MamaOnAMission

So is the key, to get in as many different strains as possible?

I ran out of the culturelle so I was going to give the custom probiotics (D-Lactate free) that I have in fridge. Praying she tolerates it! In the future I would like to find something cheaper and as effective. I will have to look around. Thanks so much for the help!

What probiotics do you use Nancy?

Nancy, what time of day do you give NAC? Is it stimulating?

I ran out of the regular culturelle but have some kids culturelle laying around. I was giving one of the regular adult culturelle, and was wondering how many of the kids culturelle I should give. anyone know??? thanks so much.

we had the same situation and our doctor said some antibiotics is better than none at all. Not sure if its the way to go, but that is what he said. Good luck to you!

Can I try just plain vitamin D? Is that going to bring D levels up?

I take 1000 units gel capsules. I take 2 of them right now And I'm flat on my back sick as a dog. Nauseous head ache back ache. Been on for couple weeks and sick fro start!

I'm sticking with it. Gonna keep pushing. Thanks

Yes. I needed to hear that too. Thanks!!!

Third time I tried vitamin D3 and I get so irritable! Happens with oils it seems. Why is that???0

my child had a really bad time on with/rifampkin. herxing never stopped. she is on doryx and bactrim and herxing was bad for week or so, but calmed down. good luck to you. it is so tough on the nerves. i know. thinking of you....

Thanks Nancy, Perhaps I will continue to up the D3 first. She was an "11" on blood test. I can see if that helps with the confusion. I still need to get some mild thistle in for detox. I give charcoal once in awhile but sounds like the milk thistle may be better. Not sure.

My first comment is that the nurses are probably 100% wrong saying she wants attention!!!! OMYGOD!!! why would ANYONE want to feel the way she does!!! She is sick!!! My second comment is... How did my daughter get into your house????? Carbon copy of my child!!!!! My child is the most stable I have seen her. There is so much more work needed here, but I see some changes and calm. This is what she is taking right now. She tested possitive for Lyme and Bartonella. 10am - 12.5mg. Lamictal - 1 Bactrim -2000 units Vit. D 8pm - 1 Bactrim, and 1 Doryx 1 New Chapter Probiotic Cleanse 1/2 culturelle 1 Melatonin

So NAC can be bought at whoe foods probably???? someone mentioned they use it for confusion. Not sure who??? Im stuck on my next step. She is currently on: 10am - 12.5mg. Lamictal - 1 Bactrim -2000 units Vit. D 8pm - 1 Bactrim, and 1 Doryx 1 New Chapter Probiotic Cleanse 1/2 culturelle 1 Melatonin She continues to have intrusive thoughts and confusion. Not sure to keep upping vitamin D (since she is 11 on blood test) try NAC or another SSRI (most made her mean but perhaps since she is on antibiotic that seems to be helping, prozac might not be so bad) Looking for your opinion.

Can't get dressed. Complains she can't think straight. Can't get herself to parties just can't think straight to get out door. Literally goes in circles. I think it's her racing brain and anxiety mixing her all up. Her brain is always firing tons of thoughts out loud. A bit better on antibiotics but creeping back in. Isn't sleeping because if this!

If she still has sleep issues and racing thoughts after a few months of antibiotics to treat Lyme/Bart. --- is that a bad sign??? Is it way too early too make a judgement?

someone mentioned something they used for confusion and I think they said it was called NAC, but i am not sure. anyone know what I am talking about?

she is on 1mg. melatonin. tried all different doses. doesn't work for her. her intrusive thoughts are too severe. like i mentioned the only thing that use to help was prozac about she is too mean on the stuff. there is no way i can put her on that again. not sure if i should give inositol again. someone also mentioned something called NAC too. i have to look into it. thanks for suggestion.

Her insomnia was way b4 the lamictal. Does the benydryl keep them asleep through nite and can u give every nite?

This is what she is on. She is tolerating meds/supps. and doing a bit better but still not sleeping. She is "stuck" staring at a movie over and over. Brain does not turn off. When prozac was in this mix, sleep was much better but she was too mean on prozac. Can you tell me what you would do next to help sleep? Upping melatonin does not help. Also tried lyrica, seroquel, trazadone, clonodine. 10am - 12.5mg. Lamictal - 1 Bactrim -2000 units Vit. D 8pm - 1 Bactrim, and 1 Doryx 1 New Chapter Probiotic Cleanse 1/2 culturelle 1 Melatonin

big time memory issues. short term. all day long she is looking for miss placed items. also, when she snaps and gets super agitated from too many thoughts in her head, she starts to do unusual things but never remembers what she did. hang in there. it's tough but the people on this board are great and will help you.

...and thanks rowing mom for great help too!!! Feel like I forgot you!! LOL

smartyjones, is the question about mutation directed at me? thanks everyone else for the advice.

my 13.y.o is VERY low in vitamin D3, but when I added some in...she started to regress. I know others have had bad reaction to D3, but I feel it's dangerous to not give it. Any advice???? Perhaps she cold sit under some kind of light instead?