finally got my lyme results

[MichaelTampa]

In case anyone is curious ... From IGeneX, negative for all the antibodies--lyme, baronella, rickettsia. On the IGeneX western blot, IgM, western blot was positive for band 41 (1+ out of four possible positives--1+, 2+, 3+, and 4+) and indeterminate (somewhere between positive and negative) for band 39, and negative for all other bands. On IGeneX western blot, IgG, same as IgM, except the band 41 positive was 2+ (instead of 1+). Did not get the CD57 results from LabCorp, the wrong test got ran for that before, got blood draw today to try again on that. There is that controversial band 41 again. In general, the official line would need more than the 41 to be positive for lyme, such as 39 and 41 would do it. Of course, any particular doctor may interpret as they choose. For the indeterminate results, they report recommends re-running test in 4-6 weeks or using different approach to diagnose. So, not too much conclusive in the report. Did get a referral to a local ILADS-recommended doctor in the Infectious Disease field, Dr. C. if I can use that name.

 

Michael

[GatsMom]

In case anyone is curious ... From IGeneX, negative for all the antibodies--lyme, baronella, rickettsia. On the IGeneX western blot, IgM, western blot was positive for band 41 (1+ out of four possible positives--1+, 2+, 3+, and 4+) and indeterminate (somewhere between positive and negative) for band 39, and negative for all other bands. On IGeneX western blot, IgG, same as IgM, except the band 41 positive was 2+ (instead of 1+). Did not get the CD57 results from LabCorp, the wrong test got ran for that before, got blood draw today to try again on that. There is that controversial band 41 again. In general, the official line would need more than the 41 to be positive for lyme, such as 39 and 41 would do it. Of course, any particular doctor may interpret as they choose. For the indeterminate results, they report recommends re-running test in 4-6 weeks or using different approach to diagnose. So, not too much conclusive in the report. Did get a referral to a local ILADS-recommended doctor in the Infectious Disease field, Dr. C. if I can use that name.

 

Michael

 

How about that band 41? How are you feeling these days? Are you still on biaxin?

 

Gayle

[MichaelTampa]

In case anyone is curious ... From IGeneX, negative for all the antibodies--lyme, baronella, rickettsia. On the IGeneX western blot, IgM, western blot was positive for band 41 (1+ out of four possible positives--1+, 2+, 3+, and 4+) and indeterminate (somewhere between positive and negative) for band 39, and negative for all other bands. On IGeneX western blot, IgG, same as IgM, except the band 41 positive was 2+ (instead of 1+). Did not get the CD57 results from LabCorp, the wrong test got ran for that before, got blood draw today to try again on that. There is that controversial band 41 again. In general, the official line would need more than the 41 to be positive for lyme, such as 39 and 41 would do it. Of course, any particular doctor may interpret as they choose. For the indeterminate results, they report recommends re-running test in 4-6 weeks or using different approach to diagnose. So, not too much conclusive in the report. Did get a referral to a local ILADS-recommended doctor in the Infectious Disease field, Dr. C. if I can use that name.

 

Michael

 

How about that band 41? How are you feeling these days? Are you still on biaxin?

 

Gayle

 

Not sure what the answer to how I'm feeling is. I am seeing some relief from the fluorescent lights and wireless symptoms, nowhere near enough to go back to work, but seeing it headed in the right direction is nice. Those sensitivities have slowly gotten worse over the last 25 years, but with peaks and valleys for overall health and strength. So, maybe the reduced sensitivities is just that I am overall much healthier, with all the treatments, or maybe and hopefully something more, maybe really treating the problem somehow. No idea which it is. I finished the 1 month of biaxin, then took 10 days off antibiotics, and started augmentin last week. The intent of the break was to improve the fungus problem, and really it ended up flaring up for some reason during that time, with now problems with acid reflux during sleeptime, and this fur on my tongue and bad breath to go with it. With the augmentin added to the fungus issue, I am waking up pretty exhausted in the morning. This month of augmentin looks to be quite another grind coming up, so basically just trying to hang in there and appreciate at least I don't have much in the way of responsibility during this time anyway.

 

Michael

[GatsMom]

In case anyone is curious ... From IGeneX, negative for all the antibodies--lyme, baronella, rickettsia. On the IGeneX western blot, IgM, western blot was positive for band 41 (1+ out of four possible positives--1+, 2+, 3+, and 4+) and indeterminate (somewhere between positive and negative) for band 39, and negative for all other bands. On IGeneX western blot, IgG, same as IgM, except the band 41 positive was 2+ (instead of 1+). Did not get the CD57 results from LabCorp, the wrong test got ran for that before, got blood draw today to try again on that. There is that controversial band 41 again. In general, the official line would need more than the 41 to be positive for lyme, such as 39 and 41 would do it. Of course, any particular doctor may interpret as they choose. For the indeterminate results, they report recommends re-running test in 4-6 weeks or using different approach to diagnose. So, not too much conclusive in the report. Did get a referral to a local ILADS-recommended doctor in the Infectious Disease field, Dr. C. if I can use that name.

 

Michael

 

How about that band 41? How are you feeling these days? Are you still on biaxin?

 

Gayle

 

Not sure what the answer to how I'm feeling is. I am seeing some relief from the fluorescent lights and wireless symptoms, nowhere near enough to go back to work, but seeing it headed in the right direction is nice. Those sensitivities have slowly gotten worse over the last 25 years, but with peaks and valleys for overall health and strength. So, maybe the reduced sensitivities is just that I am overall much healthier, with all the treatments, or maybe and hopefully something more, maybe really treating the problem somehow. No idea which it is. I finished the 1 month of biaxin, then took 10 days off antibiotics, and started augmentin last week. The intent of the break was to improve the fungus problem, and really it ended up flaring up for some reason during that time, with now problems with acid reflux during sleeptime, and this fur on my tongue and bad breath to go with it. With the augmentin added to the fungus issue, I am waking up pretty exhausted in the morning. This month of augmentin looks to be quite another grind coming up, so basically just trying to hang in there and appreciate at least I don't have much in the way of responsibility during this time anyway.

 

Michael

 

Yeah, we can attest to how brutal the augmentin/biaxin blast can be when there's a background of yeast. I'm sure glad to hear there's a lessening in some of the sensitivities and I would take that as nothing but a sign that things are stabilizing to a degree. Hopefully it's the beginning of a core stabilization for you. It'll be interesting to see what becomes of the band 41 situation.

[Fixit]

i am hoping for you on a personal level...but also in the greater scheme fo adult ANDAS/ITANDS

that this is the begining of a recovery even if very slow!!!!!

 

even when my son was more resiliant...i would see a lessoning of severirty in symptoms by the end of his abx dose, but would still take a couple of weeks for completer remission....

 

so i am hoping that we are also on a slow recovery path.....being that i hear of it taking years for some to recover from lymes and/or mp

 

God Bless!!