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Everything posted by qannie47

  1. New chapter turmeric force..2 a day. Don't buy cheap stuff
  2. Your 5 year old sounds very similar to my son whom was dx with Pandas at age 6. I would find a Panda's doctor. Some advice: Do not take him off the abx until he is symptom free of behavioral issues. This could take several weeks. There is a high co morbidity between Pandas and ADHD. My son is doing well for a handful of years now. He does have ADHD. Recently I have decided to put him on Vayarin; an Omega 3 type supplement that is shown to help with emotional control that is typical with ADHD. Even if your son does not have ADHD, I am thinking this could support the anger/rage issues th
  3. Months ago I shared that food allergy treatment was our final piece to the puzzle in getting rid of symptoms that seemed to have no explanation. It seems to have held as well. Last October though, my perfectly healthy 100% free Pandas child of many months flared from a tetanus immunization shot. A flare could not have been further from my mind, and I did not even recognize it right away. We started ABX (an increase from his prophylactic dose) without any great results. I started advil 2x a day and that did the trick. For the most part he has been back to 100% again with very minimal wax
  4. If active infection..abx important. However, I have come to believe that advil works best due to it's anti-imflammatory properties.
  5. We did many things to help my child with Pandas. ABX, IVIG, supplements...all helped. Figuring out that an autoimmune was also playing a role in flares was in my opinion the last piece of the puzzle. Yes...an auto-immune diet would be very helpful.. Food allergies also can play a big role. Eliminating these can be very helpful but also very difficult to avoid...as their are trace amounts in many foods. We did food allergy treatment and that helped with that...see my other posts.
  6. Hmmm. I don't find myself saying this often, but your case sounds about as straight forward a case of Pandas as it can get. If I remember correctly, ear infections can be caused by strep bacteria. I do not think this most recent set of symptoms that started in september is the first episode either. Dr. K theorizes that Pandas is a slow building storm, with minor clues that don't catch a parents radar (like the 3 week hand washing episode..but then it goes away). Think back to any weird quirky behavior, that was Atypical, maybe lasted even only a few days, but then went away. Dr. K's res
  7. When my child was diagnosed with PANDAS 4 1/2 years ago, Standford seemed to be one of the only institutions that was studying it in a pretty big way. I would have to assume that they could be several steps ahead of many with understanding this convoluted disorder and treating it. Best of luck!
  8. Thank you so much for sharing. It encapsulates the journey of so many on this forum. What I love best is your message that reminds us parents to embrace the better moments....and Acceptance. What has kept me most sane and hopeful is the knowledge that most people carry a cross of some kind. We are not unique. I draw strength from that. Continued Blessings, Q
  9. Here is a link of testimonials.....there are tons http://www.midwestallergyrelief.com/testimonials.htm
  10. The Therapy is called AAT Therapy here is the link Allergy Video for PC <https://www.hightail...CbEFubHk5TE5Vag> AAT Video for Mac <https://www.hightail...CbEF6RTgxWjhUQw> If anybody is unable to view the videos, you can call Midwest Allergy Relief (847) 392-7901 Ask for Beverly, she is Dr. Ian Wahl's wife and office manager. She will resend the video. P.s Technology has advanced in this treatment...instead of applying the broken down components of each elements on the skin during treatment, they apply a cuff that is connected to a computer that sends the components di
  11. Update: My Pandas DS has so far made it thru the first 5 weeks of school with absolutely zero Pandas symptoms. A FIRST. Since ds has been lucky to have responded to past IVIG's (2) and has done well, my hopes were that the hidden antagonists (not quite full blown flares, but more like minor bumps in the road that lasted anywhere from a couple of hours to maybe 2-3 days), was the food/inflammation. I am now convinced that the food allergies were the culprit. He has received perfect behavior scores at school for 5 weeks straight. His ability to self regulate for very age appropri
  12. The online game is called Plants vs Zombies (7 yr olds love it). Ha! The Pandas "take-a-way" for me is that after dealing with that special form of Crazy....it takes a lot to phase me at this point.
  13. This season was a tough allergy season for the entire household. Even my husband was affected, he he never has had issues. My kids have been complaining all summer about sudden headaches, dizzy, stomach/nausea only when driving. You may have seen my recent thread about allergy treatment, but it was for food only, did not treat mold, etc.... My thought are that since seasonal allergies mess with sinus channels it has to effect the inner ear in some way. Which would make sense with the symptoms they report. When the car stops and they are out of the car, the symptoms clear immedia
  14. I am not sure if I am remembering correctly, but I thought Sheila posted something about 6-9 months ago regarding a new patch that appeared to be very effective with tics..... The company was offering a free trial with the patch?
  15. midwestallergyrelief.com/ You can call Beverly and she will send the video link directly to your email. mama2alex: Yes and No. Some things are straight forward, like food coloring. Others more complicated like Gluten/Wheat : it's a panel of treatments that would include everything that a piece of bread might contain... Once done with a group/Gluten, yes...you can tell if it worked right away. Wisdom: Midwest Allergy Relief Center, Dr. Ian Wahl . Yes, can work for mold. In fact, just asked him about that for myself cause my allergies with mold are terrible. When I save
  16. I know someone whom is in the same situation (possible that seizures are related to Pandas)... I PM'd you.
  17. Just came across this documentary that seems to be in the process of being made. Shocked that I was not aware of it. Anybody have any info as far as when it will be released?
  18. I don't know if this will be helpful, but I came to a point where while I knew that my ds had Pandas, I realized that there were co-morbid issues. I separated out those issues as best I could and treated those individually. For example, for my son food sensitivities played a big role for behaviors that seemed inconsistent with fitting into a neat tidy box Pandas presentation. Another example was the Right Brain Auditory Processing Disorder that we uncovered after more digging. There were other co-morbid things as well. AS I learned, what I came to believe for my son was that no one D
  19. Wombat: They do an initial testing. They seem to test for everything under the sun. It was a total leap of faith because of A) How they administer the test, B)How many sensitivities seem to come up for everyone: they claim they can tell if it is IGG or IEG... C)How they treat, which is thru acupressure while simultaneously sending the signals (the allergen) thru what looks like a blood pressure cuff to reverse the bodies reactions... To some degree you can pick what you treat...however, there are a lot of things that bleed into each other so you have to treat a whole spectrum of things.
  20. Since treatment, DS has been eating Dairy, Egg, Gluten. No Reactions. Here was my big Ah Ha.... He came up with food coloring sensitivities. Yellow 5 and B1 (not red 40 ). After treatment for the food dyes, DS went to another level of calm. So calm now for about 3 weeks now that I don't even want to believe it. DS has been doing great for 2 years now, but with odd little bumps in the road of hyper/moody/anger moments that would last maybe a 1/2 day or at best a week (rare). Even on the clean diet. I think the missing link was the sensitivity to food coloring. I have never seen
  21. Well, we have been to the "witch" doctor and ds has finished the dairy portion of this very involved treatment. I have tentatively allowed him to eat a Hershey's bar, a 1/2 cup of ice cream, and a small amount of cheese. Ds typically reacts within hours of eating small amounts of dairy. I have waited 3 days between each exposure to see if he would react. No reaction. None. He will be treated for egg, gluten and food coloring soon. Really still can't wrap my brain around this....but moving forward.
  22. My only thoughts is that you can use an advocate to make sure your rights are followed thru with. What did they say about not informing you about the strep?
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