PANDAS on TV- DEB C

[bgbarnes]

I was watching Grey's Anatomy last night when the teaser for the 10:00 news said Strep can cause side effects that your pediatrician may not even know about...I KNEW it was gong to be about PANDAS...sure enough Deb C ( you are darling by the way) and her daughter were on TV talking about PANDAS!!! I taped it and plan on using it when I talk to the school on Monday ( have a big conference regarding my ds)!!

We were on the NEWS in Dallas!!

Well done Deb C!

Brandy

[P_Mom]

Thumbs up!!!

[MomWithOCDSon]

Cool!

 

This was a local news program? Any idea how someone outside the original market area might view it? Does the station have video links on a web site or anything?

 

Thanks!

[monarchcat]

Cool!

 

This was a local news program? Any idea how someone outside the original market area might view it? Does the station have video links on a web site or anything?

 

Thanks!

 

Here's the link: http://www.wfaa.com/news/A-side-effect-of-...p-93004404.html

 

Great job, Deborah and Lillian!!

Edited May 7, 2010 by monarchcat

[thereishope]

We need "like" buttons on here:)

[dut]

excellent.. wot a great segment!!

[sf_mom]

Fantastic Job!!!! Way to get the word out.

 

-Wendy

[DebC]

excellent.. wot a great segment!!

 

Thanks, everyone!!!

 

I have been working for public awareness for the last 16 months since Lillian's diagnosis. I e-mailed the health reporter on Tuesday asking if they could just do a quick public service announcement regarding the Project PANDAS Pepsi Refresh vote. Within 10 minutes of sending my e-mail, the health reporter e-mailed me back asking if we'd participate in a story. I was stunned and called my husband at work to see if he was okay with it. I think I got maybe 3 words out before I broke down sobbing (everything just came rushing back on how we've been working for awareness and I was overwhelmed -- I never thought we'd be at this point 16 months ago when finding information on this was difficult at best). He thought we'd been in a terrible accident before Lillian spoke up from the backseat and said, "Mom, are you really crying about this?" I finally got the words out and my husband was all for it. Our daughter doesn't want other children to go undiagnosed so she was all for it. All her friends, their families, and our school know what has been going on, so this wouldn't be a big revelation to anyone. We agreed to do the story and they came out yesterday (5/6) and shot it. It was on the ABC WFAA Dallas 10:00 news last night and was touted as a lead story at the intro to the news. It should also run today again at noon and may run on Saturday morning. I was nervous as to whether they would present the story the way I wanted it to go and I felt they did a really good job in educating the general public. It will also air in the Houston, San Antonio, and Austin markets in the next several days to week -- a lot of people reached. They also included a link to the Pepsi Refresh Project PANDAS site along with the web story. I can't say enough nice things about Janet St. James, the health reporter or her camera man. They were both phenomenal as doing something like this was way out of my comfort zone. They put us totally at ease. Lillian and I said a quick prayer for the right words and peace about 15 minutes before the reporter arrived and we were good go to (I should add that after I finished praying aloud, Lillian piped up and added, "And dear God, please help momma not to cry." I didn't and the rest is history. It's amazing how they can take a 45 minute interview and turn it into a 90 second segment!

 

Thanks so much for your kind words!

[Kayanne]

I'm having a hard time writing through the tears!!!

 

Your daughter is beautiful and brave...Thank you for that segment!

 

Great Job!!!

[momaine]

So glad to hear the word is getting out . You guys are very brave!

Angela

[T_Mom]

YES!!! Deb-- Thank you -- on behalf of all the children and families that this may have an incredible ripple-effect on!

 

WAY TO GO! I am sending a big hug to you both--

T:)

[Chemar]

congrats on getting more exposure for PANDAS Deb

[PANDAS_Denmark]

Thank you very much for spreading the word !

I showed the segment to DS9 (PANDAS) a few minutes ago.

Had to promise him to let you know, that your daughter is very, very beautyfull ;-)

I (and my son) wish you all all the best !

[DebC]

Thank you very much for spreading the word !

I showed the segment to DS9 (PANDAS) a few minutes ago.

Had to promise him to let you know, that your daughter is very, very beautyfull ;-)

I (and my son) wish you all all the best !

 

 

PANDAS Denmark -- Thanks!!! I will pass your son's comment on to my daughter. I'm sure she will be flattered!

[thereishope]

Awwwww. Our first internet PANDAS match up:)