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Everything posted by jewels

  1. Fixit, It's not something that you would want to keep around - they think its going to be a big health problem here too. I met a lady once in the health food shop who had been ill for years, the drs put it down to depression and attention seeking. She went to France for a holiday and became very sick. They found Lyme and after alot of treatment she said she's getting better. There's a Dr here who is doing research on the best type of treatment. It makes you wonder how many people are on pills because the Drs cannot find a cause and all along it could be down to one little
  2. Cheri, PMed you, and you may get two as my cat has just hit the return button.
  3. Hi cheri, It's interesting that you mentioned crohn's as the Dr wants to test dd for this condition. Am I right in saying that it's an autoimmune condition as it was the allergy specialist that was pushing for this. He also mentioned that crohn's patients don't have a good reaction to over the counter probiotics. He did mention a strange way to treat it - not nice Thanks Jules
  4. The most impressive thing about the US Health system (I don't know if it's every state), it that I was taken sick and went to local medical centre (LA). The Dr prescribed me abx for ear infection and also probiotics. This is not done here, but I feel it's needed for a more pro-active way to look after your immune system. Probiotics are just taking off now but not fast enough. Also the DRs here are very narrow minded when you talk about candida and most state it's just a theory! Jules
  5. Hi fixit I don't how they test in US, but this is a rundown of how one (private) hospital here does things. Hope this helps After a person becomes infected with borreliosis by a tick or other blood-feeding insect, the person may develop a resulting skin rash. Sometimes later a chronic rash can occur, with fever, headache and pain in the muscles and joints. Some infected people may not experience any noticeable symptoms at the time of infection. Without treatment, the symptoms can last for weeks or even longer. Sometimes serious complications may occur several years later in
  6. Wendy, I fully agree - the gut health/immune system is the most important thing to heal and get working to the max. We also use B12 among other things. The differences between dds stool sample tests after gut healing is amazing, and it shows by the reduction in infections and fevers. Jules
  7. Hi Dr T I think the Fungi issue is really important. When we have die off dd will respond with PANDAS symptoms which I'm convinced leads to a inflammatory reaction (maybe chemical changes in body) in the brain. We have the identical symptoms with strep and die off. Both different causes respond well to abx and advil. Our dr said thay it my be an allergic triggered reaction with the yeast die off. Jules
  8. hi smartyjones, With a mutiple family affected I see only a predisposed genetic link, and then a infection/viral/immune system overload trigger. My old Dr that I had when I was a little one (many moons ago) would always say "you will get worse before you get better" as the body is fighting etc. The adrenal glands suffer alot when under stress and the whole body gets knocked offbalance I've seen the calm, then the storm, then the calm effect while trying to heal the most important thing - the immune system. I realise now that when we reached the healed calm I didn't keep on top
  9. Hi All Just wanted to update you with my PANDAS fight! DD has just finished her high dose abx and straight away her temperature is rising. I've had enough of watching her suffer and losing more precious childhood moments so I've rang the hospital and had a "moment" GREAT NEWS ......They agree that something is going on infection wise and the abx are not working. We are going into the ward Tuesday morning for tests, which I feel are a month overdue! I've armed myself with all the parents knowledge on the forum and I would like to say a MASSIVE thankyou for everyone highlighti
  10. Hi We don't really treat Lyme in the UK, but some of the Drs here feel its a silent horrible condition that is rising fast. They don't have the tests in main hospitals that can pick up the unusual. I do see a big link that our children suffer with the unusual. It's a pity that we cannot get them tested for every related infection etc that all the parents are coming across. The UK now treat Lyme with IV abx and they still state it's hard to treat. Some of the private hospitals run a range of different tests as it can be so often missed here. Our Dan dr did say left untreated it c
  11. Hello Elizabeth, I'm from the UK also, and it is a wait and see game if you have the transient tics. If you need help with Drs who are aware of tests for strep etc then please let me know. As for the milk issue, I agree with Faith and CSP, but we went GF also. I did reintroduce milk and with a week our DD started with a mild stammer. It stopped when we went DF again. Keep his diet E number and chemical free as possible - very hard in this country, and you need to start all meals from scratch (even down to stock). All the things that Cheri suggested had a massive positive imp
  12. Hi Michael, Thankyou for your comments. I think that we're on the same page with this issue. Her gut wall was previously damaged due to abx/yeast/allergy which has resulted in flora damage and the onset of small holes in the lining. This I feel has weakened her immune system and allowed infections to flourish and her body not fight them. The result is massive inflammation in body (and brain). Then given more abx and the problems increase, so we are now in a place of needing abx to fight the bad bacteria in her body but the abx are knocking her natural immune system to a dangerously
