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qannie47

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Everything posted by qannie47

  1. Here at joybops house for long weekend. She is a doll. So is her husband. Her pandas 8 ds is doing amazing. We see greenblatt today. My ODD food allergy son...almost 4 wks gluten/dairy/egg free...joybop does not see one trait that I have described. He is truly a different child. Amazing...now..just need to see what greenblatts approach is for the adhd...he also claims food allergy a part of picture
  2. An infection is still present I bet. It took 6 weeks of abx to clear up flares for us on a couple of occasions. Good luck, you will get past this
  3. YES! About 24 hours later, he turned into a snotty, edgy, disrespectful crab....UGh. However, 3 clean diet days later, "My love child returned!!" No edge, patient, no tones...I have to be careful to remember though that he is still 8 and is a boy, so............ As for as your red cheeks, did you check Sasyclites? I misspelled it. The red cheeks are the main symptom for Sacylite issues. I believe there is a dietary enzmyme that works well. LLM knows the name. My ds came back sensitive to those as well, but I do think that over the last year, it is less of a problem for him because in the
  4. googled Broxil...lots of energy used to get to the bottom of what it actually is...this concerns me. Why am I not hearing typical meds to treat strep infection??? Still unsure what Broxil is.... To me it makes perfect sense to treat infection before going to prophylactic dose?????
  5. Sometimes it can take several weeks/does of the same medication before you see results. Although, you have already seen results...just not lasting. This tells me that you are on the right track. I would continue with same abx, maybe for up to 6 weeks, (which can be standard for Pandas). The abx does three things, wipes out the infection, works as an anti-inflammatory in the brain, and can shut down the immune system, which is the problem in the first place. Good medicine takes it slowly. You need to let less stronger meds try their thing first. By doing so, you are building a history. Fin
  6. Thanks Cara, and don't beat yourself up either. My smileys are not working again.
  7. Hi Trintybella, I have no experience with Lyme, so I have no advice. But I just wanted to extend a hug...sorry things are so tough right now.
  8. Just a vent here. Truly. I have a habit of quitting smoking for about a 5 year stretch....Then I start again. Call it Pandas, Sensory Issues, ODD. Whatever, when it hits the fan I smoke. Coming off my last 1 1/2 year stint of my love for Marlboro Menthyl Silvers 100 for about 1 week now...I can't help but think, "Really!!! After all I have been through??? I am supposed to give up my one vice when I still have ONE child to get through the wreckage???" "I have to cook gluten, Dairy, Egg free and not smoke?". To please the WORLD I have to give up my one thing that gives me pie
  9. No Kidding SSS...thanks, you made me smile.
  10. WOW. That's all I can say is WOW. As parents, we see the best in our children, despite the obstacles. Despite what the books, psychologists, teachers, doctors friends, family, etc...SAY to US. We the parents, see the best. It is what we reach for. Your story. It is so encouraging. Such nutrition for the soul. The tired soul. The overwhelmed soul, the soul that second guesses, the frightened soul. Yet the fighting soul. Because it gives Hope. Hope, that thank GOD, when you dissect this forum you find Hope & Healing. Thank you so much for sharing your delightful journey.
  11. Hi, in recent posts, I have shared that my ds is allergic to gluten, casein, whey, and every aspect of eggs. I have him on a elimination diet that really has yielded some nice results. Two days in a row, my ds ate something that he was not supposed too...doughnuts by a friends house and then a big Snyder's pretzel the next day. Question: How long do you think it will take to leave his system? Also, do you think that even one doughnut can throw all that I have achieved out the window? I am aware that even trace amounts can have an effect, but I am hoping that given that the rest
  12. If she is still doing the behaviors, no, she is not over the episode. That does not mean that the infection has not cleared...remember, it can take several weeks for the inflammation to go down even after infection has cleared. I would still do a re-check to make sure the infection is gone...
  13. I Pm you, but as I re-read, you may have some co-morbid conditions...That is okay, most of us do. Seriously, what stands out loud and clear is the fact that she responded well to the abx. I would insist, maybe manipulate at least a 6 week regime of full strength dose of abx. Start there. Try and get her symptoms somewhat under control. Maybe even a steroid burst. If she responds again, that will be a lot of info. Second, I would work quickly to find a doc whom is experienced with neuro-psyche conditions associated with illness. Those swollen lymph nodes, My Pandas child had them until he was i
  14. I would start a higher dose of abx as if she is sick. Catch it quick... What I don't understand is why some of these docs wont do a simple strep test....
  15. I have used Howard Glasser's approach, The Nurtured Heart Approach, Transforming the difficult child'. It works wonders. Not complicated either. He has a video that I suggest. I will admit, It worked best on my non Pandas child. For my Pandas child, it did help me to learn how to stay neutral, since any emotion would exascerbate him.
  16. Pandas symptoms can become a pattern of behavior even after the flare is gone. The fact that he is able to "pull it together", like for karate or when something is purchased, or bribed is a big clue. Pandas does not work that way. When a flare is still at the root, it the behavior follows every set of circumstances..
  17. Pandas symptoms can become a pattern of behavior even after the flare is gone. The fact that he is able to "pull it together", like for karate or when something is purchased, or bribed is a big clue. Sounds a little manipulative. Pandas does not work that way. When a flare is still at the root, the behavior follows in some way in every set of circumstances..It is true that in another setting, Pandas kids can contain themselves to some degree, however, it will leek out to some degree, perhaps in a different way.
  18. My son as well morphed into an aggressive, bossy, controlling, and mean child when he was in flares. This aspect was one of the harder ones to watch. I think it is the inflammation at the dopamine receptors that can take credit for this. My ds is really such a sweet little pea. He is my one that says, "oopsies" when he drops something. He is very loving and still loves to cuddles. At school, and other social arenas, because of some of his big flares in the past, I know that he is viewed as a child whom is thoughtless, and a bully. This could not be further from the truth. But try exp
  19. Thanks Powwow. Yes he is much more allergic to the egg white. I am assuming it is the protein in the white....
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