hudsonsmom

My son has a reaction to Red 40. He is outta control and extremly hyper and physical when he has a little tiny bit. My question, maybe a stupid one..... I noticed today that he has some Spiderman temporary tattoos that are made with Red 40 and Blue dyes, by putting these on his skin would/should this cause the same reaction as him eating it? He's been crazy today, and I can't figure out if he's just having an off day or maybe we should "lose" the tatoos even though eh loves them so. Any thoughts? I'm extremly careful to not allow him to eat it, and everyone he is with has also been briefed on the fact he is not allowed to have it. My husband had a similiar issue with it when he was young. My mil always told me everyone thought she was crazy by cutting out artificial colors, cause that was 30 years ago and no info had been brought out about it. My husband also has diagnosed adhd, son hasn't been diagnosed cause he's 3.5.

That's interesting Chemar that your son has the same type of reaction to the pollen. I'm starting to think that is a main problem. I'm definately cutting it out today to see if it helps. I just took an epsom salt bath about 3 hours ago, it does help. But, it's so hard for me to make time for them. I've never been consistant taking them, Just the mag. suppliments. Maybe I'll also try to take one 3 or 4 days a week for a month and see if the extra mag. helps cut the issue too. I went through the list of triggers again, and some I have no contact with and other's on a daily basis. It'll be hard to figure out which is which. Am I correct that you are supposed to cut out all the things listed (within reason) and then add them back in 1 at a time to see if it triggers a reaction? Moving from item to item? Also, I remember some mentioning accupuncture as a treatment, what about accupressure? Also, something along the same lines, Anyone familiar with CranioSacral Therapy? I was reading the paper today and there is a new CranioSacral Therapist office open, the ad. states it can help with central nervous system disorder (amoung other things) After doing some research some people think cst is hoaky, other swear by it. She's in an office with chiropractors~ which I know are supposed to help tics also. Also, should I maybe increase the mag. or b on stressful days instead of nicotine? I wonder if increase helps quickly or I should increase them a day or two before.

I forgot to add, so am I right in the assumption that tics can increase with exposure to air borne allergens as well? I don't know why I assumed it had to be an ingetsted allergen.

Thanks for the ideas Faith, I'm definately going to stop the pollen and see what happens. I just really want to take it, much easier than honey and seems to have tons of health benefits, plus maybe I'm crazy, but I really do think it helps keep my energy up during the day. I try to stay away from too much caffeine becuase of the increase in tics, but I'm just so exhausted with a 3 yo and working, that I do drink some iced tea and coffee on rough days. The pollen seemed to help keep me energized without the caffein(maybe a placebo effect, I read it was supposed to help with energy ) Currently I take calcium/mag, taurine, letchin (only 1/2 the recommended amount, maybe I should up that) B Complex (subling.) b12 subling., daily multi, omega 369, flax, borage, primrose mix, Royal Jelly, L-acetyle , p.s. I'm a horriable speller. My tics are slight when around people, I've grown to hide them very well, when typing on the puter, I have to rest my wrists down, then pull them up a few times before a I can type again, there is slight shoulder shrugging movement, I also tend to push and pull air through my teeth with my tough, which makes a slight whistling and slober noise (drives my husband crazy!), thumb movements and head movement, I don't bob my head, it's almost like a small stretch, but I do it a few times before I feel comfortable again, and twirl my hair alot of the time. As of now I don't know about my son. I've got him off all artificial colors and additives~ he's "prediagnosed" with ADHD, no concrete diagnosis, dr. said he's too young. But during a visit the dr. was observing him, and brought it up to me, not knowing my dh has a family history of adhd. He mentioned that he is showing early signs and to watch for it. His tantrums and behaviour has improved 1000% since he's been off colors, Red 40 makes a huge difference in him. I can tell when someone has accidently given it to him, he's outta control. I also give him a suppliment called "Focus Factor" it's a natural powder you mix with water and has mostly B vitamens and some amino acids. I figure it'll help with both adhd and if he does develop tics. He is also allergic to Milk and any milk product. It causes severe asthma symptoms and attacks. With even the slightest milk anything he'll wheeze for days and sound awful. He's on an asthma preventative inhaler (flovent) He does do some eye blinking, but then I realize I need to trim his bangs, and the blinks (seem) to go away. So, I'm definately watching him closely. It seems that most children are a little older when they start ticcing, so I'm not counting my blessings yet that he seems clear of it.

