appt to go to him , I made appt for a new nero just to make sure im doing all the right things I guess. BIG MISTAKE! Well I walked out of there feeling like an idiot. I told him I felt it was artifical flavors, he looked at me like I had to heads. My daughter did not help when she said she does not believe that is the cause. She is 13 and sometimes she has candy when im not around and she does not tic. Half the time my daughter does not no when shes ticing. The ticing never really bother my daughter. Except the eye tic which she has not had in awile. I feel my daughter has gotten better since I changed her diet, vitaims and no artificial flavors. Well any way the doctor made a point of telling me that he does not feel that it is artificial flovors and that tics are mainly caused by stress. I asked him so you don't think the vitaim defiency or her being nauseau all the time and having pains in her legs have nothing to do with this. He tells me no just continuing having her take a mul-ti. He also told me that he felt that my first nero was correct in asking my daughter about the medicine she a young adult and of course you would be consulted to. Im so upset about this I walked out of there saying to myself , what happened here. Another thing I wanted to show him, the papers showing my daughter had high levels of medal, he did not even want to look at that. Has nothing to do with it. Well im sticking with the doctor that put her on digestive enzymes and vitamins. I have one question my daughter was not ticing for awileuntil I put her on the viatims. She take gluthathiaol,vital-zymes, intestinal support and vita-tabs. The reason I kept her on it is becuse she feels better shes not nauseu in the morning, no more pains. I told her im thinking of taking her off and starting with one at a time. She does not feel like she is ticing. She is only ticing a little. Nobobdy can notice but me. Its just that it started the day afer the viatim. So im not surewhat to do at this point. She been taking the viatims for a little over two weeks now. Sometimes I feel I should just let more daughter do what whe wants to see what happens. She does sneak now and then but she does not eat candy like she use to. At the same time it took so long to get to this point. I just feel like im alone. I felt like I had the doctor and my daughter telling me im completly wrong. Then my husband comes home from work and I tell him what happened and he says, so this doctor wrong also and your right. When my daughters ticing alot he's the first one to ask her what she ate. well any way thanks for listening to me vent, im glad I have this sight to go to. Thanks again!
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Hi everyone, When my daughter got her hair sampled she had high level of metal. Has any one tried the Tekara Detox foot patch or any other one for that matter. It sounds to good to be true.
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Hi everyone, Can anyone help me out. My doctor told me my daughter should not be using any can food and not to cook in medal coodware. She had her hair sampled and medal level was high. Any recommendations on cookware. Do they make a glass frying pan? I guess I'll google that next. Any suggestions. Thanks
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I'm so glad your son is doing better!
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Hi Nick's Mom, Your at the right place for advice! I'm a newbie myself. My daughter is 13 and her tics started at 12. I hope it's just hormones. I never heard of Habit reversal therapy. Do you have Shelia Roger's book, that's a good start. Did your sons tic stop and come back? My daughter does not tic as much since I changed her diet. Shelia's book gives you information on how you go about trying to find out why your child is ticing.
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Hi Anna, Thats great if you found a enviromental Allergist. Where in NY. I would like the answer to that myself about the olive leave extract. Im in NJ. I already checked with my Insurance co. They are not under my plan. I'm still interested. If thats the way to found out I will find away.
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I apologize,Im glad your son is doing great! I missed that yesterday. Halfthe time im on the computer im rushing because my daughter gets upset. She said to me the other day I know your talking about me. Im going to look into the bonnie vitamins also .
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I apologize Anna I never heard of Coromega. What is it ? I think probably everychild is different and you should experiment until you get it right. It's funny you said that about the omega 3. My daughter has not made the clearing throat sound in months and she has been doing it for couple days now. I just started her on omega 3, so ill give it to her for a week and see what happens. My daughter pediatrician said the same thing about artificial flavors. He told me he never heard of such thing and looked at me like I was crazy. He told me the reason why my daughter has tics is because she stressed. Like thats the only reason why you get tics. I told him my daughters not stressed. He said all teanagers are stressed. Even my daughter was upset when we left his office. Anna, what was tested on that blood test. Im hoping you hear good News! Faith and Patty,I would love to give my daughter Natural calm. I have such a hard time changing her diet. Never could give her liquid medicine without a fight. When she was young she use to run and now she argues with me. I'll have to see about this one. I'll try. Imiquil Can a reglar allergist give a Igg test. Everyone thanks for all your help!
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Hi Chemar. I have not had her tested for food allergies yet. I figured I would go to this doctor first and he can make recommendations. I will get it done. I also thought of Candida, Im going to get that done.I have her on the fish oil. When Iwent to the viatim shop and asked for her with the mult-viatim. She asked for her weight which is 100 lbs. She was confused which way to go on that child/adult. I wanted pure like you said. She was unsure, I left there saying ill do more research. I hope its just the hormone changes. I spoke to my brother recently and he said mabey you should leave this alone. He said I had things happen to me when I was young. He told me for two years he had to stretch out his eyes and he could not stop. He said everybody use to ask him what areyou doing. I asked my brother at what age was this and he told me when he started taken the bus. Which would be 12. My day told me he did the clearing of thehroat sould for 3 weeks. He does not remember what age. The only reason he remembers is because he went to the movies and everybody told him to shut up. I don't no why I just told you all that I guess I'm just trying to figure out is this a heritery thing. I have to goget ready for work . Thank you so much for all the information. One more thing should I ger her tested for PANDA?
