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Posted

I know we've talked about probiotics a bunch of times, but I have a couple questions for those who give larger doses. I've been giving DS a mix of culturelle and Jarrowdophilous EPS, totaling about 10 billion cfu a day (I also give him Florastor once a day, but at least that can be taken with antibiotics). I think, though, that I'd like to really get a much higher dose in him. I know some people go as high as a trillion cfu a day, but I'm thinking I'd like to give somewhere around 100 billion. Since he takes augmentin xr twice a day, it's tricky to find a spot to get the probiotics in, so ideally I'd like something I can give once a day, maybe as he walks in from school at 3pm, but without asking him to take a whole bunch of pills. Does anybody use a high-dose probiotic that is easy to take.. maybe one capsule? Or a powder that can be mixed into juice that doesn't taste bad? And if you can, please let me know where you buy/order it from. I worry that with probiotics, if they are not treated carefully you can end up buying dead organisms so I want to be sure to find a reputable place to buy from.

 

Thanks. :-)

Posted

Custom Probiotics has a great value and high quality probiotics. They have 50 billion unit capsules and they also have a powder form if you find it easier to hide in a smoothie.

 

Customprobiotics.com

 

Both of my children have PANDAS and are battling lyme disease, hence, they are on many different types of antibiotics and herbal tinctures throughout the day. I give them each 500 billion units (10 capsules of 50 billion units) of probiotics right before bed each night so that they have the whole night to digest the good bacteria.

 

If you google probiotics and auto-immune issues or probiotics and gut health, you will find some very informative articles on the importance of gut health to overall health, including mental health.

 

Elizabeth

Posted (edited)

I know what you mean about not wanting them to have to take a bunch of pills! I get Pharmax High Potency or Pharmax Mindlex probiotics from Rockwell nutrition. My kids have no idea they are taking anything! They have a peach flavored powder, or, you can get capsules and open them up if you don't want to bother with measuring. The capsules have absolutely no taste. They both easily dissolve completely in water, however, I mix mine up in Vitamin water and just "give them a drink". Again, they have no clue. It is a very high quality pro-biotic. I love it!

 

Kelly

 

http://www.rockwellnutrition.com

 

Click on HLC/Pharmax probiotics

Edited by P.Mom
Posted

We too purchase from Custom Probiotics. Powder form, my twins take 1.5 grams (approximately a teaspoon), twice daily and equals about 850 billion units per day. Our older son takes 10 pills in the morning and 10 pills in the evening @ 50 billion each pill... so a trillion.

 

For our twins we mix: two tablespoons of bentonite clay, 2 o.z. of Kefir (flavored purchase at Whole Foods), 2 o.z. of Organic Apple Juice and 1.5 grams of probiotic and serve at breakfast and dinner. THEY LOVE IT!!!!!!!

Posted

question....

what was the consensous on giving probiaotics that contain STretpococcus thermophhilus

ds did/does? react to strep...but is this different...

just realized the main one i was/am giving contains that

 

i have 2 others i rotate so we hopefully cover them all.....

 

also what about the bartlets clay?????

can you give that and probiotics or is that too much???

Posted

We use these same probiotics but I get them from our dr who is out of state. I'll have to try ordering from Rockwell as their prices are cheaper!

 

We also use boulardii saccharomyces which I give to my son in the morning and nightime (it can be taken at same time as antibiotic). I give the probiotic at mid-morning and then at dinner time. We homeschool though so it makes it a little easier to spread things out. We had alot of gut issues prior to our current antibiotic use so we are over cautious now.

 

I know what you mean about not wanting them to have to take a bunch of pills! I get Pharmax High Potency or Pharmax Mindlex probiotics from Rockwell nutrition. My kids have no idea they are taking anything! They have a peach flavored powder, or, you can get capsules and open them up if you don't want to bother with measuring. The capsules have absolutely no taste. They both easily dissolve completely in water, however, I mix mine up in Vitamin water and just "give them a drink". Again, they have no clue. It is a very high quality pro-biotic. I love it!

