Introducing myself

[Aubieirish]

deleted for privacy reasons

Edited March 20, 2011 by Aubieirish

[fuelforall]

 

Welcome, Heather. Good luck in your journey. Do you live in an area where a Pandas doctor may be? Alas, most are on either coast with the exception of the renowned Dr. K in Illinois.

Michael

[simplygina]

Sorry you are here because your child is having issues, but Welcome to the Club! You are in the right place because it sure sounds like PANDAS to me!

 

You are lucky to have noticed such a clear correlation between the strep and his behaviors.

 

This board has been a life saver for me! There is so much information and the support is so important to me right now.

[T_Mom]

Aubieirish--Welcome, I am so sorry you have been going through this experience. This is a path I would not wish on anyone.

You have found a wealth of info. here though--and I do hope it will be useful.

 

I am sure you have seen them--but at the top of the Pandas forum page there are a number of "helpful" threads that are resources for us all.

 

Also, the www.pandasnetwork.org website is a wealth of information--

 

All the best,

TMom

[Aubieirish]

deleted for privacy reasons

Edited March 20, 2011 by Aubieirish

[fuelforall]

From a previous poster

 

 

fort Worth, TX

Dr. Mark Mazade, Pediatric Infectious Disease Specialist with Cook Children's Medical Center

800 7th Ave Fort Worth, TX 76104-2704 - (682) 885-1485

My experience with him is he is gentle and kind. I have been very pleased with him.

 

Arlington, TX

Dr. Wilfred Raine, Pediatrician in the Cook Children's group.

848 W. Mitchell St. Arlington, TX 76013 - (817)-795-8498

Dr. Raine is friendly, compassionate, supportive and was the only (of many) pediatricians in Arlington who took me seriously.

[dee45]

welcome Heather--I remember how I came across this forum as well--researching late into the morning hours and then coming across this site with so much information I finally found others to share with and hear about there experiences it has been such a great place. you will find so much info and whenever you need help so many will respond. I wish you the best of luck.

 

Deanna

[GatsMom]

Hello everyone,

 

My name is Heather and I was fortunate to find this forum today after a couple of months of researching what could possibly be affecting one of our children. We have wonderful, bright, and beautiful children (I am just little biased ). However, all of that changes once our child gets strep. He becomes highly emotional, gets angry, sad, and a plethora of emotions, suffers low self-esteem from "bad thoughts", he starts doing ritualistic behaviors that he can't seem to shake, and complains of terrible joint pain in his legs & arms.

 

We have dealt with this for the last couple of years, but it wasn't until early this year when he had back-to-back strep that we realized that this occurred every time he gets strep. I consulted with several people, but got no where for the most part. I mentioned this to our pediatrician who seemed to think our son had some form of a psychiatric disorder. What she thought he had I researched until I was blue in the face and nothing fit. I keep researching and found something about PANDAS, but it wasn't until the last week when I uncovered more about it and read some case histories that sounded so very similar to what we experience.

 

I feel like my family and I have just stepped into the light and it is such a relief to know that we are not alone in the journey. Of course I am not 100% sure he has PANDAS, but the more I read the more everything seems to fall into place.

 

I look forward to getting to know each of you more, and figuring out our next steps, and hopefully finding a doctor who will listen to us and help us find what is right for our family.

 

Heather

 

You have stumbled onto a great resource with this group. The compassion and education that is often lacking in the general population is abundant here. It will serve you and your family well. Get a really good doc asap and don't waste much time with those who have to be convinced of the validity of this condition. You can worry about going back and educating the nonbelievers once your child is well.

 

Best wishes,

Gat's mom

[thereishope]

Just wanted to extend a warm welcome.

 

Also, with newbies, I like to share some of most informative thread for you to look over. I suggest printing them out ,looking over them, and you might have some "aha" moments.

 

PANDAS Fact Sheet

http://www.latitudes.org/forums/index.php?showtopic=6265

 

PANDAS FAQ

http://www.latitudes.org/forums/index.php?showtopic=6266

 

What OCD can look like as seen by people on this forum

http://www.latitudes.org/forums/index.php?...ic=6153&hl=

 

Buster's flowchart for helping you through the journey of trying to figure out if it's PANDAS

http://www.latitudes.org/forums/index.php?...ic=6688&hl=