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Posted (edited)

After not being able to get my ds12 in to see an immunologist that knows about PANDAS, my doctor may start doing some of the tests that would be done. On this forum, I did read about the c3d circulating immune complexes test and a Stricker CD57 test.

 

Any other ones that would be good to know about?

 

So far the only test that came back positive was from Dr. Cunningham's study but there has been no relief of symptoms in 5 mos.

 

Thank you!

Edited by JuliaFaith
Posted

After not being able to get my ds12 in to see an immunologist that knows about PANDAS, my doctor may start doing some of the tests that would be done. On this forum, I did read about the c3d circulating immune complexes test and a Stricker CD57 test.

 

Any other ones that would be good to know about?

 

So far the only test that came back positive was from Dr. Cunningham's study but there has been no relief of symptoms in 5 mos.

 

Thank you!

I have been told that the labcorp cd57 test for lyme does not work for kids.

Posted

Immunoglobulins A,G,M

Immunoglobulin G Subclasses Panel (1,2,3,4)

Immunoglobulin G, Serum

Tetanus Antitoxoid Antibody (EIA) AB

Haemophilus Influenza Type B IGG

Streptococcus Pneumoniae IGG AB Serotypes

CBC with Diff

EBV

Mycoplasma Pneumoniae Antibodies (IGG,IGM)

Posted

Immunoglobulins A,G,M

Immunoglobulin G Subclasses Panel (1,2,3,4)

Immunoglobulin G, Serum

Tetanus Antitoxoid Antibody (EIA) AB

Haemophilus Influenza Type B IGG

Streptococcus Pneumoniae IGG AB Serotypes

CBC with Diff

EBV

Mycoplasma Pneumoniae Antibodies (IGG,IGM)

Thank you very much for this list! Will send on to our doctor. This is the only missing link in our puzzle at the moment before IVIG.

 

Take care.

Posted

hi - you see dr keller? (sorry if I'm mixed up) if so, we did some really comprehensive testing with Dr B via tel consult for our dd7. If you would like I can pm you the tests or drop them with dr Keller when we see her in a couple of weeks time.. (only thinking of dropping 'cos there are LOTS and my typing ain't so quick and I don't have a scanner)

 

thanks...

Posted (edited)

Great, great list that was provided.... I am not positive the Stricker DC 57 is appropriate for children due to varian results but he did do it for my friend's son, Dr. Stricker and it came out indicative of Lyme.

 

Definitely do the circulating immune complexes as well as test for Lyme/co-infections via Igenex.

 

-Wendy

Edited by SF Mom
Posted

hi - you see dr keller? (sorry if I'm mixed up) if so, we did some really comprehensive testing with Dr B via tel consult for our dd7. If you would like I can pm you the tests or drop them with dr Keller when we see her in a couple of weeks time.. (only thinking of dropping 'cos there are LOTS and my typing ain't so quick and I don't have a scanner)

 

thanks...

Yes, we do see Dr. Keller. That would be great if you could drop them off at her office and let her know they are for questions on 'Kyle C.' Thank you so much for your help. :D

 

Best wishes.

Posted

hi - will do.. we see her on 27th aug, I'll make sure I take them with me. Just let me know if that is too late and i can always drop them earlier, we go past fairly regularly.

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