Chemar

kallik I would urge extreme caution at attempting self acupuncture and would *highly recommend* rather going to a qualified clinical acupuncture therapist and letting them perform the placement of needles. they are trained and certified and this is not something that can be done as trial and error . my son has always had tremendous benefit from acupuncture...but I would be very cautious of this being referred to as a complete "cure" for eye blinking TICS, especially TS blinking tics JMHO

hello Hope so sorry for what you and your child are going thru Could your doctor consider zithromax?(azithromycin) I dont have a PANDAS child but I do know it has worked well for many,including members here with PANDAS children...... and from my own son's experience it was beneficial in the early phases when his Crohn's Disease was serious, and he is also allergic to penicillin hoping things get better soon Cheri

Hi emma I dont have any experience with a PANDAS child so will not even attempt to answer re antibiotics, but did want to say I hope you are all beginning to feel better. No fun when family is ill...and especially mom too. also wanted to mention Monolaurin (we get ours at the local Vitamin Shoppe store and it's also on their website) It is lauric acid from coconuts and proving to be one of the most effective natural antimicrobials. We keep some here always as a family antibiotic when needed, and its part of my son's supplement program for his Crohn's Disease not sure if it can be taken with regular antibiotics so do check with your doc before giving to the PANDAS child, but was more referring to it as a help with the rest of the family

I so agree with that Calicat! I know that my son simply could not take some of the supps that others do well on...it had a very negative effect on him. (example here is B complex, and niacin in any form as a supplement?? ) altho I havent delved into the deeper reasons why as so many of you have, I know it must be rooted in his biochemistry somewhere. testing and tweaking was the way we finally were able to come up with what works best for him, and tho I dont always understand the whys, I sure am thankful for the results

I know we are represented on this board by many different faiths and beliefs and philosophies, and so I am just leaving this message here for anyone who may be encouraged by it When I read it again on another board today, it ministered to me, because it really resonated deep within me. And I immediately thought of this board and how I came to be here.......how I initially "found" the old webpage that Bonnie Grimaldi had with her treatment protocol used for her loved one, and then "found" Latitudes Magazine at a friend's house and then this forum and a whole new vista on my son's possible triggers and treatments............ ..........all after pulling tearfully to the side of the road one day on hearing a song about a father praying for his sick child ("He's My Son"). It was in the first year of my then 10yo son's onset of the severely injurious tics and OCD, and I was terrified for him and felt totally helpless as I saw medication after medication make things spiral downward in ever widening circles, robbing him of his personality, talents, and more and more of his health and wellbeing...... Something happened that day as I cried in the car, and I was TRULY able to "cast my burden" for my son "on the Lord", and start letting Him lead the way for helping the child that He had so blessed me with. I look at my 18yo son now................and all I can say is................... I am dancing I hope this devotional blesses all who read it Cheri

you are very welcome kelly same thing happened to me and I was getting real confused.... it was when I saw Michele's post on another thread that i realized what may have happened and sure enough...when i went into options I found the way to reset things to the standard format. relief!!!

just wanted to present the other side of the coin......... in that my son is highly sensitive to the artificial additives in foods but is not salicylate sensitive in fact, white willow bark, aka nature's aspirin, is one of the supplements that he successfully takes for his inflammation from the Crohn's disease and it is naturally high in salicylates. it does not increase his tics...if anything, his tics are at a very level plateau since he has brought the crohn's more under control with diet and supps etc however, we do have a looong list of members with many past posts, who sure have found salicylate sensitivity to be at the root for many of the food triggers and so it is very much worth looking into..especially as the list on your child's diet is high in salicylate foods

also craving sugars, and high carb food can sometimes be a sign of Candida albicans "yeast" infection as this fungal parasite thrives on those foods. another thing to remember, which may already have been mentioned, is that regular allergy testing often doesnt show SENSITIVITY to certain things in the diet, environment etc....that is where documenting eliminations and reactions can be so very helpful hope you find answers soon ...it is such a relief to get to know the triggers and so begin to see the improvements by removing them as much as possible

I would strongly recommend that you seek the help of a professional on this. the board here is not equipped to deal with issues such as this I would again like to point to the Forums at PsychCentral where more help is available in the form of peer support as well as live chats with professionals again I stress that anyone having or acting on sexual impulses toward children should seek immediate professional help. Even if you would not act on these impulses, the torment they are causing you is reason enough to see a therapist/counsellor etc hoping you find peace

hi since the board got reformatted you may notice a different display to see the threads with all posts use the drop down menu top right of the 1st post and set it to Standard Display , not linear hope that helps for those who have been having difficulties

Hi Cheryl just wanted to welcome you and say how pleased I am that you have comeout of the seroquel haze. My son was never on this med, but he did have nasty side effects from the ones he was on the emphasis here at ACN/Latitudes is more on non drug treatments so not sure how many here may have had experience with seroquel, but there is a medications forum on NeuroTalk where you may be able to get more info re the side effects on cardio hoping things just keep getting better for you all the best

I am glad it went well Faith. Sounds like you have a good school district for accomodations...some can be very difficult the good thing with a 504 is that even if u transfer schools it goes with you and you just revise it each year to be sure the accomodations and most importantly the teacher awareness is in place. Having the 504 has been a real blessing to my son throughout his schooling

