Preschool Graduation - what an achievement!

[Stephanie2]

Last night my ds5 graduated from preschool, on stage in front of HUNDREDS of parents (140 graduates)! He did not cry, he did not tantrum, he sang his songs and he walked very normally across the stage and accepted his diploma! This is such an achievement for us b/c in the past he did nothing cry for me the whole time while on stage. There have been times that my husband and I have had to drag him out kicking and screaming (which has lead us to skip these type of events when we just don't have the energy for the drama).

 

Just to recap, my son had IVIG in March (1 mg/kg) and then I increased his spironolactone 3 weeks later. He had about 5 weeks of remission of symptoms and then caught strep (I believe...fever, nausuea, sudden onset of pandas symptoms - did not get a culture just increased his zithromax immediately). Complete remission of symptoms within 24 hours, then a couple weeks later mild symptoms started to return so did a 3 day steroid burst, and that leads us to today. Not sure how far the steroid will take us but for now I am enjoying having a long break from pandas.

 

Unfortunately, we have hard a more difficult time with my ds2. He has had ongoing infections for 6 months (staph, clostridia, enterobacter, yeast). He seems to be healing from the infections finally, but his pandas symptoms are still there. We did a steroid burst recently which remitted the symptoms fully for 5 days and then they came slamming back...not sure where we are going next with him but I am lining up the paperwork for IVIG just in case. For now I manage him with spironolactone, augmentin, ibuprofen, oil of oregano and curcumin (among other things that are not pandas-related).

 

Stephanie

[Fixit]

I am so happy for you...

i am glad you had a great family event....

kudos to you for being able to take it one day at a time.....i can only seem to project..and its probably killing me...

you have been a great support...and your regular postings(as well as others here) with daily info (even if repeated) help me and others get through the day..

 

Last night my ds5 graduated from preschool, on stage in front of HUNDREDS of parents (140 graduates)! He did not cry, he did not tantrum, he sang his songs and he walked very normally across the stage and accepted his diploma! This is such an achievement for us b/c in the past he did nothing cry for me the whole time while on stage. There have been times that my husband and I have had to drag him out kicking and screaming (which has lead us to skip these type of events when we just don't have the energy for the drama).

 

Just to recap, my son had IVIG in March (1 mg/kg) and then I increased his spironolactone 3 weeks later. He had about 5 weeks of remission of symptoms and then caught strep (I believe...fever, nausuea, sudden onset of pandas symptoms - did not get a culture just increased his zithromax immediately). Complete remission of symptoms within 24 hours, then a couple weeks later mild symptoms started to return so did a 3 day steroid burst, and that leads us to today. Not sure how far the steroid will take us but for now I am enjoying having a long break from pandas.

 

Unfortunately, we have hard a more difficult time with my ds2. He has had ongoing infections for 6 months (staph, clostridia, enterobacter, yeast). He seems to be healing from the infections finally, but his pandas symptoms are still there. We did a steroid burst recently which remitted the symptoms fully for 5 days and then they came slamming back...not sure where we are going next with him but I am lining up the paperwork for IVIG just in case. For now I manage him with spironolactone, augmentin, ibuprofen, oil of oregano and curcumin (among other things that are not pandas-related).

 

Stephanie

[forjpj]

Congratulations to all of you!! I'm so glad your whole family got a chance to enjoy the moment!! A rare gift for our pandas families!! And enjoy your much needed pandas break...I hope it lasts forever!!

Sarah

[Stephanie2]

Trust me I do plenty of projecting and fretting about the future. But I have learned to put my trust in scott and it has given me a lot of comfort that he seems to be able to pull us out of most crises!! Every day is different around here, but the overall trend seems to be moving upward, so that's what keeps me going...

 

Stephanie

I am so happy for you...

i am glad you had a great family event....

kudos to you for being able to take it one day at a time.....i can only seem to project..and its probably killing me...

you have been a great support...and your regular postings(as well as others here) with daily info (even if repeated) help me and others get through the day..