  13. Melaine, More hugs sent from very afar. If you are worried about school then go with your heart, maybe he is far better resting at home and it gives you peace of mind and the chance to monitor him. I hope he improves. Fingers crossed for you. Jules
  14. Cheri, We do have a foot spa that she loves to use, so will add the salt. She is DF so having trouble with Kefir, but we are starting the yeast free diet. I think at this time we can't really do much apart from not feed whats growing. DH wants to try HBOT as he used to be commercial diver and said he never felt healthier or more alert than after his sessions. Its the lack of alertness that I can see with dd when yeast is taking over. Hopefully the milk thistle will arrive soon to help. Once again many thanks for your help. Jules
  15. Hi worried dad, Our country is run by two important views 1. Go by only what's inside a medical box, and never think outside of it 2. Money -- cheapest way to ease a symptom And I've just thought of a third reason, if we have the Drs like you have that want to help, well they will be ripped apart by the GMC Jules
  16. Thankyou Cheri, The stress on her little body is a big concern and we see this with die off as she get a very high fever, sweating and shaking. Dh mentioned O2 therapy, but I need drs imput for that one. We tried acupunture to help with allergies a few years ago and dd was not amused to say the least. But maybe now that she's older we could try again. I have found some detox patches that you put on your feet overnight, but they do not mention an age range. I was thinking of homemade ones but have to be careful with reactions (bandaids make her blister). We are going to give th
  17. Hello, We are now having major problems with dds yeast issues due to almost 5 months on abx. I think the main problem is a leaky gut, and even a small amount of probiotics or yeast killer sets off such a bad reaction as the toxins leak into her system that we get a massive inflammatory response. The abx is a must at the moment due to infections and low white blood count. We have just tried Candida Clear (tiny amount), used salt baths, Lemon drink etc but she still exploded with tics. Tics stopped with advil and abx, but my main concern is she's now getting those drunk symptoms fro
  18. I had a big lol at the English/Welsh bit too! I think if they could blow themselves off England then they would. Saying that it's a lovely place to visit. Jules
  19. Thankyou reactive and Vickie for all the information. I've tried all my usual sources and they're not available here. I will be contacting DAN Dr and Ped to see if they can help me with a supply, or do my normal import from the US route if they are unable to assist. However dds Ped is fast tracking sons treatment - he sees a link. As for the swabbing.........that will be left to me also, great hubby, but he runs from anything like this, he says his hands are too big!!!! On the plus side I came across urine test strips for oxative stress. When dd has a strep throat/infection her
  20. Thanks Vickie Yes we do have a very bad yeast issue.....nightmare to keep on top of. I'll have a hunt in the morning and see if I can get some here. They sound a better way for us to check rather than dragging the children to Drs. Thankyou for all the help Jules
  21. Thankyou for posting such wonderful, positive news. Happy Birthday to your son, and I hope he has a FANTASTIC day! Jules
  22. Are they like the Ph strips - or would I have to send them for a culture. I'm a bit ocd now - I check everyones temperature, when I see a couple of days low fever thats on the up I get them to the Drs. I see a pattern with the children now - sneezes, then a runny nose, followed by a fever. I just wondered if any other parent has a pandas child with a long running fever. Before all this started dd would be 36.6 and now she runs at 37.5 when not showing strep/tics. Its like even when she appears well, she is still showing signs of low fever. Has anybody else come across this?
  23. I wouldn't be able to do the whole family here, if we asked the gp he'd have us all in white jackets We are due to see Ped very soon, and going to ask him about us all being tested. We do have a carrier in the house. Our son has a allergy nose issue which we fight with steroids/abx etc, but he's due to have some radical treatment in the hope of stopping allergies and infections. I have asked the GP before and I got the "strep's everywhere" comment - but he thinks PANDAS are a group of bears! Jules
  24. Thankyou Vickie for posting that. I've not come across it and it explained lots to me. Do the Drs who carry out the IVIG test the whole family for strep and treat just before they start the treatments? Jules
  25. I hope more use them, we seem to have children with added issues when they are knocked with this condition. My dds measles reaction was unreal, and couldn't find a single Dr who wanted to comment on it or more importantly treat her. The DAN had her on Vit A as soon as possible whilst supporting the explosion of new allergies. I owe her so much, she just seemed to know how to treat her, what to look for and how much dosage of supplements needed. We need to mix DAN Drs in with other Medical Drs at Hospitals. I have found some natural products to be far better than lots of main medici
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