melanie Posted January 29, 2010 Report Posted January 29, 2010 Hi Danny is having the IVIG today and will have it every 30 days untill well whenever!!! I didnt want to jinx it by talking about it sounds silly I know but Hes been throught he ringer with this.They are doing the treatments at home with a nurse and Im soooo happy .Ill keep evryone informed on the progress(hopefully) Melanie
Alex Posted January 29, 2010 Report Posted January 29, 2010 Hi Danny is having the IVIG today and will have it every 30 days untill well whenever!!! I didnt want to jinx it by talking about it sounds silly I know but Hes been throught he ringer with this.They are doing the treatments at home with a nurse and Im soooo happy .Ill keep evryone informed on the progress(hopefully) Melanie Melanie, What dose of IVIG is Danny having? Alex
ajcire Posted January 29, 2010 Report Posted January 29, 2010 Great News!! I hope this is the answer for him!
melanie Posted January 29, 2010 Author Report Posted January 29, 2010 Hi Danny is having the IVIG today and will have it every 30 days untill well whenever!!! I didnt want to jinx it by talking about it sounds silly I know but Hes been throught he ringer with this.They are doing the treatments at home with a nurse and Im soooo happy .Ill keep evryone informed on the progress(hopefully) Melanie Melanie, What dose of IVIG is Danny having? Alex My husband is home with him I have the orders at home Ill tell you later I know it takes about 4 hours Melanie
thereishope Posted January 29, 2010 Report Posted January 29, 2010 I'm so happy for you! You fought hard for him and it's paying off. Good job!
fuelforall Posted January 29, 2010 Report Posted January 29, 2010 Did UHC give you coverage for this?
Alex Posted January 29, 2010 Report Posted January 29, 2010 Hi Danny is having the IVIG today and will have it every 30 days untill well whenever!!! I didnt want to jinx it by talking about it sounds silly I know but Hes been throught he ringer with this.They are doing the treatments at home with a nurse and Im soooo happy .Ill keep evryone informed on the progress(hopefully) Melanie Melanie, What dose of IVIG is Danny having? Alex My husband is home with him I have the orders at home Ill tell you later I know it takes about 4 hours Melanie Melanie, I am only asking because of I phone consult I had with Dr. K the other day. He is adamant that the dosage should be 1.5 g/kg or higher. Otherwise, according to Dr. K it probably won't do what it is supposed to. Alex
melanie Posted January 29, 2010 Author Report Posted January 29, 2010 Did UHC give you coverage for this? No I have BCBS Hes covered under specific immune defiency
peglem Posted January 29, 2010 Report Posted January 29, 2010 Melanie, Just want to let you know how excited I am that this is finally happening for you guys!
7upMom Posted January 29, 2010 Report Posted January 29, 2010 Did UHC give you coverage for this? No I have BCBS Hes covered under specific immune defiency Before I get my own personal hopes up reading your post, I am going to say a short prayer ( ok done) that you have BC/BS of Illinois cause thats what we have and I would love to hear that they covered it????????? Whether it is or not though I am very happy for your family!!!!!!!!!!
Megs_Mom Posted January 29, 2010 Report Posted January 29, 2010 Great job Melanie - you have fought so hard for this!
dee45 Posted January 29, 2010 Report Posted January 29, 2010 Way to go Melanie--you have been through alot, so here is hoping for the best for you, Danny and your family. Hope you have a good weekend. Deanna
melanie Posted January 29, 2010 Author Report Posted January 29, 2010 Way to go Melanie--you have been through alot, so here is hoping for the best for you, Danny and your family. Hope you have a good weekend. Deanna Hi Hes all done for today it took about 4 hours and no problems to report I have BCBS of NJ he is having privigen 10% Liquid 60 grams=600ml to be infused 3-4 hrs once every 3 weeksvia vista pump Dx is selective Ig deficiency cronic condition is PANDAS
Alex Posted January 29, 2010 Report Posted January 29, 2010 Way to go Melanie--you have been through alot, so here is hoping for the best for you, Danny and your family. Hope you have a good weekend. Deanna Hi Hes all done for today it took about 4 hours and no problems to report I have BCBS of NJ he is having privigen 10% Liquid 60 grams=600ml to be infused 3-4 hrs once every 3 weeksvia vista pump Dx is selective Ig deficiency cronic condition is PANDAS Melanie, How much does Danny weigh?
melanie Posted January 29, 2010 Author Report Posted January 29, 2010 Way to go Melanie--you have been through alot, so here is hoping for the best for you, Danny and your family. Hope you have a good weekend. Deanna Hi Hes all done for today it took about 4 hours and no problems to report I have BCBS of NJ he is having privigen 10% Liquid 60 grams=600ml to be infused 3-4 hrs once every 3 weeksvia vista pump Dx is selective Ig deficiency cronic condition is PANDAS Melanie, How much does Danny weigh? He is 5'9 and weighs 140-145 Hes 15 1/2 yrs old
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