jewels Posted January 31, 2010 Report Share Posted January 31, 2010 Hello all, I posted on this forum after my dd exploded with tics after a vaccine at the age of 4. I just wanted to update you all on how we are doing, and also say a big thankyou to everyone that gave me support and help. Being in the UK has proved very difficult in getting any biomedical help or testing, so I followed the advice on the board regarding improving her diet and helping her immune system. We have won on the allergy battle, and our dd is not suffering constant tummy problems, but we had regular explosions of tics etc, every time she had an infection or virus. In Sept 09 she started with a kidney infection and her tics exploded again. Her ped. started her on abx, then daily abx (Keflex) , and after 3 days she was symptom free of tics, regression, not sleeping etc, etc. Four days ago we had to rush her to the drs with a sudden temp which went up quickly to 39.7 and the dr confirmed infection in throat and both ears. (swabbed for strep) She was put on high dose abx, and paused her daily Keflex. She once again started with tics but 3rd day on abx and they have once again gone. We have at last found a dr that understands PANDAS and has seen the transformation when on abx. Our little girl is now the happy child we used to have that never stops singing, dancing and laughing. We know as parents that we have along way to go treating this new condition, but we are now on the right path at last. I want to thank everyone who helped me when going through the dark times at the beginning, and I do believe that if I had not found this forum then we could of not been as strong in fighting this. This forum helps so many parents because of the caring and educated people here. Keep being the wonderful parents and people that you all are.... Many, many thanks Jules. Link to comment Share on other sites More sharing options...
Chemar Posted January 31, 2010 Report Share Posted January 31, 2010 thanks for updating us Jules what a relief to hear that you are at least finding answers and so can more proactively treat what is wrong so glad to hear you found a doc that understands about PANDAS hoping for healing and wellness. Link to comment Share on other sites More sharing options...
KileyAnn Posted February 1, 2010 Report Share Posted February 1, 2010 So do you recommend not getting vaccines? Are there any studies on Vaccines and TS? I have two little ones so just curious... Hello all, I posted on this forum after my dd exploded with tics after a vaccine at the age of 4. I just wanted to update you all on how we are doing, and also say a big thankyou to everyone that gave me support and help. Being in the UK has proved very difficult in getting any biomedical help or testing, so I followed the advice on the board regarding improving her diet and helping her immune system. We have won on the allergy battle, and our dd is not suffering constant tummy problems, but we had regular explosions of tics etc, every time she had an infection or virus. In Sept 09 she started with a kidney infection and her tics exploded again. Her ped. started her on abx, then daily abx (Keflex) , and after 3 days she was symptom free of tics, regression, not sleeping etc, etc. Four days ago we had to rush her to the drs with a sudden temp which went up quickly to 39.7 and the dr confirmed infection in throat and both ears. (swabbed for strep) She was put on high dose abx, and paused her daily Keflex. She once again started with tics but 3rd day on abx and they have once again gone. We have at last found a dr that understands PANDAS and has seen the transformation when on abx. Our little girl is now the happy child we used to have that never stops singing, dancing and laughing. We know as parents that we have along way to go treating this new condition, but we are now on the right path at last. I want to thank everyone who helped me when going through the dark times at the beginning, and I do believe that if I had not found this forum then we could of not been as strong in fighting this. This forum helps so many parents because of the caring and educated people here. Keep being the wonderful parents and people that you all are.... Many, many thanks Jules. Link to comment Share on other sites More sharing options...
bev Posted February 1, 2010 Report Share Posted February 1, 2010 Hello all, I posted on this forum after my dd exploded with tics after a vaccine at the age of 4. I just wanted to update you all on how we are doing, and also say a big thankyou to everyone that gave me support and help. Being in the UK has proved very difficult in getting any biomedical help or testing, so I followed the advice on the board regarding improving her diet and helping her immune system. We have won on the allergy battle, and our dd is not suffering constant tummy problems, but we had regular explosions of tics etc, every time she had an infection or virus. In Sept 09 she started with a kidney infection and her tics exploded again. Her ped. started her on abx, then daily abx (Keflex) , and after 3 days she was symptom free of tics, regression, not sleeping etc, etc. Four days ago we had to rush her to the drs with a sudden temp which went up quickly to 39.7 and the dr confirmed infection in throat and both ears. (swabbed for strep) She was put on high dose abx, and paused her daily Keflex. She once again started with tics but 3rd day on abx and they have once again gone. We have at last found a dr that understands PANDAS and has seen the transformation when on abx. Our little girl is now the happy child we used to have that never stops singing, dancing and laughing. We know as parents that we have along way to go treating this new condition, but we are now on the right path at last. I want to thank everyone who helped me when going through the dark times at the beginning, and I do believe that if I had not found this forum then we could of not been as strong in fighting this. This forum helps so many parents because of the caring and educated people here. Keep being the wonderful parents and people that you all are.... Many, many thanks Jules. Hi Jules, I am in the UK and would be interested to know about the doc your referring to? My son has tics - no diagnosis yet - but as you must know the UK are somewhat behind with treating TS etc - so i am interested in anyone who has knowledge of PANDAS etc. I understand if you dont want to give the doc's name. Bev x Link to comment Share on other sites More sharing options...
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