female, 30 horriable on fish oil, great with flaxseed

Well, hum, I don't have much time anymore to post on here, but I do spend some time reading. I have TS, self diagnosed, only becuase I feel like I can't talk to my doctor about it, he laughed at me when I round about brought it up, and don't seem to be near any alternative dr.s to go to. My problem is, I've went into business for myself, after being a stay at home mom for 3 years. Now, (I'm assuming) with the added stress my tics are getting worse. I am on suppliments, (I can list if anyone would like to know) which did seem to help quite a bit before. I have been on the same doses for approx. 1.5 years now, maybe I should increase somehting? My business has grown ridiculously fast, much more than I expected (I'm a photographer) and am about to enter into my first huge wedding season! I'm sure the stress is the cause of the increase of tics, haven't changed my diet or eaten anything that I've previously cut out, red 40, yellow 5, refined sugars. Any ideas on how to help me control the increase. Are there any suppliments that are good for reduction if I increase the dose just for the day or weeks of my busiest time. Most of my tics I'm pretty good at hiding while talking to clients, but I did notice a bride watching me the other day, maybe I'm being paranoid, but once I thought she was watching me of course I got nervous and (I feel like) the tics got worse. I also did try nicotine gum for awhile as a treatment (have never been a smoker) and it did really calm me down and the tics go away. I'm thinking of maybe using it only a few minutes before a big meeting, just to help me calm down a little. But, can't decide if the health negatives are really that bad with occasional use. I'm not an addictive person at all, so I'm not worried about that aspect. Before i used it before an exam or anything stressful to help calm. I'm just not sure where to go from here, but also don't want to get the rep of the photog... who tics. I love what I do and am nervous that these stupid tics might hold me back. Well, I just had a light bulb go off~ maybe this makes sense maybe it doesn't. I know tics can increase from allergies or intolerables to things, for me REd 40,. yellow 5 etc. Some how I guess I assumed tics were linked to food allergies, not outdoor and pollen. I do have horriable outdoor allergies to pollens, grass dust you name it. I normally take Claritin every day as a preventive, but decide about a week ago that I didn't want to take it any longer and my allergies didn't seem to be bad this year. There's bulb number 1~~ Maybe since I cut out the allergy meds my tics are reacting to the outdoor allergy problems. Can any verify if pollen allergy reaction's might increase tics? Also, bulb #2, at a local farmers market last week I picked up some "dried bee pollen". My son and I usually eat unprocessed honey comb, for the allergy benefits. (ask if you'd like to know more, I'd rather not go into details now) The bee keeper said this year has been really bad for the honey combs, and suggested bee pollen instead. She said it was the same idea just in a different (higher concentrate) form. So, I got some and have started eating it. After doing research, and seeing only positive healthful reports. It actually has tons of amino acids and lots of minerals I already take (mag, calc., b stuff) in small doses. It's straight pollen, dropped from the bees legs. Maybe the increase in the pollen in my body is causing the tic reaction. Compounded with the fact that I stopped taking Claritin (did this about a week before the pollen). Any thoughts on this stuff? Any ideas or suggestions on the relationship or do you think it's more stress related, and I should increase some type of suppliment.

I just received my first online order of supliments (Thanks for sharing hte site Chemar!) Now, I was reading through the catalog they sent and stumbled across something called Gaba 500mg. I dont' remember seeing this as a suppliment in regards to TS. But, I do remember people mentioning it for OCD or ADHD. The blurb about the product says this: "GABA is an amino acid related compound that's important for optimum cognitive function and nervous system support. It is an inhibitory neurotransmitter, whic means it regulates neuron activity in the brain and keeps nerve cells from over-firing, which causes anxiety or nervousness." So, isnt' that what TS is (sorta) when your neurons OVER fire? Wouldn't this be beneficial for TS? Or am I getting the same things with my Omega 3-6-9 suppliment? Does anyone use this as well? Any thoughts?

hum, I'd be curious to know more! If you can think where you read that (not that I don't believe you personally) I'd like to find out. Maybe I should try pulling all my air freshners just to see. Another quick question, I use wickless candles, with no smoke but a heated tray heats the wax to release the fragrance. Have you heard anything about those? Is it the smoke that bothers the TS or the actual fragrance.

I checked out the links. I suppliments I have are from NOW (purchased at a health food store), but htey are all seperate. Only thing, the first link looks to be a good choice, but there is no borage oil, but there is balanced omegas. so, for TS do I really need specifically borage oil, or just a balance of 3-6-9? And Geez this site sure is alot cheaper than what I pay in the store for my stuff! Does anyone know is it good quality~ not expired products?

