smartyjones Posted November 30, 2009 Report Posted November 30, 2009 there's been much talk lately about ibuprofen - can you tell me just what you've seen? my son is in a mild exacerbation after the flu. school phobia was a huge issue last year. he was out 3 days for the flu and then the whole week for Thanksgiving break. he was complaining last night of not wanting to go. i gave him motrin last night but saw no difference - he was continuing with a couple obnoxious behaviors and repeating phrases. i gave him some this am to hopefully help with school anxiety. he got in the car okay and i carried him out. he walked into the building but then tried to grab at me. i had to just leave. i gave it to him but felt it was just kind of a 'grasping at straws' b/c i was worried about the school anxiety. i know it's supposed to help the brain inflammation but i'd appreciate if anyone could tell me what you see that makes you think it's working. thanks.
thereishope Posted November 30, 2009 Report Posted November 30, 2009 I've actually experienced different things with Ibuprofen. I once tried it during my son's second exacerbation when he was very bad off. This was before I was part of this forum and the idea using Ibuprofen was really being spread so I didn't know what to expect or if it would anything. Anyway, during that time, I did not really notice a difference with the use of Ibuprofen. He went on to do a steroid and that jump started recovery. I think he just had too much inflammation for the Ibuprofen to control. Fast forward to a couple of months later. He was having setbacks with allergies and then a cold. When he had the viral setback, his PANDAS wasn't as bad as a strep triggered exacerbation. I tried Ibuprofen again. This time it helped. His main issues was some slight OCD resurfacing, irritable, short tempered, emotional. I say the Ibuprofen helped a lot. It was an obvious difference. It would take 1/2 hour to get in his system and I would see it coming back at the 5 hour mark. It was like clock work. Even now that he is recovered, if I ever see him on edge, I will give im a dose of Ibuprofen before school. I admit, I don't know if he needs it, but it makes me feel more comfortable sending him. I have never heard anything negative happening at school this year. Currently, I only give Ibuprofen when I see a virus settling in or anything that makes me worry even a little. I want to try to beat the inflamation before it happens. So, I guess I was trying to say is that I've experience Ibuprofen both ways. Working and not working. But I would say try ite very time you suspect inflammation, even if it did not work in the past.
Guest Angela Shaw Posted November 30, 2009 Report Posted November 30, 2009 there's been much talk lately about ibuprofen - can you tell me just what you've seen? my son is in a mild exacerbation after the flu. school phobia was a huge issue last year. he was out 3 days for the flu and then the whole week for Thanksgiving break. he was complaining last night of not wanting to go. i gave him motrin last night but saw no difference - he was continuing with a couple obnoxious behaviors and repeating phrases. i gave him some this am to hopefully help with school anxiety. he got in the car okay and i carried him out. he walked into the building but then tried to grab at me. i had to just leave. i gave it to him but felt it was just kind of a 'grasping at straws' b/c i was worried about the school anxiety. i know it's supposed to help the brain inflammation but i'd appreciate if anyone could tell me what you see that makes you think it's working. thanks. My dd can be just about completely incapacitated by the OCD...repeating anything and everything she does over and over or putting it off and crying about the fact that she can't DO anything for want to repeat it. Give her 200mg Advil and half an hour later she rallies and begins to try things....a short while later, she is happy and functioning well with maybe just a few reassurance questions left and a bit of repeating walking but not getting stuck there in tears/rage repeating. It is dramatic. That said, she has had some back sliding these last few days. BUT, busy holiday week-end, many sleep overs, and forgot her Celexa one night and didn't give her the Advil on schedule a couple days. Plus, she started sleeping in her own bed that last three nights which is a difficult one for her....and that was where the back sliding was mostly. It's easier if I let her fall asleep on the couch in front of the TV. (hard when the rest of the family wants to stay up) She had MAJOR sleep issues before the Advil and was up most nights till midnight or later....trying to get to bed from 8pm on. With the Advil she can fall asleep in front of the TV. Without it she can't even stay on the couch. Angela
harmony Posted November 30, 2009 Report Posted November 30, 2009 there's been much talk lately about ibuprofen - can you tell me just what you've seen? my son is in a mild exacerbation after the flu. school phobia was a huge issue last year. he was out 3 days for the flu and then the whole week for Thanksgiving break. he was complaining last night of not wanting to go. i gave him motrin last night but saw no difference - he was continuing with a couple obnoxious behaviors and repeating phrases. i gave him some this am to hopefully help with school anxiety. he got in the car okay and i carried him out. he walked into the building but then tried to grab at me. i had to just leave. i gave it to him but felt it was just kind of a 'grasping at straws' b/c i was worried about the school anxiety. i know it's supposed to help the brain inflammation but i'd appreciate if anyone could tell me what you see that makes you think it's working. thanks. I gave it to my son for the first time last week after reading this forum. I wasn't too hopeful and didn't tell anyone that I was trying it (did not want to get anyones hopes up). It was amazing, within a couple of hours my daughter and husband both came to me in excitement "he's Back! what happened?????" He was able to change his clothes (he was wearing the same clothes for 6 days) and he got into the car without any problem. I have been giving it to him every day for the last week- it doesn't take alway ALL of his symptoms but definately helps reduce the severity. I have only needed to give him 1 dose a day- late morning, early afternoon- school has been out, so he has been sleeping in- and relaxing at night. It did wear off one night and symptoms returned. He "lost it " running around house screaming and hitting people, throwing things, kicking and beating his head against the wall. It took about an hour to calm him down, ALL over a lego toy. I am so thankful for this website for informing me about Advil. I wish my doctor had told me about this years ago. I hope it continues to work for him. Good luck.
