Chemar

Hi I can see why you feel frustrated!! There is a big difference between tics and seizures and so it is very important for the doctors to do correct testing to determine what is going on I would also like to recommend a good Epilepsy/seizures forum where you might be able to get some input...there has recently been a mom also struggling with whether her child has seizures or tics http://neurotalk.psychcentral.com/showthread.php?t=23760

hi Hannah yes,overheating has been documented as a major tic trigger I know we do have other members here from the UK so hope they will be along to give input. Being summer vacation time, the boards are a lot quieter at present Have you got Sheila's book? Although it sure does not replace the guidance from a qualified doctor, it can answer many of your questions and also give you so much info on the subject of natural ways to treat tics and TS http://www.latitudes.org/book.html

hello no, he isnt doubting his own memory as far as I know...he is however exhibiting the classical repetitive actions/thoughts that accompany OCD He recounts the money because he feels the compulsion to do so or is obsessing over the correct amount People with OCD will often tell you they are doing (or thinking) something because they "have to" or because they need to get it "just right" Have you looked at the pinned thread here for useful websites and resources? Something like Cognitive Behavioral Therapy would likely benefit him. It is by far the most effective non medication way to treat OCD

Hi Mary Epsom Salts baths can be very calminative Bach's Rescue Remedy is also good to help calm stress GABA is often recommended for stress, but one should check the dose for children There is also Cognitive Behavioral Therapy which can be very beneficial

that is very good news Mike...thanks for the update just for the record, was your child treated with any antibiotics for the strep?

light sensitivity can also be related to the sensory integration dysfunction (SID=hypersensitivity) that many kids do seem to have in their sensory mechanisms Fluorescent lighting has been identified as a major tic trigger as is most other "flickering" light

Hi sorry to hear of the frustration you are experiencing Do you have a dx of Tourette Syndrome for your child? sorry if this has already been mentioned. If this is Tourette, then it really will be a lot less stressful to realize that people with TS tic. Period. We can do a lot to minimise the severity and frequency of TS tics, but there is not yet a "cure" as such for TS tics If you do not have a TS dx then there may well be other triggers or issues (eg heavy metals, candida, pyroluria etc that need attention. I am assuming PANDAS/PITANDS is ruled out again, forgive me if I am mentioning things you have already posted on....I have been dealing with a family bereavement and a heavy workload and so have not been as attentive as usual

Lenny for many people with TS, "habit" is part of the OCD that frequently accompanies tics. So certain tics may be activated by certain actions, tastes, smells etc...........for my son, when he had a bruxism tic/OCD blend, eating or drinking anything sour or with certain textures would set it off, as did metal eating utensils. So it doesnt surprise me to hear of your son's tics showing at those times it is also very important to rule out any possible triggers in the actual toothpaste and or foods too

CP we used Inositol in morning and 5HTP at night for when my son's OCD was sky high since that has stabilised, he takes 500mg Inositol a day (no 5HTP) in the evenings before dinner, with the rest of his night time supps(including B6)

stress is a very big tic trigger...both good stress (excitement) and bad stress I find for my son deep breathing and his Epsom Salts tubs are really helpful when he is stressed. i put a few drops of lavender oil in the water too

nadine there is biofeedback and there is neurofeedback biofeedback is used on many parts of the body and is VERY different from neurofeedback, which I personally am not a fan of Biofeedback uses resonance frequency etc to allow the therapist to take readings of affected parts and then program the machine to use that feedback to reverse the negative to a positive...a very simplistic way I am describing a very intricate procedure

sounds a good dose CP glad he is doing better today (((Hugs))) and blessings to you

CP how much INositol are you giving and what else is it mixed with? also, is he getting B6? as you mentioned that is likely the root cause of the tryptophan problem?? Inositol, being a B vitamin, is generally very safe to give but it does need B6 to be properly absorbed. Many brands add B6 to the mix

Hi CP so glad your son is doing so well off the risperdal Turkey is one of the best meats re serotonin but overall, trying to get neurotransmitter boosts from meat is nto sufficient if there is a deficiency You are always going to end up with the dopamine effect as well, which is why, if serotonin is needed, a supp like Inositol, Methionine or, if very deficient, 5HTP works best One just cant eat a healthy diet and totally avoid stimulating dopamine Vitamins like C will work synergestically in biochemistry, but I have not heard anything specific re vit C stimulating serotonin your child is one of a very few I know of who tics less when ill......so cant help on that but no, I dont think it is OCD linked sorry not much help to you on this, but hope someone else will be along with more input God Bless, CP Cheri

Hi M&D it really depends my son always gets the central needle at the top of his head after that, out therapist places needles at meridien points that best help with the SPECIFIC tics or ailments that my son reports to him I must stress that it is very important to find someone who does clinical acupuncture and is fully certified etc. The therapist we use is also trained in reflexology, resonance biofeedback, and a number of other techniques which he usually uses simultaneously with the acupuncture as required.

