New article : "PANDAS ... in Autism? A Case History"

[PANDAS_Denmark]

A very well written article about possible autism caused by strep -

 

http://ojs.lib.swin.edu.au/index.php/ejap/...le/view/152/175

 

Best wishes to you all -

 

PANDAS_Denmark

[EAMom]

Well...initially I thought I was going to like the article. Personally, I think that child would have done better if he was blasted with Azith. I noticed that author is very holistic and against anti-biotics (from what I could see, she never tried them in this boy). She states:

As previously mentioned, antibiotic therapy for

established cases of PANDAS has not been found

effective.

While the boy improved on her protoccol, he still had loads reamaining issues. This was obviously a complicated case, but just the fact that he had chronic sinusitis (that didn't seem to respond to her protocol), never mind the presumed PANDAS, warranted Azith.

 

Peglem (maybe she'll read it more closely than I did!) might be interested in this article. I do see that the author mentions biofilms.

 

I also thought this was very interesting point:

In prepubertal girls, vulvovaginitis

Streptococcal spp colonisation is common, with

vulvovaginitis GABHS seen only in this age group

(Welsh, Howard, & Cook, 2004).

[peglem]

Well...initially I thought I was going to like the article. Personally, I think that child would have done better if he was blasted with Azith. I noticed that author is very holistic and against anti-biotics (from what I could see, she never tried them in this boy). She states:

As previously mentioned, antibiotic therapy for

established cases of PANDAS has not been found

effective.

While the boy improved on her protoccol, he still had loads reamaining issues. This was obviously a complicated case, but just the fact that he had chronic sinusitis (that didn't seem to respond to her protocol), never mind the presumed PANDAS, warranted Azith.

 

Peglem (maybe she'll read it more closely than I did!) might be interested in this article. I do see that the author mentions biofilms.

 

I also thought this was very interesting point:

In prepubertal girls, vulvovaginitis

Streptococcal spp colonisation is common, with

vulvovaginitis GABHS seen only in this age group

(Welsh, Howard, & Cook, 2004).

 

I took a very quick look...should probably look more closely when I get a chance and feel like it. Articles that spend a lot of time defining autism at the outset lose me quickly. When it started getting into the biomedical stuff...I let go. We tried everything under the sun when my daughter was younger...came out frustrated and somewhat jaded. Ugh, all those years of despairation (spelling error intentional) and trying sooo many things that worked for others...really, it sapped my ability to hope. I don't want to diss the DAN! doctors and that whole approach. I think there are kids who are finding help and solutions there...but, nothing worked for my kid. It was expensive and I just couldn't take the dissapointment anymore. I don't trust those "special labs" they run and interpret. But, my biggest problem is they have these protocols that they seem to automatically apply, without any evidence that they will be effective in my child's case and any new things that somebody finds success with they seem to start recommending it across the board for everyone. Want to make it clear, though, that this was just my experience...I think my child has an extreme case, even in the autism world they seldom see anything as severe as my daughter...I do not want to discourage anyone from seeking help from DAN!, as I know a lot of people who feel very strongly that it was THE ANSWER for their child.

[smartyjones]

Thanks PANDAS_Denmark - i found this quite interesting b/c it addresses my theory that for my son his food intolerances are/may be caused by strep in the gut. most of the behaviors he presented with were yeast-like. he tested with high titers and positive culture but no other typical strep symptoms. i definetly feel the two are related. perhaps i liked the article b/c i am reading it through 'my glasses'.

 

aside from the autism, the child in the article's behavior is similar to my child. i agree it seems to be written from a naturopathic perspective and thus anti-abx.

 

our first naturopathic dr wanted to justify him as a strep carrier and work to heal his gut. i wasn't comfortable not addressing the strep and trying to allow his system to take care of it. our current naturopath says this is common in the naturopathic world (focusing primarily on gut health) and thinks you need to attack both issues.

 

does anyone know if this statement is a naturopathic view or commonly accepted in the modern medicine world?

"microbial cross-talk with the cellular components of the gut-associated lymphoid tissue is now recognized to be the major determinant of the immune system function. (Macpherson & Harris, 2004)

 

 

Thanks!

[Stephanie2]

I agree that the naturopaths are not that into the abx. I had to ditch our first DAN doctor recently b/c he would not give me enough zithro. He erred more on the naturopath side, where our new DAN does a real balance btwn naturals and abx. Personally, I would rather not do abx and would rather rely on the naturopath to work on the gut and rely on the "tincture of time" as he put it, but he just didn't get the level of desperation we were at as a family! The new DAN has two pandas kids of his own and he gets it...

 

Stephanie

 

Thanks PANDAS_Denmark - i found this quite interesting b/c it addresses my theory that for my son his food intolerances are/may be caused by strep in the gut. most of the behaviors he presented with were yeast-like. he tested with high titers and positive culture but no other typical strep symptoms. i definetly feel the two are related. perhaps i liked the article b/c i am reading it through 'my glasses'.

 

aside from the autism, the child in the article's behavior is similar to my child. i agree it seems to be written from a naturopathic perspective and thus anti-abx.

 

our first naturopathic dr wanted to justify him as a strep carrier and work to heal his gut. i wasn't comfortable not addressing the strep and trying to allow his system to take care of it. our current naturopath says this is common in the naturopathic world (focusing primarily on gut health) and thinks you need to attack both issues.

 

does anyone know if this statement is a naturopathic view or commonly accepted in the modern medicine world?

"microbial cross-talk with the cellular components of the gut-associated lymphoid tissue is now recognized to be the major determinant of the immune system function. (Macpherson & Harris, 2004)

 

 

Thanks!