thereishope Posted November 30, 2009 Report Posted November 30, 2009 I'm gad it worked so well for him. It's weird to think something so easily accessible and "cheap" can help some of our children so much. there's been much talk lately about ibuprofen - can you tell me just what you've seen? my son is in a mild exacerbation after the flu. school phobia was a huge issue last year. he was out 3 days for the flu and then the whole week for Thanksgiving break. he was complaining last night of not wanting to go. i gave him motrin last night but saw no difference - he was continuing with a couple obnoxious behaviors and repeating phrases. i gave him some this am to hopefully help with school anxiety. he got in the car okay and i carried him out. he walked into the building but then tried to grab at me. i had to just leave. i gave it to him but felt it was just kind of a 'grasping at straws' b/c i was worried about the school anxiety. i know it's supposed to help the brain inflammation but i'd appreciate if anyone could tell me what you see that makes you think it's working. thanks. I gave it to my son for the first time last week after reading this forum. I wasn't too hopeful and didn't tell anyone that I was trying it (did not want to get anyones hopes up). It was amazing, within a couple of hours my daughter and husband both came to me in excitement "he's Back! what happened?????" He was able to change his clothes (he was wearing the same clothes for 6 days) and he got into the car without any problem. I have been giving it to him every day for the last week- it doesn't take alway ALL of his symptoms but definately helps reduce the severity. I have only needed to give him 1 dose a day- late morning, early afternoon- school has been out, so he has been sleeping in- and relaxing at night. It did wear off one night and symptoms returned. He "lost it " running around house screaming and hitting people, throwing things, kicking and beating his head against the wall. It took about an hour to calm him down, ALL over a lego toy. I am so thankful for this website for informing me about Advil. I wish my doctor had told me about this years ago. I hope it continues to work for him. Good luck.
pixiesmommy Posted December 1, 2009 Report Posted December 1, 2009 It does nothing for us. It never helped decrease tics, doesn't improve mood or change anything whatsoever as far as we can tell. It will decrease fever *sometimes* but not always.
EAMom Posted December 1, 2009 Report Posted December 1, 2009 For us it would take about 30 minutes. We first started using it May 08 when our dd had pandas anorexia (and lexapro withdrawal...so we were giving it for the lexapro withdrawal/headache etc) . We noticed that she would either 1) start to act much more normal and express interest in eating 2) or fall asleep. It didn't always get her to eat or sleep...but often.
Stephanie2 Posted December 1, 2009 Report Posted December 1, 2009 Ibuprofen has really helped my son. What I see is that within 15-30 minutes his anger and aggression almost disappear and that lasts a good 4-5 hours. What it does not seem to help are the tics. I don't think I have ever seen the tics decrease. Stephanie there's been much talk lately about ibuprofen - can you tell me just what you've seen? my son is in a mild exacerbation after the flu. school phobia was a huge issue last year. he was out 3 days for the flu and then the whole week for Thanksgiving break. he was complaining last night of not wanting to go. i gave him motrin last night but saw no difference - he was continuing with a couple obnoxious behaviors and repeating phrases. i gave him some this am to hopefully help with school anxiety. he got in the car okay and i carried him out. he walked into the building but then tried to grab at me. i had to just leave. i gave it to him but felt it was just kind of a 'grasping at straws' b/c i was worried about the school anxiety. i know it's supposed to help the brain inflammation but i'd appreciate if anyone could tell me what you see that makes you think it's working. thanks.
harmony Posted December 1, 2009 Report Posted December 1, 2009 Ibuprofen has really helped my son. What I see is that within 15-30 minutes his anger and aggression almost disappear and that lasts a good 4-5 hours. What it does not seem to help are the tics. I don't think I have ever seen the tics decrease. Stephanie there's been much talk lately about ibuprofen - can you tell me just what you've seen? my son is in a mild exacerbation after the flu. school phobia was a huge issue last year. he was out 3 days for the flu and then the whole week for Thanksgiving break. he was complaining last night of not wanting to go. i gave him motrin last night but saw no difference - he was continuing with a couple obnoxious behaviors and repeating phrases. i gave him some this am to hopefully help with school anxiety. he got in the car okay and i carried him out. he walked into the building but then tried to grab at me. i had to just leave. i gave it to him but felt it was just kind of a 'grasping at straws' b/c i was worried about the school anxiety. i know it's supposed to help the brain inflammation but i'd appreciate if anyone could tell me what you see that makes you think it's working. thanks. Same here- did not help with his tics either.
EAMom Posted December 1, 2009 Report Posted December 1, 2009 It makes total sense that tics would be the most "resistant" to ibuprofen ...as tics can also be the hardest symptom to eliminate with IVIG!
thereishope Posted December 1, 2009 Report Posted December 1, 2009 When it comes to OCD and tics, does anyone know why some children get one or the other ? Is it dependent on exactly what part of the basal ganglia is inflamed or is it more hidden in your family history or just "luck of the draw"?
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