trintiybella

This is what she is on. Do you think the amphoceterin is enough for killing the yeast? 11pm 50mg Minocycline 800mg Bactrim 100mg Ampho D3 5PM 50mg Minocycline 800mg Bactrim 100mg Amph 10PM 5 Sm. Scoops D-Lactate 3mg. Melatonin 50mg Mag. Citrate 100 Ampho 6mg. Seroquel

Yes, first thing we did was go down allergy/food sensitivity road. Fiengold diet, cave man diet, just turkey, pears rice and lettuce diet. Saw no difference but we still try to keep gluten and dairy out! All she eats lately is apples and sliced turkey. She thinks she's fat and she's trying to get something called a "thigh gap". Have you heard of "it"?

They are not sure when a bed will become available. Must be a super busy place! My child is flipping out because her schedule is being messed with. Oh boy! I will keep you posted.

She's staying for 3 days at NYU. I want to bring her probiotics but am concerned about it being out of fridge. Will they lose potency being out of fridge for three days? I don't want to put them in their fridge because its a powder and I'm a paranoid mom thinking someone could slip something into them!!!

She has just started with this eating disorder thing and has been living on apples and nutella and its all she eats. She is stuck on feeling like she is fat, and she is stick thin. I remember years ago, trying a houston enzyme and it made her poop. I think it was Houston enzyme. I will have to try it again.

Yes, tried all of them. Even magnesium citrate liquid does not work. That stuff makes most people go! I am going to try the probiotic called align next. Heard its great for constipation. Fingers crossed.

Ok. Massive constipation over here. I have tried everyones suggestions and even the strongest stuff does not make her go, but guess what does? If I start and stop probiotics, she will poop. Its like a years worth that is released. (sorry gross) but it is not the probiotic that constipates her because if I stop giving it, she continues to get constipated. What makes her poop, is stopping and starting it. I can't do this all the time though cause when I stop and start things she gets too aggressive. Why would this be happening. Sounds like something really wrong with her gut, right?

What medications do they give if your high on mold? How is it treated besides ridding you house of the nasty stuff?

Perhaps this will help you.... Before I started the antibiotics my child took any pill that I stuck in her mouth. She did whatever I wanted her to do. After being on the antibiotics for 3 months, she starting giving me a really hard time. I think because they were making her so sick and more agitated. She just became so difficult. The antibiotics in our case help with severe insomnia but they make her much more agitated and aggressive. Not sure if this could be happening with your son. Good Luck.

I know. Poor kid is right! I am a wreck wondering if this is the right treatment for her, but nothing ever works for her. It' just awful. So if I give her a break....what I will have is a kid that is stuck in front of computer watching the same show over and over, and she wants me there with her. She won't let me go. She gets real silly, when the thoughts pile up for her, but she is not mean. She will also be up around the clock for days. Scares me that she never sleeps, but perhaps Dr. N. @ NYU can see how she REALLY STAYS up for 3 days at a time, and more if I don't start adding meds. into her. Good God, this is so horrible. Thanks, I think I am going to give her a break.

Thanks for all the suggestions and sorry about the way my meds. were listed. I fixed it. What I have is a child that stares at the computer and stays in bed all day because she can not walk from the bed to bathroom to even relieve herself, because she said there are just too many steps to follow to get there. She tries to walk there and then a thought pops in her head, then another, then another, then another...so she gives up and goes back into bed. I think this is a big reason why she has such severe constipation. She holds it all day and then stool gets hard as a rock inside her, and the cycle begins. She NEVER takes head phones off or sits to eat dinner because she gets too impulsive from the intrusive thoughts. You can barely talk to her. If I ask her a question, it has to be fast and then she has her head phones back on. The intrusive thoughts are worse on antibiotics, but the severe insomnia is better. So I am thinking, hummm.....what's worse, up for days around the clock or watching her suffer so severely with the racing thoughts. She is begging for me to stop what I am giving her, because she would rather be up all night and never sleep, instead of these thoughts being so bad. Don't get me wrong, they are still bad even without antibiotics, but worse on the antibiotics.

