Knock Knock?

[rosielee]

Hi all,

just wondering how everyone is doing these days. this board is kind of lagging. wondering if everyone is just well enough, or that we've talked about topics til blue in the face and are all petered out?

 

or maybe most of us have enough knowledge to get us by?

 

or new posters don't post much because it looks like there isn't enough company?

 

just curious. miss all you guys. I'm confused as the rest, and looking into other things as well, but I'm glad to help if anyone needs it.

 

Blessings,

Faith

[rosielee]

hello, im here.

ive cme from another forum daily strength= which has nice people on it- but just seems to be me on there at mo

dont really have fun putting 10 posts up and getting lone reply- i need the support mannnnn!!!!

am a mum of a brill 14 yr old son- who has tics since he was 7

at the momet he is quite bad- hence my need for posts

when his tics are almost not there i dnt think about tourettes at all- other moans and problems take over- but when its bad- you know how it is- it dominates your life

my neighbours can hear his tics when they walk past the house- even with windows shut

i went through all last summer with windows shut so we could have some privacy- the houses are all backed oto each other- i dont wnaat everyone to heara my sons tics- you dont understand until youve had a child with it yourself- its to easy to thin that hes a wierdo- infact he is a vey normal, happy well adjusted boy with a vocal tic- laely its been swallowing also. a kind of deliberate swallowing.

but mostly its a noisy raw, right through the throat

after reading others posts n the daily strenngth forum i feel quite lucky he doesnt have physical ones- but certainly has had physical tics in the past! and still does shrug his arm out when nervous-

the worry when tics are bad- in enormous

you need the support of talkig to others in the same boat

there is a young person fromt he other forum who tries to commit suicde because of it- her doc has told her she has the worst he has seen- she faints and cricks her neck because of it- anther guy couldnt study as his eyes ket on going wobbly when trying o focus

your heart reaches out to these people

i know how you are feeling when you need the support of people in same boat- and you are reaching out- and you dont get a respnse for days- so thats why ive changed- havent quit the ld one- but will keep searchng for poeple to talk to about tourettes when i need the support as its such a bloody relentless condtion- there is NO LET UP- for some it continues in sleep

so here goes for this forum ill gve it a go- but if its full of sleepy people theni dnt know- maybe we should join three or four at sam time- that way we might get some sort of communication!

its a bit sad when you see forums set up- with great effort and with lots of things to do on it and lots of really good positive things on it for people but not many peole on it

[rosielee]

faith aplogies for sending your own post back to you in a reply-

entirely mistake and dont know how i did it!

[ilovedogs]

faith aplogies for sending your own post back to you in a reply-

entirely mistake and dont know how i did it!

Hi Rosilee~ I responded to you on the dailystrength boards. I actually was on there b/c of a health issue that I am having and I stumbled into the Tourettes forum so I hope you saw my replies. Anyway, I think you'll find this to be a way more active board especially the PANDAs side which I read often b/c it makes you appreciate how minor the TS really is when you see the kids with PANDAs dealing with other issues, as well.

 

Bonnie

[faith]

Happy New Year everyone!

 

I'm glad to hear from all who posted here, and very glad to see a few are doing well.

 

I can relate to all of you, we have good days and then there's the not so good. I truly don't understand it all and feel like if I just keep plugging, I'm gonna find out something important that may make the difference, you know? I wish I could fix it for all of us. some days I feel so bad for my son, and then there will be days where it doesn't seem an issue, like last night at a friends house for New Years Eve, as far as tics go, no one would have been the wiser, I don't know if he was or wasn't ticcing, (its mostly the vocal these days), but with all the kids and noise, it wasn't an issue at all. Actually he seems to do well enough when we're in a crowd, but its more his issue of not listening that gets him attention, he can be a little repetitive there...

 

Whatever path we're looking down now, keep posting, there's always plenty to talk about. Some days I want to just forget about it all, and some days I'm thirsty for information and like to pick things apart. All the cases here really interest me, I want so badly to see positive outcomes for our kids. I feel like there is this really thin veil between us and the answer to it all.... what I wouldn't give to come on here one day and yell "Eureka! I found it!"......

 

Thanks for checking in, I want reply to a few posts here, but I gotta go re-hydrate myself..........

 

Whaaat?????.........I meant a cup of TEA!!!!............sheesh......

 

Blessings for 2010,

luv,

Faith

[Chemar]

Happy New Year to you too Faith, and to everyone else who has made this board such a wealth of information along with so much caring support for one another.

 

 

[abbe]

Faith,

 

I am still here and check in not as often. I guess for two reasons, one Nicholas is doing very well and I have tried everything that I plan on trying for now and two I feel like when I obsess about his condition it consumes me, him and my relationship with my other boys who from the start thought I was crazy when I got to upset about his tics.

 

I am so, so thankful for everyone here and will continue to post and try to help others with anything that seems significant,

 

 

love/peace and happy new year

 

abbe