 

Kelly

 

http://www.rockwellnutrition.com

 

Click on HLC/Pharmax probiotics

Posted

Bentonite Clay can be taken and mixed in the same drink as probiotic.

 

Bentonite Clay: Our son takes 1/2 cup in morning, 1/2 in afternoon and 1/2 cup in evening (detox). Twins take two tablespoon in a.m. and two in the p.m.

 

It helps to form up the acids in your bowel that your bowel is not healthy enough to form up on its own.

 

"The Canadian Journal of Microbiology states that bentonite clay can absorb pathogenic viruses, aflatoxin, pesticides and herbicides. The negatively charged minerals in the clay attract and bind with the positively charged toxins.

 

Bentonite has proved useful and healing in a variety of ways. These include eliminating painful ganglion cysts, improving intestinal regularity, reliving chronic constipation, diarrhea, indigestion and ulcers, improving physical energy, clearing complexions, enhancing alertness, improving tissue and gum repair, increasing resistance to infections, removing intestinal parasites, allergy and hay fever relief, eliminating anemia and acne, neutralizing allergens, reducing heartburn and indigestion by absorbing excess stomach acids.

 

Bentonite Clay is probably best known for it’s internal detoxification, cleaning the lining of the colon. As the colon becomes cleaner, it is able to function properly in absorbing nutrients, thereby increasing energy, as well as adding 71 trace and ultra-trace minerals"

 

 

question....

what was the consensous on giving probiaotics that contain STretpococcus thermophhilus

ds did/does? react to strep...but is this different...

just realized the main one i was/am giving contains that

 

i have 2 others i rotate so we hopefully cover them all.....

 

also what about the bartlets clay?????

can you give that and probiotics or is that too much???

Posted
We too purchase from Custom Probiotics. Powder form, my twins take 1.5 grams (approximately a teaspoon), twice daily and equals about 850 billion units per day. Our older son takes 10 pills in the morning and 10 pills in the evening @ 50 billion each pill... so a trillion.

 

For our twins we mix: two tablespoons of bentonite clay, 2 o.z. of Kefir (flavored purchase at Whole Foods), 2 o.z. of Organic Apple Juice and 1.5 grams of probiotic and serve at breakfast and dinner. THEY LOVE IT!!!!!!!

 

Why does your son take the pills instead of the powder? Does he prefer that? I can't imagine asking my son to take 20 more pills a day! He bitches and moans enough about his augmentin XR, vitamins, and the couple of probiotics I make him take now. I'm very intrigued by a powder that I can mix into some juice and just have him drink down, though. I really love the idea of getting LOTS of probiotics into him. I think we are on Augmentin XR for at least the next year.

Posted (edited)

Our son does prefers the pills and can't get him to touch the powder. With the powder, the quantity is only a little but the strength is fantastic. 100 gram bottle @ 280 billion units per gram can last a long time. Unfortunately, our entire family is doing high dose probiotics so we really go through it.

 

We've had no complaints of stomach issues, headaches or diarrhea since starting the new regimen.

 

-Wendy

Edited by SF Mom
Posted

We use Klaire Labs "Complete Powder". It contains 100+ billion per serving (1/4 tsp). We usually do 1/2 tsp a couple of times a day (so that works to about 400 billion). And then S. Boulardii at night. We get both of these directly from ProThera Inc. They are very reputable. They ship with ice to preserve the quality of the product. My sister-in-law is an MD so she set up an account for us to be able to get it at a very good discount. But even without the discount, I think it's a good value given the amount of organisms it has. It also comes in capsules, but the powder is a better value, and my kids have gotten used to just taking it straight and washing it down with water or juice.

 

Isabel

Posted

sfmom

 

what brand of betonite clay do you use?

 

 

Bentonite Clay can be taken and mixed in the same drink as probiotic.

 

Bentonite Clay: Our son takes 1/2 cup in morning, 1/2 in afternoon and 1/2 cup in evening (detox). Twins take two tablespoon in a.m. and two in the p.m.

