How many here tested positive for bartonella?
Posted 28 February 2012 - 07:42 AM
Posted 28 February 2012 - 09:04 AM
Posted 28 February 2012 - 09:40 AM
Edited by rowingmom, 28 February 2012 - 09:40 AM.
DD12 - Born 2001. Loss of speech/fine motor ability 2 weeks after 15 month MMR.
2004 - Dx ADHD, sensory disorder (light, sound, touch), motor delay (with toe-walking), hypotonia, oral apraxia.
2008 - MMR booster and insect bite (bruise-like rash) - motor/vocal tics, emotional lability (including rage), age regressive behaviour, low level OCD, urinary frequency, diminished fine motor ability, insomnia, loss of executive function. Waxed and waned with strep/viral infections.
2010 - Dx ADHD, Tourettes, Aspergers, motor delay, probable PANDAS.
Jan 2011 - shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, fatigue, nightly fever.
June 2011 - Igenex PCR positive bartonella, Negative lyme (IND IgM kDa 41; IND IgG kDa 39, 34. kDa 41++). CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, methyl B12, methylfolate, P-5-P, herbal, homeopathic treatment with LLMD.
Jan 2013 - Bartonella IgG titers declined from 160 (Jun 2011) to 80. CD57 16.
April 2013 - Weaned from abx treatment. Continue with Buhner herbs, ByronWhite, methylation/detox protocols, Terry Wahls gf/cf/sf diet. Minimizing EMF exposure.
Sept 2013 - CD57 45.
Oct 2013 - All symptoms (PANS and pain/fatigue) 95% resolved. No flares with viral or other infections. Slight pain herxing remains with changes in herbal protocols.
Nov 2013 - Improvement to 98% with addition of herbal protozoan treatment.
Dec 2013 - ANA titers negative. PANS symptoms resolved. Regular classroom requiring no accommodations.
Mar 2014 - Continued improvement in cognative/executive function with increased dosages of cryptolepis/sida/alchornea tincture.
DS17 - Born 1996. No unusual symptoms.
Posted 28 February 2012 - 09:56 AM
Chronic Sinusitis since 18mths of age. Symptoms emerged with sinus infections and into remission with abx.
Severe Episode in March 2006. Dx with PANDAS May 2006. Three other episodes between 2007-2009.
Symptoms became chronic in 2009.
Diagnosed w/Lyme & Bartonella August 2010. Positive Igenex Lyme. Positive Bartonella Quest.
2011- lupus flair, erythema nodosum, Pots, Positive Advanced Lab Culture w/ pic of spirochetes in sample.
2012- endoscopy & colonoscopy
2013- Still positive for Lyme w/Igenex.. Positive Bartonella w/Quest
Treatment: abx & IVIG
Posted 28 February 2012 - 10:19 AM
Dd did not, but she has it.
biomedical treatments w/DAN! Cam K 175, 2 HD IVIG's, 2 LLMD's- improved, but still challenging in areas at times.
Mom-tested positive Igenex PCR Lyme, and positive Bartonella 2011.
Went through extensive Lyme/Bart treatment, lasting improvements.
Both off treatments > a year,
but require special diets
and a pharmaceutical script or 2.
Posted 28 February 2012 - 10:41 AM
Posted 28 February 2012 - 11:07 AM
My Lyme son was borderline
I was negative (but am being treated for Lyme)
Only my dd has OCD, which I find interesting...
DD 11: Severe OCD & other PANDAS symptoms Fall 2009, PANDAS dx spring 2010; Bartonella dx spring 2011; Lyme diagnosis Fall 2011.
On various abx combos for three years. Stopped abx in March 2013. Doing GREAT!!!!!
DS 13: Emotional Lability past 4 years; suspected Lyme spring 2011, confirmed January 2012.
On abx since Feb. 2012. Doing really well, too.
Myself: Lyme dx Jan 2012. Treating. Improving.
Posted 01 March 2012 - 04:31 PM
Started treatment October 2010
ABX, 6 IVIGs to date.
Posted 03 March 2012 - 04:32 AM
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