Hi Tracey if the oatmeal is pre-flavored, you may want to check the ingredients as more than likely there is artificial flavor, color and more in there. we use regular oats and add fruits, pure maple syrup, turbinado sugar or dark brown sugar, honey for flavor. Also check the OJ to be sure it doesnt have additives. Cashew nuts seem to cause sensitivity in many people so I thought to mention those, even if he isnt sensitive to pnuts or other nuts. I didnt notice any greens in your diet list, which IMHO are essential to maintain the full nutritional requirements. my son doesnt have any food allergies, other than extreme sensitivity to the artificial additives (coloring, flavorings, artificial sweeteners and preservatives) and MSG, carageenan, high fructose corn syrup etc I know others who have done elimination diets will be able to guide you more on those do also check for any other chemical exposures like pesticides, fertilizers, new furniture/carpets/cars, high chlorine in shower/tub water/pools, laundry bleach, household cleaning chemicals.....we found those to be very high on the trigger list for my son and particularly for head tics hope things stabilize soon for your son...i know how alarming the head tics can be.

hi emy my son was on meds for a year and yes, he has genetically inherited Tourette Syndrome with associated OCD, anxiety, depression and more he was never on sertraline, but was on Luvox, which is also an SSRI. Other meds he was on over that year were haldol, naltraxone and zyprexa.......makes me shudder just to list them none of them made things any better for him...instead they seemed to intensify his symptoms and also caused psychosis, something he had never suffered before going on the meds. The list of side effects he had is long and included some of the things that the manufacturers (and doctors) call "rare"...since our experience, I have spoken with enough others who tried the same or similar drugs for me to know that the "rare" is in fact very common That book by Dr Breggin sure opened my eyes wide to these drugs and especially their dangers to kids (and it was recommended to me by a respected physician who helped us withdraw the meds)

Hi Michele I see a previous post by you on this thread as reply #3.......is this the post you are referring to or was there another??

Hi emy and welcome weaning off this category of drugs has to be done very very slowly and preferably under doctor's supervision. I am surprised that your son's dose was doubled that way! rather than increased gradually too. generally titration down from a drug is done in tiny increments. when my son was being withdrawn from similar drugs, it was at 1/3 down every 5 days until we were on only 1/3 of the original dose for 5 days and then ended. Our doctor was in touch daily to check on effects and reactions. Even with this care in withdrawal my son suffered awful reactions so I do urge you to do this with great care and do be prepared for withdrawal reactions so that you wont be unduly alarmed by them. It is a hard thing to watch your child go thru, but, from our experience, it was worth it to get our son back eventually There is a good book on this called "Your DRUG may be your Problem!" by Dr Peter Breggin he cautions that sertraline( in zoloft family of drugs) should be withdrawn with extreme care ESPECIALLY in children as it can cause severe "crashing" with serious effects if not done very carefully If your doctor isnt willing to help you do the withdrawal then try to find one who will as I really recommend medical supervision during withdrawal from "brain" drugs...especially for a child Cheri

article in my local paper today Read the full article here http://www.orlandosentinel.com/services/ne...0,4841902.story

Carolyn has linked an earlier thread she started on hidden names for MSG and other good info http://www.latitudes.org/forums/index.php?showtopic=2598 the Feingold Diet has lists of foods hish in salicylates I believe. Maybe one of those more familiar with the Feingold plan will have more info for you on that

bumping up I just deleted some LASIK spam posts that I hadnt seen before dont hesitate to report any spam or inappropriate posts to me thanks Cheri

Carolyn thank you so much for the detail you have provided here I cannot stress often enough just what a severe impact MSG (in all its forms) and aspartame(nutrasweet) have on my son's overall health, but especially on his tics and OCD

it does sound like palilaia to me. My son has had all the -lalias as part of his TS tics

if you havent noticed an increase in tics or other unwanted reactions in the past then it would not seem it is a problem for your child. I had not heard of some having increased tics with epsom till that recent discussion, as for my son an epsom salts soak is a major relaxant of his tics, chron's spasms, and overall tension. He really benefits from those soaks and it helps him sleep really well too. I will go take a peek to see if I can find that other thread and will add it here edited in: found it! http://www.latitudes.org/forums/index.php?showtopic=2879

I so agree on the calming effect of the epsom on my son (tho a reminder that based on recent discussions here, some people with sulfate/sulphur etc sensitivity may not do well on epsom (magnesium sulfate) soaks the only times he has had night terrors was when his OCD was in major waxing, and then again when a doctor put him on cimetidene (tagamet) for his Crohn's disease. those were the worst as he would be semi awake in total fear and paranoia and seemed to be almost halucinating. as soon as we stopped the tagamet, those terrors stopped too

we have found that once there has been a candida infection, one has to be vigilent about future overgrowth candida lives in all of us, but our "good" bacteria in the gut keep it under control. if something causes the balance to change (eg antibiotic, poor diet, other infections etc) the candida can begin to multiply again

H MaryAnn it is so hard to suggest doses, especially not knowing age/weight of a child, and also even in the same weight and age range, individuals can have very different doseage needs depending on their own biochemiistry/metabolism etc my son had the equivalent of 500mg each of magnesium and taurine in separate capsules but he was 11 yo and over 100 lbs. we gave magnesium in a combo with 1000mg calcium and 50 mg zinc, but the qaddtition of extra calcium need not be exact in the 2:1 ratio if there is a good dietary calcium intake. here is product info on Bontech mag taurate http://www.bonniegr.com/ts-PLUS%20Mag%20Taurate.htm