OK, I normally take an evening primrose/borage/flax combo pill. I went to the health food store today to purchase my next bottle and it has been discontinued. THey don't offer anything else in a combo form. So, I guess I have to start taking them seperately. So, I purchased a 1000 mg flax oil, (take 3 daily) 1050 mg borage oil and 1300 evening primrose. Now, I don't remember my last bottle exactly, but I'm thinking it had approx. 1500 mg total of all 3 mixed. SO, I'm going to be taking alot more mg now, will that make any difference? Also, I was doing research as to the daily doses for seperate amounts, I found this at: http://www.fatsforhealth.com/introduction/faqs.php#l Daily supplementation is the best way to ensure that you get the health-protecting benefits of EFAs. For the average person, supplementation with the following EFAs is required for the maintenance of good health: GLA: 500 mg daily - this amount is found in 2 grams of borage oil or 4 grams of evening primrose oil ALA: 500 to 1000 mg daily - this amount is found in 1-2 grams of flax oil EPA/DHA: 400 mg daily for both combined - this is found in 2 grams of fish oil daily AFter reading the backs of my supplimnetsfor the listed ingredients I found what I purchased has: Flax~ ala 1500 mg (and LA 342, OA366) Borage~ GLA 240 (LA 296, OA 120) Evening Primrose~ GLA 117 (C-LA962) So, I'm getting no EPA or DHA. I'm sensitive to fish oil so I'm confused as to what to do. I know my multi oil pill had dha~ I remember specifically buying it for that reason, but it also had these ingredients. Also, this way I will be taking 5,350 mg of oils daily! That seems like an awful lot to me?! Any thoughts or help would be appreciated!! Any thoughts?

CP, just curious why did you throw out all your candles? Is it something to do with TS? Does the scent or smoke cause more tics? If it is the scent~ what about plug in air freshners? I've never heard this before, but I have candles and air freshners everywhere and have TS!

I'm sorry I can't help. but, I am curious to know an answer. I take calcium in the morning, and mag at night. I've heard mag promotes sleep and I don't like taking all pills at once, so I switched it to night. but, I do take Epsom baths during the day.

So, looking at that info is inositol not for TS? It seems to be for ocd, doesn't have TS listed.

I'm sure there are studies that show this problem. I actually did have an epideral during the birth of my son, and exclusively breastfed for the first 6 months, now he is 18 months old and I am still breastfeeding him during the night wakings. We didn't have any problems during the first few weeks with nursing at all. Only problems began when he started to get teeth

What in lehman's terms are lecithin and inositol? I have been reading about htem, clicking on links and trying to figure it out, but can't seem to get it. I do not take them currently, but have been researching that they are helpful with TS. I was thinking of adding them, but not sure what the heck I'm putting into my body first?!! Can anyone explain, what they are, and what they do, simply for me?

So, I did go to the doctor the other day, for my annual physical, he was an internist. I was all ready to discuss my TS, and asked about testing all the things I was told on here as a starting point. Amino acids, hormones, metal levels etc. Well, sadly the doc kinda chuckled at me when I asked about amino acid testing. He said they didn't do any testing there other than blood tests, and amino acids weren't able to be tested in blood. I also asked about testing for metals, again, not a blood test. I told him, I understand that, but how do I go about testing for these things. He told me I was a healthy 28 year old girl and those are very serious/hard tests to do. And kinda left it at that. I didn't go into detail about my TS, when around people I usualy don't tic hardly at all. Most people don't notice. I felt pretty stupid and even though I expected some half answers, I was prepared (by those on here Thanks ) for him to think i was crazy. So, ,my questions is how do I find a doc who will do these tests and listen to me. I tried to look up homopathic docs in my area and there are none listed , at least on the site I went to. Thanks for advice everyone, sucks my doc didn't listen to me.

So, I did some research on the test Chemar posted I should ask abuot. The one on pyroluria got me thinking. What I found was this: from: http://www.drkaslow.com/html/pyroluria.html Pyroluria is a genetically determined chemical imbalance involving an abnormality in hemoglobin synthesis. .....Kryptopyrrole has binds to pyridoxine (vitamin B6) and zinc and makes them unavailable for their important roles of co-factors in enzymes and metabolism. These essential nutrients when bound to kryptopyrrole are removed from the bloodstream and excreted into the urine as pyrroles. Arachidonic acid (an omega-6 fatty acid) is also deficient. So, that would explain the 'recommendation' I found for the elevated dosage of Evening Primrose, because of the omega 6 defeciancy. My next question is, my son when born~ they did routine tests and found out he has abnormal hemoglobin. They did more testing as he got older (6 and 9 months) and still came back with abnormal hemoglobin. But, the doctors hae also said they don't know why it's abnormal. That's all I got. Basically he's fine just this one thing, but it shouldn't effect him. THey told me not to worrya bout it, but it's good to know. So, now that I read this, I wonder if that is a prenote that he may develop TS. I know since I have it the chances he will have it are there. But, since I also know he DOES have abnormal hemoglobin.... I don't want to speculate, but I just can't help but wonder if the two are linked togeter in our case. He shows no tics or anything now, but he is only 16 months. I guess only time will tell. Any thoughts?