hi Janey just wanted to answer here for the record, even tho I did answer in PM too 500mg/day Taurine is the usual adult dose and so half that is generally recommended for someone under 12yo/100lbs remember that giving magnesium with the taurine is important re the electronics...if you do a search here for "screens" and user name "Claire" you will find a wealth of info HTH

hi as long as he is getting calcium from other sources , then taking the Kid's Calm is fine

sorry I am so late replying here..work plus family bereavement has me very short on time at present you may also want to look into the magnesium taurate tabs that are made by both Bontech as well as by Cardiovascular research as they contain both magnesium and taurine My son was around 130 lb when we started taurine at 500 mg per day, which was given with his cal:mag:zinc (800:400:25 then and now 1000:500:50) It is the working TOGETHER of magnesium and taurine that is mportant so do be sure you arent just giving taurine with no mag gotta run...will try to post more later Cheri

Hi M&D my son has genetic Tourette Syndrome and so in all honesty, for him. nothing ever fully "stops the tics" BUT the treatments we have had in place for around 7 years now have without a doubt diminished his tics and OCD, and even his ADD and SID are now far less bothersome to him According to my son, nothing brings quite the fastest relief for him when he is in waxing mode, than acupuncture and chiropracty, followed by his Epsom Salts bath, which he still takes most nights before bed (He is 171/2 now) He has actual acupuncture and altho he was nervous of the needles at first (10yo) yet after the first session (and because we have an excellent acupuncture therapist) he actually looks forward to it Acupressure is very good and certainly worth trying, but the actual placement of the acupuncture needles and their effect on the meridiens is something that IMO cannot be matched by acupressure I have mentioned many times that I truly believe that, at least when one is dealing with Tourette Syndrome, there is no magic fix and no one treatment is "the" solution...instead it is a combination of factors all working together that makes the most differentce..........in my son's case this was the correct supplements (with magnesium being primary), pure healthy diet with NO artificial ingredients), det0xification from heavy metals and candida, PLUS the remarkable benefit of acupuncture, reflexology, resonance biofeedback and chiropracty I just wrote something on NeuroTalk re the chiropracty http://neurotalk.psychcentral.com/showthread.php?p=127102 Hope that helps and all the best to you Cheri

hi so sorry you are suffering this way. I often point people to the community of forums at PsychCentral as there are just so many members there dealing with similar issues who can maybe offer you insight into what you are going thru Also, the weekly free Live Chats with the psychologists can sometimes bring answers here is the link to the forums there http://forums.psychcentral.com/ and the main website is http://www.psychcentral.com

hi mblack yes, I can see why you feel overwhelmed as that is quite a list of allergies!!!! the good news tho is that many kids do seem to "outgrow" some of their sensitivities, and, as the body begins to heal and have an allergen reduction, so often the extreme sensitivity to so much also diminishes Do you have a Whole Foods Supermarket anywhere near you? They carry a wide range of products to substitute for those allergies I know there are a lot of threads here and in the read only archives on rotation/elimination diets etc so maybe also do some searches here for those This really is one of those things where you will need to take it one day at a time and slowly make your readjustments to his and the family diet. It is hard at first, especially with very young kids, but will be oh so worth it to get your child's body free of things that irritate it

Hi Carolyn I honestly dont know of the NeuroScience products, so can comment on them However, I would absolutely agree that it seems "off" to be giving your son that which he doesnt need ESPECIALLY neurotransmitters, because even the slightest change in these can have big results!! especially in anyone who is already having a neurological issue One also does have to be VERY careful with amino acids as some (like taurine and L-carnitine) are very frequently beneficial to those with tics and TS but others(like tyrosine and even phenylalanine can accentuate tics because of their effect on the dopaminergic system When it comes to supplementing Bs, I agree that they are so very important but one also has to be careful in the method of delivery as some people (including me and my son) just dont do well on those B complex pills and benefit rather by individual Bs or even from Royal Jelly, which is a natural and rich source of B vits. See, for some, they only need to supp with some of the Bs, not ALL(we had a thread here in the past on this, and discussing methylation etc) As to magnesium, that really is a key element in supplementing for tics ...many parents here are pleased with the results they have seen from the Kids Calm and Natural Calm powdered magnesium drinks, and of course the Epsom salts (mag sulfate) baths are just so beneficial I thik the major problem with young kids and Bonnie's supps is the fact that they have to take so many....one of the reasons why some of us prefer to put together our own combos from different sources. The very good thing tho with BonTech supps is that they ARE so carefully and specially formulated. I know some parents have found that mixing the contents into smoothies etc is the only way they can get them in to young kids

hi Claire always so good to see you here! 2 things come to mind has he been on antibitoics? as these can trigger this you mention food allergy testing but what of environmental...he could be reacting to laundry detergent etc on his clothing, chlorine in pool, body soap etc gotta run but just wanted to mention those

Hi Tom's Mom and welcome seems to me you are very in tune with some of your son's tic triggers eg the chlorine and possibly the dairy the only thing good your neuro seems to have said was that this could be transient tics which usually resolve as kids grow up. However, re the chlorine he is clearly clueless as many people, not only those with tics, note adverse reactions to chlorine exposure, and I certainly would urge that you be very careful before starting on clonidine I have heard of albuterol triggering tics and I recall others here mentioning that certain nasal sprays do that good to stick with the saline spray and maybe also consider putting an ultrasonic cool mist hydrator in his bedroom...this has made such a difference for my son! They are around $50 at most pharmacies gotta get working but I know others will also have input for you all the best