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Hi Pat, I went to the vitamin shop last week and they never heard of kids calm. I'm sure I can find it on line. Is that calcium and Magnesium. I was confused what to buy because then I read about taurine, and how thats good for you. I end up getting nothing. I was so happy when you you wrote to Anna. Im new at this and you gave great information. I never heard of CST, Thank you also because a couple of months ago my daughter had the tics in both her shoulders. Her back was hurting and she was in pain. Itook her to pediatric orthopedic. I was so upset when I left their, they did nothing. It was like what do you want me to do. Thank you Maryann
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Hi Anna, I feel what your going threw . You hate when your kids are in pain, sometimes you just want to scream somebody help me! Im new at this so im not going to give advice im more like you looking for advice. I understand about the shoulders, my daughters wing bone use to get stuck all the time. I also unerstand your frustration with the doctors. I think Shelia's book is going to help you alot. I'll give my neurologist credit he did tell me about the artificial flavors. I changed my daughters diet. I know artificial flavors had alot to do with it. Even though my daughter cheats sometime. There are certain things she eats and it's instant. My daughters arm tics all the time. Very mild but I notice it. Things have gotten better. Everybody tells me to leave this alone. But, She is always complaining something hurts. She nausea in the morning. She gets aches and pains. I think it's all connected and I want to find out what it is. The sight I went to for the doctor is www.acam.org. I think Icalled it a wellness doctor because on the doctor that im going to that's what he has. I got the site from Shelia's book it stands for The american college for advancement in Medicine's. I wish you and your daughter well, and Shelia's book is going to give you hope. Hope to speak you again Maryann
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Hi, Maryanne, I can REALLY sympathize. I posted my daughters story who is now 12 under ticks/childs ticks. This is also so very new for us. I am beyond scared, frustrated with all the tests, doctors and really do not know who to go to next and how to help her to go back to where she was just 2 months ago. I ordered Sheila’s book last Fri and am anxiously waiting for it to arrive. Our ticking started at the end of August and due to the constant twitching in her shoulders, the pain has also been severe. All the tests were negative. In the past 2 months, we tried physical therapy, biofeedback, acupuncture, massage (still doing it) and I will also take her to the chiropractor since now her neck is out of whack with all this muscle twitching. She is devastated because the kids are asking all the time what is this twitching. She started Middle School this year. On Sat, I started my daughter on liquid magnesium, tourette vitamin, coromega and good multi from the health store. No significant results yet; just she is not so much in pain anymore, which could be a result of acupuncture and massage. How do you find a wellness doctor, under what category? We live very close to NY City, in a highly populated area yet I am unable to find a doctor who can look at the whole picture. Also, how long have her tics lasted? Thank you. Anna
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Hi, Maryanne, I can REALLY sympathize. I posted my daughters story who is now 12 under ticks/childs ticks. This is also so very new for us. I am beyond scared, frustrated with all the tests, doctors and really do not know who to go to next and how to help her to go back to where she was just 2 months ago. I ordered Sheila’s book last Fri and am anxiously waiting for it to arrive. Our ticking started at the end of August and due to the constant twitching in her shoulders, the pain has also been severe. All the tests were negative. In the past 2 months, we tried physical therapy, biofeedback, acupuncture, massage (still doing it) and I will also take her to the chiropractor since now her neck is out of whack with all this muscle twitching. She is devastated because the kids are asking all the time what is this twitching. She started Middle School this year. On Sat, I started my daughter on liquid magnesium, tourette vitamin, coromega and good multi from the health store. No significant results yet; just she is not so much in pain anymore, which could be a result of acupuncture and massage. How do you find a wellness doctor, under what category? We live very close to NY City, in a highly populated area yet I am unable to find a doctor who can look at the whole picture. Also, how long have her tics lasted? Thank you. Anna
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Thank you thats what im trying to do. I left out she sometimes has the clearing throat sound but I have not heard that in awile. Can you get PANDA if you never had strep throat. I always get strp throat. My daughter never did. Thanks again
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Hi everyone, Ive been reading these post for a couple of weeks now, along with Shelia Rogersbook. My daughter now 13 has tics. It's mild now but I still want to research and find out more things. Im not good at writing. Here the order of whats been going on. age 11- she tells me sometimes she cant see for about 10-15 second , everything goes black. Shes see a neurologist, mri comes out fine. Also, orthomologist , did not pass peripheral vison test. then eeg did not come normal. Then, cardiologist tells me she does not drink enough water and needs salt in her diet. Blood pressure was low. Re took eeg and eye test came out fine. Everything fine for a year. Then, she starts which I now know is a tic with her neck and shoulders. I did not know it was a tic and told her to stop because shes going to hurt her self. She pretty much did stop I saw it a few times after that. Now being twelve her eyes starts ticing, couple months later her arms then a few months later her leg. Shes see a neorolgist, who asked her not me if it bothers her enough to be on medication. My daughter tics the most after a concert , she plays the flute. She also tics when she has gummy bears. I took her off artificial flavors. She remind me sometimes she cheats just to see if im right and nothing happens. I always remind her of the gummy bears, thats one thing she admits to. Well right now the only person that notices her tics are me. She tics with her arm thats it. Very mild to. But, she is always complaining shes nausea. She told me that she has been nausea in the morning for the past two years. Different part of her legs hurt . The neourolgist has not given me a recent mri or eeg. I'm going to acam doctor next week(wellness doctor). Well any way thats my story. I went to the vitimin shop twice. I only bought omega 3. I get so confused what to buy. I have ocd. Well I guess I do, I hate germs, recheck everything before I go out. One time my daughter was watching a show on tv and she said mom that you, they where talking about ocd. Well any way I learned so much on this sight. I would apprecate any advice thank you