The intrusive/racing thoughts are the worst! Psych. drugs make her worse, but what else can I try??? Any suggestions? This is what I am giving: MEDICATION 11pm 35mg Milk Thistle 50mg Minocycline 800mg Bactrim 100mg Ampho D3 5PM 50mg Minocycline 800mg Bactrim 100mg Amph 10PM 4 Sm. Scoops D-Lactate 3mg. Melatonin 50mg Mag. Citrate 100 Ampho 6mg. Seroquel

I am so anxious to get an update from you. Are you feeling any better? Still impressed with NYU?

Does your child complain of depression while being treated with antibiotics and what helped?

Thanks for the help. Melatonin does nothing here. There racing thoughts are just not touched by most psych. drugs or antibiotics right now. :0( Good God, she comes out of left field on me, when she snaps with these racing thoughts. . Scares the "cuss word" out of me.

OK. Off the antibiotics, she stares at the computer and is stuck on one show over and over, and is up around the clock. She is up for 3 days straight and no sleep in sight. I panick and start all kinds of drugs and nothing helps. She is sleeping better with the meds. she is on but super aggressive. I have to explain as best I can what happens. It seems like her racing thoughts get worse and worse, and then she snaps. She the has to follow through with the thought that is on her mind, even if it means me running her into NY at 3am. THERE IS NO WAY TO BREAK THE THOUGHT, AND I MEAN IT. Or her thoughts and thoughts seem to race and she gets really impulsive and does odd things. You can not live with her. I am so ready to have her lie in front of computer all day and have some peace, but then I have to deal with her NEVER SLEEPING. I have tried SSRI, and there bad! I see Dr. N. on Dec. 17th. Can anyone understand what I mean when I say these thoughts seem to reach a crescendo and then she bursts out in impulsiveness or rage? I tried topomax too and it made her worse. I am having a really tough time. 7AM 1 Ampho. 100mg 11pm 50mg Minocycline 800mg Bactrim 100mg Ampho 10ml Iron 70mg Milk Thistle 5PM 50mg Minocycline 800mg Bactrim 100mg Amph 5000 UI D3 10PM 4 Sm. Scoops D-Lactate 3mg. Melatonin 50mg Mag. Citrate 1 Ampho 6mg. Seroquel

Tu4four. Don't be hard on yourself! Your amazing what you take care of and accomplish! Your doing a great job!!! It is NOT easy, so don't go there!!! We are all there for you!!!!

My child takes it. She takes 100mg 2x's p/d. Can you tell me what other benefits your know of besides mold/fungus. Thanks! I have seen this stuff pull her out of her "stuck" little world. It has been helpful here.

My LLMD does not help with this gutt stuff. I am in the process of finding someone else but until then, I need to get this constipation under control.

I'm sorry for you! She does love you, she's just too sick right now. She will feel better and you will hear her say "I love u mom." It must be so hard with other children in the picture. I can't imagine! Hang in there. Wish I could help more but I have a mess here too. It's like living in a war zone 24/7. Sometimes I think a little anxiety medicine for us moms is not a bad idea!!!

S.S. put my girl on some aphoceterin and it REALLY helped with sleep. Before that we tried some difluan and it did not touch insomnia. S.S. said the amphoceterin is more for mold and fungus. She did test positive for a fungal infection in the past. Is "fungus" the same as "yeast"? I think this is a very important piece of the puzzle since insomnia was huge here. Any comments?

Ophelia, I'm thrilled to hear you sound so good. You have been through so much and deserve it! Do you have links to Dr. N.'s research papers

I will. She goes Dec. 17th. Their trying to get her a bed sooner. She is declining BIG time. Thanks and I will let you know how it goes and what he finds.

Dr. N. thinks it is inflammation with my girl, and wants to do some tests. My concern is what if he wants to try steroids with her. Dr. Jones said steroids are not to be given if a child has lyme/bartonella, which she has???

He said "we will leave the bartonella/lyme treatment to the infectious disease doctor." He did not have a problem with her being on the bactrim and mino., but he said it is most likely that the minocycine is the one that is helping. She goes into hospital on Dec. 17th. She is already telling me she is not going. Should be fun!!! More bribes on the way....