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Good News Danny is having the IVIG


melanie
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Hi

 

Danny is having the IVIG today and will have it every 30 days untill well whenever!!! I didnt want to jinx it by talking about it sounds silly I know but Hes been throught he ringer with this.They are doing the treatments at home with a nurse and Im soooo happy .Ill keep evryone informed on the progress(hopefully)

 

Melanie

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Hi

 

Danny is having the IVIG today and will have it every 30 days untill well whenever!!! I didnt want to jinx it by talking about it sounds silly I know but Hes been throught he ringer with this.They are doing the treatments at home with a nurse and Im soooo happy .Ill keep evryone informed on the progress(hopefully)

 

Melanie

 

Melanie,

What dose of IVIG is Danny having?

 

Alex

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Hi

 

Danny is having the IVIG today and will have it every 30 days untill well whenever!!! I didnt want to jinx it by talking about it sounds silly I know but Hes been throught he ringer with this.They are doing the treatments at home with a nurse and Im soooo happy .Ill keep evryone informed on the progress(hopefully)

 

Melanie

 

Melanie,

What dose of IVIG is Danny having?

 

Alex

 

 

My husband is home with him I have the orders at home Ill tell you later I know it takes about 4 hours

 

Melanie

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Hi

 

Danny is having the IVIG today and will have it every 30 days untill well whenever!!! I didnt want to jinx it by talking about it sounds silly I know but Hes been throught he ringer with this.They are doing the treatments at home with a nurse and Im soooo happy .Ill keep evryone informed on the progress(hopefully)

 

Melanie

 

Melanie,

What dose of IVIG is Danny having?

 

Alex

 

 

My husband is home with him I have the orders at home Ill tell you later I know it takes about 4 hours

 

Melanie

 

Melanie, I am only asking because of I phone consult I had with Dr. K the other day. He is adamant that the dosage should be 1.5 g/kg or higher. Otherwise, according to Dr. K it probably won't do what it is supposed to.

Alex

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Did UHC give you coverage for this?

 

 

No I have BCBS Hes covered under specific immune defiency

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Did UHC give you coverage for this?

 

 

No I have BCBS Hes covered under specific immune defiency

 

Before I get my own personal hopes up reading your post, I am going to say a short prayer ( ok done) that you have BC/BS of Illinois cause thats what we have and I would love to hear that they covered it?????????

 

Whether it is or not though I am very happy for your family!!!!!!!!!!

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Way to go Melanie--you have been through alot, so here is hoping for the best for you, Danny and your family. Hope you have a good weekend.

 

Deanna

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Way to go Melanie--you have been through alot, so here is hoping for the best for you, Danny and your family. Hope you have a good weekend.

 

Deanna

 

 

Hi

 

Hes all done for today it took about 4 hours and no problems to report I have BCBS of NJ he is having privigen 10% Liquid 60 grams=600ml to be infused 3-4 hrs once every 3 weeksvia vista pump

 

Dx is selective Ig deficiency

cronic condition is PANDAS

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Way to go Melanie--you have been through alot, so here is hoping for the best for you, Danny and your family. Hope you have a good weekend.

 

Deanna

 

 

Hi

 

Hes all done for today it took about 4 hours and no problems to report I have BCBS of NJ he is having privigen 10% Liquid 60 grams=600ml to be infused 3-4 hrs once every 3 weeksvia vista pump

 

Dx is selective Ig deficiency

cronic condition is PANDAS

 

Melanie,

How much does Danny weigh?

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Way to go Melanie--you have been through alot, so here is hoping for the best for you, Danny and your family. Hope you have a good weekend.

 

Deanna

 

 

Hi

 

Hes all done for today it took about 4 hours and no problems to report I have BCBS of NJ he is having privigen 10% Liquid 60 grams=600ml to be infused 3-4 hrs once every 3 weeksvia vista pump

 

Dx is selective Ig deficiency

cronic condition is PANDAS

 

Melanie,

How much does Danny weigh?

 

 

He is 5'9 and weighs 140-145 Hes 15 1/2 yrs old

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