 

Last night my ds5 graduated from preschool, on stage in front of HUNDREDS of parents (140 graduates)! He did not cry, he did not tantrum, he sang his songs and he walked very normally across the stage and accepted his diploma! This is such an achievement for us b/c in the past he did nothing cry for me the whole time while on stage. There have been times that my husband and I have had to drag him out kicking and screaming (which has lead us to skip these type of events when we just don't have the energy for the drama).

 

Just to recap, my son had IVIG in March (1 mg/kg) and then I increased his spironolactone 3 weeks later. He had about 5 weeks of remission of symptoms and then caught strep (I believe...fever, nausuea, sudden onset of pandas symptoms - did not get a culture just increased his zithromax immediately). Complete remission of symptoms within 24 hours, then a couple weeks later mild symptoms started to return so did a 3 day steroid burst, and that leads us to today. Not sure how far the steroid will take us but for now I am enjoying having a long break from pandas.

 

Unfortunately, we have hard a more difficult time with my ds2. He has had ongoing infections for 6 months (staph, clostridia, enterobacter, yeast). He seems to be healing from the infections finally, but his pandas symptoms are still there. We did a steroid burst recently which remitted the symptoms fully for 5 days and then they came slamming back...not sure where we are going next with him but I am lining up the paperwork for IVIG just in case. For now I manage him with spironolactone, augmentin, ibuprofen, oil of oregano and curcumin (among other things that are not pandas-related).

 

Stephanie

[tantrums]

Congratulations on a wonderful evening

[saidie10]

Last night my ds5 graduated from preschool, on stage in front of HUNDREDS of parents (140 graduates)! He did not cry, he did not tantrum, he sang his songs and he walked very normally across the stage and accepted his diploma! This is such an achievement for us b/c in the past he did nothing cry for me the whole time while on stage. There have been times that my husband and I have had to drag him out kicking and screaming (which has lead us to skip these type of events when we just don't have the energy for the drama).

 

Just to recap, my son had IVIG in March (1 mg/kg) and then I increased his spironolactone 3 weeks later. He had about 5 weeks of remission of symptoms and then caught strep (I believe...fever, nausuea, sudden onset of pandas symptoms - did not get a culture just increased his zithromax immediately). Complete remission of symptoms within 24 hours, then a couple weeks later mild symptoms started to return so did a 3 day steroid burst, and that leads us to today. Not sure how far the steroid will take us but for now I am enjoying having a long break from pandas.

 

Unfortunately, we have hard a more difficult time with my ds2. He has had ongoing infections for 6 months (staph, clostridia, enterobacter, yeast). He seems to be healing from the infections finally, but his pandas symptoms are still there. We did a steroid burst recently which remitted the symptoms fully for 5 days and then they came slamming back...not sure where we are going next with him but I am lining up the paperwork for IVIG just in case. For now I manage him with spironolactone, augmentin, ibuprofen, oil of oregano and curcumin (among other things that are not pandas-related).

 

Stephanie

 

congrats on the good news and wonderful accomplishment! proud mom you should be!! happy your little one is doing better. that is fantastic!

[mama2alex]

So happy for you and your family! And I bet he felt so proud of himself. Thanks for sharing - I love reading these good news posts!!

[Stephanie2]

Yes, we made a very big deal about how hard he worked and now he gets to go to kindergarten and he was so proud and excited to be the center of attention and get so much positive attention yesterday! I asked him how he felt on stage (he looked nervous), and he said he felt excited to graduate and "when do I get to go on stage again, mommy?"! Love to see my little boy lovin' life!! Only part that was sad is that daddy was not able to make it (out of town for work)...he would have been so proud.

 

Stephanie

 

So happy for you and your family! And I bet he felt so proud of himself. Thanks for sharing - I love reading these good news posts!!

[Mary M]

It's posts like this that will help us all through the next couple of minutes/days/weeks...whatever we can get.

[Stephanie2]

I'm glad I could help in some small way. My boys have brought me to my knees (literally) so many times and I know what you mean about knowing that there is hope...sometimes it is all that gets us through the hard times.

It's posts like this that will help us all through the next couple of minutes/days/weeks...whatever we can get.