Gonna give myself a good swift kick in the rear...

[Phasmid]

So... I finally find (after 6 years!) a physician (Dr. Lin- he's a sweetheart, and very smart it appears) who tells me (rather than me telling him) that my boy probably has a yeast overgrowth (I spent 6 years convincing the boy's pediatrician), on top of a probably chronic, untreated Mycoplasma pneumoniae infection (spent last 2 years trying to get a sinus culture), confounded by a relapsing Clostridium difficile colonization, with a probable untreated Strep infection.... and I have the NERVE to QUESTION any of this???? WHAT is wrong with me?? I will tell you. It is the psychological power that ONE physician can have over his/her patient (patient's mom in this case). Out of the blue, I get a call from our ped. who wants to give me the report on my son's labs. He is calling for the first time since the labs were done in March (how many months have gone by??) He tells me to disregard any elevation in Mycoplasma IgG, as this is completely, 100% meaningless. He also tells me that his iron is perfectly normal, even though he has very low ferritin, and ALL OVER the literature there is the association between low ferritin (even though total iron is good) and ADHD as well as restless leg/sleep disorder. Now I question what has been told me about Mycoplasma.

 

Ok, now that rant is over... on the flip, our pediatrician said he wants to see the CaM kinase test!!!!! If you knew our ped, you would realize how HUGE this is!!! This may be the thing that tips the scale with him... after six years.

 

So, back to Mycoplasma pneumoniae: Is there any SCIENTIFIC data that shows an elevated IgG against Mycoplasma, without IgM, is of any significance clinically????

[Stephanie2]

The good news is that once these things are treated you will see a changed child. We have dealt with almost all of that and my kids are SOOOO much better now that their yeast/clostridia/strep, etc has been/is being treated. A lot of room for improvement!! Yay for good docs! and yes those peds can really be persuasive which is why we, as mothers, turn our heads when they inject our kids with the poisons that gets all this illness going to begin with And i'll end with that as i could go on all night about regular docs and peds and their &*%# vaccines!!

Stephanie

So... I finally find (after 6 years!) a physician (Dr. Lin- he's a sweetheart, and very smart it appears) who tells me (rather than me telling him) that my boy probably has a yeast overgrowth (I spent 6 years convincing the boy's pediatrician), on top of a probably chronic, untreated Mycoplasma pneumoniae infection (spent last 2 years trying to get a sinus culture), confounded by a relapsing Clostridium difficile colonization, with a probable untreated Strep infection.... and I have the NERVE to QUESTION any of this???? WHAT is wrong with me?? I will tell you. It is the psychological power that ONE physician can have over his/her patient (patient's mom in this case). Out of the blue, I get a call from our ped. who wants to give me the report on my son's labs. He is calling for the first time since the labs were done in March (how many months have gone by??) He tells me to disregard any elevation in Mycoplasma IgG, as this is completely, 100% meaningless. He also tells me that his iron is perfectly normal, even though he has very low ferritin, and ALL OVER the literature there is the association between low ferritin (even though total iron is good) and ADHD as well as restless leg/sleep disorder. Now I question what has been told me about Mycoplasma.

 

Ok, now that rant is over... on the flip, our pediatrician said he wants to see the CaM kinase test!!!!! If you knew our ped, you would realize how HUGE this is!!! This may be the thing that tips the scale with him... after six years.

 

So, back to Mycoplasma pneumoniae: Is there any SCIENTIFIC data that shows an elevated IgG against Mycoplasma, without IgM, is of any significance clinically????

[coco]

I believe you are correct to question that "Ignore that mycoplasma, it's old" comment. I have posted on this before, but Dr T encouraged us to treat my dds mycoplasma, based on the very high IGG (past infection) >5.00. Her IGA (current infection) number was 474, normal <770. So after one month on biaxin her IGG number remained unchanged, obviously. However, her IGA dropped to 304, down more than 170. And symptoms really began to improve concurrently. We have a high probability of Lymes as well and feel that the biaxin is treating both. About 2 weeks ago she had a chest rash for about 1-2 days, now gone, some nose acne, and last night she had horrible, very foul green stool. Altho this could be a yeast reaction I am now inclined to think it is part of a herx reaction. Her stool was tested 2 weeks ago and all came back ok. She is on 50 billion probiotics daily. If this is herxing it is nerve-wracking to say the least, because it looks like a pandas mini exacerbation. Dr T believes that 90-95% of all high "past infection" numbers are just that...past infection/exposure/antibody evidence, BUT NOT with mycoplasma. I know there are a lot of docs who do not treat old mycoplasma, but I think Dr. Lin and Dr. T are right.

[Kay]

These post on mycoplasma are timely. We have been thinking about this for the last couple of days whether to change the antibiotic and treat this. My daughter had a high IGG but not the IGM and have been told by 3 docs not to worry about it. It has been on my mind for quite awhile and with these new post I am thinking we need to do something. So thanks everyone who continues to post all your information. I know sometimes I might decide not to post certain things because I wonder if it is just us and maybe no one else will benefit but I think I am wrong, I have gained a lot of knowledge from everyones post. Thanks.

Kay

 

I believe you are correct to question that "Ignore that mycoplasma, it's old" comment. I have posted on this before, but Dr T encouraged us to treat my dds mycoplasma, based on the very high IGG (past infection) >5.00. Her IGA (current infection) number was 474, normal <770. So after one month on biaxin her IGG number remained unchanged, obviously. However, her IGA dropped to 304, down more than 170. And symptoms really began to improve concurrently. We have a high probability of Lymes as well and feel that the biaxin is treating both. About 2 weeks ago she had a chest rash for about 1-2 days, now gone, some nose acne, and last night she had horrible, very foul green stool. Altho this could be a yeast reaction I am now inclined to think it is part of a herx reaction. Her stool was tested 2 weeks ago and all came back ok. She is on 50 billion probiotics daily. If this is herxing it is nerve-wracking to say the least, because it looks like a pandas mini exacerbation. Dr T believes that 90-95% of all high "past infection" numbers are just that...past infection/exposure/antibody evidence, BUT NOT with mycoplasma. I know there are a lot of docs who do not treat old mycoplasma, but I think Dr. Lin and Dr. T are right.

[wornoutmom]

Ds was positive for Mycoplasma IgG, not IgM like so many others. I believe Dr T said at one point that he was treating this as a chronic infection, given the neuropsych symptoms, until someone could convince him otherwise. We have been on and off Biaxin since mid March. In Jan/Feb my son was having destructive/psychotic, exorcist-like rages daily. Since starting the 2nd course of Biaxin the first of April, my son has has only one day of the exorcist. Even though we are going with IVIG next week, we have discussed and decided with Dr T to keep my son on the full strength Biaxin through the summer to try for the best possible outcome. I know how hard it is to get doctor's skepticism out of your head. I had 2 of the PANDAS "experts" tell me they didn't think my son had PANDAS. It would have been very easy to walk away. but for the support of the parents on this forum to keep going with my mommy gut. It's so easy to have moments of self-doubt, but I think you always have to go back to your gut. A lot of docs know what they learned in med school 20+ years ago and that's it. Our immunologist still thinks penicillin is the best and only needed med for strep because he studied this in undergrad... You found a doc you like and trust - take the leap of faith to let him guide you through this.