 

It helps to form up the acids in your bowel that your bowel is not healthy enough to form up on its own.

 

"The Canadian Journal of Microbiology states that bentonite clay can absorb pathogenic viruses, aflatoxin, pesticides and herbicides. The negatively charged minerals in the clay attract and bind with the positively charged toxins.

 

Bentonite has proved useful and healing in a variety of ways. These include eliminating painful ganglion cysts, improving intestinal regularity, reliving chronic constipation, diarrhea, indigestion and ulcers, improving physical energy, clearing complexions, enhancing alertness, improving tissue and gum repair, increasing resistance to infections, removing intestinal parasites, allergy and hay fever relief, eliminating anemia and acne, neutralizing allergens, reducing heartburn and indigestion by absorbing excess stomach acids.

 

Bentonite Clay is probably best known for it’s internal detoxification, cleaning the lining of the colon. As the colon becomes cleaner, it is able to function properly in absorbing nutrients, thereby increasing energy, as well as adding 71 trace and ultra-trace minerals"

 

 

question....

what was the consensous on giving probiaotics that contain STretpococcus thermophhilus

ds did/does? react to strep...but is this different...

just realized the main one i was/am giving contains that

 

i have 2 others i rotate so we hopefully cover them all.....

 

also what about the bartlets clay?????

can you give that and probiotics or is that too much???

Posted

We also use Custom Probiotics, very reputable. Seems expensive when you buy it but a bottle will last forever. I give my son 200 billion cfu's but I am working both kids up to 400 billion (half am and half pm). I have heard that they need to be 1 to 2 hours away from antibiotics. I always aim for 2 hours. I give his second dose of probiotics right before bed (gives a chance for the probiotics to colonize the gut all night long)...

 

SFmom, who advised you to give a trillion cfu's? I have never heard of going that high. If it helps I'd love to try it b/c our gut issues are almost as bad as pandas issues.

 

Stephanie

Posted

She is a nutritionist.... has been symptomless from her own auto-immune illness for over 16. Helped a boy diagnosed with TS, now 9 and now symptomless. She wrote and self published a book.... Writing style is a little rough but message is good. Originally, recommend by a parent on this forum.

 

http://www.thisworkscrutchesdont.com/

 

-Wendy

 

We also use Custom Probiotics, very reputable. Seems expensive when you buy it but a bottle will last forever. I give my son 200 billion cfu's but I am working both kids up to 400 billion (half am and half pm). I have heard that they need to be 1 to 2 hours away from antibiotics. I always aim for 2 hours. I give his second dose of probiotics right before bed (gives a chance for the probiotics to colonize the gut all night long)...

 

SFmom, who advised you to give a trillion cfu's? I have never heard of going that high. If it helps I'd love to try it b/c our gut issues are almost as bad as pandas issues.

 

Stephanie

Posted
We too purchase from Custom Probiotics. Powder form, my twins take 1.5 grams (approximately a teaspoon), twice daily and equals about 850 billion units per day. Our older son takes 10 pills in the morning and 10 pills in the evening @ 50 billion each pill... so a trillion.

 

For our twins we mix: two tablespoons of bentonite clay, 2 o.z. of Kefir (flavored purchase at Whole Foods), 2 o.z. of Organic Apple Juice and 1.5 grams of probiotic and serve at breakfast and dinner. THEY LOVE IT!!!!!!!

SF Mom --

 

Having seen several of your posts regarding the benefits of bentonite clay, I'm thinking about trying it for DS. However, we don't have a doctor locally who's familiar with it, and in searching the web, I find a lot of cautions about constipation and overuse, suggestions that you add a laxative or psyllium to the regimen if you're going to use it, etc. Now, DS's abx definitely has some "laxative" properties all its own, so maybe as long as he's on the abx, use of the clay isn't an issue? Can you share your experience(s) in this regard? Just to add a little more info, DS is 13 and about 130 pounds. Thanks!

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