Chemar, thanks for all your advice. You're always so helpful and knowledgable. Also, I forgot to list Calcium, I do take 1000 mg a day, just forgot to write it in my lists.

As most of you know, I have been self-supplimenting my TS for a few months now. Bad I know, but I am just way too embarrased to go to the doctor. Anyways, I have decided to go and ask about my symptoms. I am wondering how far ahead of the appt. should I stop my suppliments for the tests to come back accurate. Any thoughts? I'm taking magnesium, taurine, bcomplex, b12, evening primrose~flax~borage, multi vitamen,zinc. I want to be sure the tests are accurate so I know exactly what I should be taking. Also, what testing do I ask for. I am going to my internists (my regular doctor) for an annual physical and was going to bring up the topic. Should I see someone else instead that specifies in TS to be sure I get the correct tests and treatment ideas? Thanks so much in advance~ I'm getting nervous, the appt. is for Nov. 21.

I do take Flax seed/borage as well, just not as much. I have heard the same that omega 3's are supposed to be better, but the 6's seem to be helping me. Thanks for the advice. I really appreciate it. Amanda

This is what I found. It is at http://www.alive.com/2958a9a2.php?subject_bread_cramb=115 for treatment of TS. Is this not good? Daily dosages: Magnesium, 500 mg Vitamin B complex, 100 mg twice daily or Pyridoxal-5-Phosphate, 50 mg daily Vitamin B12 sublingual tablet, 100 mcg Calcium, 1,000 mg Evening primrose oil, two 500 mg tablets three times daily Niacin, 1,000 mg I did this yesterday, minus the niacin, plus taurine. And I did notice a big difference. But, If I don't need so much evening primrose then I'd rather not take it. Maybe I'll try today with just one dose and see what happens.

So, I got all my suppliments today from the health food store. I talked to the lady for along time about what I have been taking, what happens, which is vey hard for me. I do not like to admit I have TS. Usually I can hide it pretty well, but am sick of doing that, and figure I gotta start admitting it somewhere, so now is now. Anywyas, The research I did said to take 1000 mg of Evening primrose 3 x per day. I purchased 1300 mg tablets, thinking it would be easier to remember 2 instead of 3 times. Since it equals abou thte same amount per day, is it ok to do this switch? Take 1300 2x, instead of 1000 3x? Or do I need the 3 different times per day? Also, I got taurine, 500 mg. How much should an adult female, 130 pds, take? The bottle says 1 tab per day, but I didn't know if that is less than recommended for TS. I have looked everywhere I know and can't find a dosing, just the suggestions to take it. I took 1 today, and (maybe I'm crazy) but swear that it has already started helping. About an hour after taking these I thought, 'oh I havne't had any tics for awhile!' So, I hope these help. Also got multi B, b12~ dissolvable, flax and borage, and am adding them to my magnesium, zinc, calcium, and multi. I wanted to start slow and take as little as possible. I do think what I have been doing has helped, but not completly. I'm glad to know that there is this option, only wish I would have discovered it sooner than at 28!!

Oh good, seems like that must be the problem. I originally started with taking primerose, flax etc. together, but the guy convinced me to try the fish oil. I didn't know I was sensitive to the fish, but know I guess I am. I, too, eat fish quite often and havent' noticed an increase in tics. Thanks, Amanda

I have read alot about people being sensitive to fish oils. Does this mean more ticcing? I first took a Omega 3.6.9 suppliment, Not fish oil and it seemed to help. The last visit to the health food store the man convinced me to try the Norweigean Cod oils instead. He said it was better and more tolerable. I seem to be ticcing more since starting it. It has been about 2.5 weeks since. I am wondering if it is because of a sensitivity or if maybe there is another factor I am not thinking of. Is increased tics a common side effect of being sensitive to fish oils? Thanks in advance.

I currently have been taking (about 2 years) Duet Prenatel vitamens with DHA (250 mg) THey have lots of good stuff in them, but not as much as recommendd, so I got the suppliments I needed. So, I should not use the Taurine while nursing? OK, good thing the store didn't have what I originally went looking for I'm doing 1400 Calcium (in prenatals) to 500 magnesium (suppliment). And 50 Zinc, suppliment. So, should I up the magnesium to make it = 2:1? or just leave it since I'm getting beyond what I need with Calcium, and exactly what I need with MAag?